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Thread: After casting questions

  1. #1
    Join Date
    Sep 2008
    Posts
    1

    After casting questions

    A few questions that I hope people can help me with. My son just started his serial casting yesterday. This has been very sad for me. My questions that I do have are 1. How long until he gets used to this thing? He can't even sit up in it. He is very frustrated, which in turn makes me frustrated and heartbroken. I know that each child is different, but was curious of your experience with it. 2. Why is this cast so heavy? He can't even keep his balance without falling over. It sucks! I guess I have other questions, but can't really think right now. Any experiences that any of you have and would like to share, please please do so. Thanks so much. I am looking forward to the responses.

    Angie

  2. #2
    Join Date
    Nov 2005
    Posts
    404
    Hi Angie,

    I grew up wearing casts from the age of 6 months. You do get used to them; please don't worry, your son will adapt. Children are very resilient and able to work with whatever circumstances they are faced with. However, right now the cast is new and strange to him, and he's feeling frustrated at this new challenge. But he'll get there, I promise

    By the way, I wore casts up until the age of ten (alternating with a Milwaukee brace when I was a bit older) - this was back in the 70s and 80s before growth rods were available, so they had to hold my curves as long as possible to give me time to grow before I had a spinal fusion. I eventually had the fusion when I was ten. My casts weren't designed to correct the curve as your son's serial casts are; they were simply to try to prevent progression.

    I can say that I was able to do pretty much anything I wanted in the casts, and that I even learned to walk in them - I hope that's some comfort to you.

    The cast is so heavy because it's probably made of plaster of paris (it might have a fibreglass top layer) - fibreglass itself isn't rigid enough to hold the spine.

    Hope this helps! Good luck *hugs*

    Toni in the UK xx

  3. #3
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,014

    Infantile Scoliosis Outreach Program

    Hi Angie,

    I came across the following website just recently, maybe it would be helpful to you if you haven't seen it already: www.infantilescoliosis.org

    It talks about the Infantile Scoliosis Outreach Program (ISOP) and has a lot of info about casting, as well as links to other families whose child is undergoing casting.

    Good luck! I can only imagine how hard this time is for you.
    Gayle, age 47
    Boston brace as a teen for AIS
    Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
    Feb 2012 major A/P revision for broken rods


    mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
    4/08 26 degrees, brace 16 hrs/day
    9/08 17 deg. OOB - brace discontinued
    9/09 30 deg, resuming brace
    5/10 VBS Dr Luhmann Shriners St Louis
    5/14 stable 4 yrs post-op, 14* T

    also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)

  4. #4
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,757
    Hi Angie,

    I agree with Gayle. I am very familiar with that website and I think it's fantastic. You will find great info, support, etc.

    Best of luck to you!!
    mariaf305@yahoo.com
    Mom to David, age 15, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently holding around 26 degrees)
    Under care of Dr. Randal Betz since 2004

    Also mom to Nicole (22) and Danny (25)

    Link to VBS Website: www.vertebralstapling.com

    Janet Cerrone, PA to Dr. Betz janetcerrone@spineandscoliosis.com or (609) 912-1500

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