I guess I disappeared for a while. Back again, missed the support of everyone here!
So.. at one point I was told I was getting surgery for my curves. Then they said I wasn't. My doctor insisted (though he'd probably deny it now) that my spine would not get worse if I had another child. It did. I had a 12 degree progression on my 56 degree "stable" curve. I am in a lot more pain now. About a month before my 2nd daughter was born, my eldest daughter was diagnosed with a 40 degree curve (there were 2 curves but they only measured one ever) They put her in a Boston brace and I promised her that we would try to get her a SpineCor brace ASAP.
Well.. now her curves have progressed to over 50 degrees for the top curve and 80 degrees on the bottom one. She's 12 years old, still a lot of growing left. I think her Risser score was 2 or 3.
We found someone who does SpineCor near my home. I always expected them to tell me that they could help my daughter, but not myself. Then we get the most recent measurements and they tell me the opposite. They want her to get surgery. She doesn't want it (I don't blame her though I would get it for her in a heartbeat if she asked) Her body is functioning fine with this curve right now. No complications that we can find.
I have been hunting through the posts, but it's really hard to find specific information on large curves, maybe it's all over the place. Anyway, has anyone ever had the SpineCor for a large curve while still growing? I know it's definately not recommended. I was just hoping I could find someone who has dealt with this.. someone who might be able to give me more information. I feel useless!
So.. at one point I was told I was getting surgery for my curves. Then they said I wasn't. My doctor insisted (though he'd probably deny it now) that my spine would not get worse if I had another child. It did. I had a 12 degree progression on my 56 degree "stable" curve. I am in a lot more pain now. About a month before my 2nd daughter was born, my eldest daughter was diagnosed with a 40 degree curve (there were 2 curves but they only measured one ever) They put her in a Boston brace and I promised her that we would try to get her a SpineCor brace ASAP.
Well.. now her curves have progressed to over 50 degrees for the top curve and 80 degrees on the bottom one. She's 12 years old, still a lot of growing left. I think her Risser score was 2 or 3.
We found someone who does SpineCor near my home. I always expected them to tell me that they could help my daughter, but not myself. Then we get the most recent measurements and they tell me the opposite. They want her to get surgery. She doesn't want it (I don't blame her though I would get it for her in a heartbeat if she asked) Her body is functioning fine with this curve right now. No complications that we can find.
I have been hunting through the posts, but it's really hard to find specific information on large curves, maybe it's all over the place. Anyway, has anyone ever had the SpineCor for a large curve while still growing? I know it's definately not recommended. I was just hoping I could find someone who has dealt with this.. someone who might be able to give me more information. I feel useless!
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