Infantile Scoliosis Outreach Program
I came across the following website just recently, maybe it would be helpful to you if you haven't seen it already: www.infantilescoliosis.org
It talks about the Infantile Scoliosis Outreach Program (ISOP) and has a lot of info about casting, as well as links to other families whose child is undergoing casting.
Good luck! I can only imagine how hard this time is for you.
Gayle, age 48
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 14 y/o, diagnosed '08 with 26* T JIS (age 6)
4/08 26 degrees, brace 16 hrs/day
9/08 17 deg. OOB - brace discontinued
9/09 30 deg, resuming brace
5/10 VBS Dr Luhmann Shriners St Louis
4/15 stable 5 yrs post-op, 18* T/ 22* L, Risser 2
also mom of Torrey, 10 y/o son, 16* T, stable