Page 1 of 2 12 LastLast
Results 1 to 15 of 24

Thread: Fusion All The Way To Pelvis??

  1. #1
    Join Date
    Nov 2008
    Posts
    16

    Lightbulb Fusion All The Way To Pelvis??

    Can anyone please share their experiences about being fused all the way to your sacrum? My revision surgery will involve this. I have been educated about limitations on flexibility etc. But would really appreciate some firsthand stories/advice!

  2. #2
    Join Date
    Mar 2007
    Posts
    213
    Hi Kate,

    My fusion originally went from just below my neck (T2 or T3, I think) down to my lumbar spine (about L3), but then it was extended right down & anchored into my pelvis. You'll see in my sig that I'm soon to get this part revised, but please be assured this is not common, & is only because of other medical issues that I'm dealing with.

    Apparently the hardware for use in the spine and the gear used to anchor into the pelvis has come a very long way in just the last few years, allowing surgeons to get better & more stable correction than ever before. Today's technology is incredible!

    Yes, such extensive fusion will affect your flexibility - but once you're used to it, it's not really something you'll notice a lot. You might be interested in this post from Mary Ellen, whose son Sidney just had extensive fusion surgery (& is doing AMAZINGLY).

    Hope this helps you out a little. There are plenty of members who have had this type of fusion surgery, & who are doing great.

    Best wishes to you. Take care.

  3. #3
    Join Date
    Oct 2005
    Location
    Chicago north suburb
    Posts
    774
    Hi Kate,

    I have a fusion to the sacrum and am five months post-op. I have lost a lot of flexibility. I need sock aides to put on my socks. You should have seen me this morning trying to get on opaque tights. What a circus act! I did get them on though. I canít reach my toenails to cut them so I get pedicures. I can shave my legs though by maneuvering around. Since Iím restricted from bending, I donít even dare to try and pick up something off the floor. I use my reachers and grabbers. And I use them when I do my laundry to take clothing out of the washer and dryer. When I was told that I required a fusion to the sacrum, I was freaking out about losing all my flexibility, but I have adapted. And I was also told that because of the severe progressive curve I had that I would eventually lose the ability to bend anyway. Iíve had benefits from my surgery that far exceed the loss of flexibility so Iím quite pleased and I think you will be too.

    Chris

  4. #4
    Join Date
    Nov 2008
    Location
    Greenfield, WI
    Posts
    414
    Kate, did u get a 2nd or 3rd opinion? I did....and Im glad I did. The 1st surg. said it must go in my sacrum, and I was mortified. He explained how extensive it would be, and told me about the additional risks and limited mobilty as well. I was not happy with this and found the doc I have now....Dr Clifford Tribus. He feels very confident that he can "save" the last vertabre. Explained that yes, eventually I will need that last one fused as well..years down the road due to over use and abuse on the one remianing, I would have a better quality of life now. Made sense to me. Its worht another opinion & it will make you feel better too, as it did me. Do what feels right as you only have one spine, so pick and choose your battles well! Good luck!
    Lynn -30.... something
    DxD @ 8 yrs old: 10* curve-no brace-no nothin'!
    At age 26: Thorasic 48*/Lumbar 50*
    At age 34: Thorasic 58*/Lumbar 60*
    Posterior T5-L4 Fusion Jan 14th, 2009 w/Dr Tribus
    UW Madison, WI Hospital
    **AFTER: less than 10* Thorasic/15* Lumbar**

  5. #5
    Join Date
    Nov 2008
    Posts
    16
    Hi LynneMarie, Yes I actually sought and received 5 opinions. 4 in agreement. There is also some additional stuff going on that "upped the ante" and due to my age (37) and medical presentation, left little doubt this is it. Thanks for asking

  6. #6
    Join Date
    Jun 2006
    Location
    Euharlee, Georgia
    Posts
    449
    Due to the pain you are having, you probably won't notice much difference. My back fuse itself down to there. I use my legs for bending. It is no different than being 8 -9 months pregnant!
    T12- L5 fusion 1975 - Rochester, NY
    2002 removal of bottom of rod and extra fusion
    3/1/11 C5-C6 disc replacement
    Daughter - T7 - L3 fusion 2004

  7. #7
    Join Date
    Nov 2008
    Location
    Greenfield, WI
    Posts
    414
    Well, thats good. You say "due to your age"....37 is not old, Im 34....granted, the ideal age for this surgery is the "teenage years"....but eh, we'll bounce back quickly I'm sure! Doesnt getting old suck?! lol Im dreading my 35th in April...ughhhhh! Take care!
    Lynn -30.... something
    DxD @ 8 yrs old: 10* curve-no brace-no nothin'!
    At age 26: Thorasic 48*/Lumbar 50*
    At age 34: Thorasic 58*/Lumbar 60*
    Posterior T5-L4 Fusion Jan 14th, 2009 w/Dr Tribus
    UW Madison, WI Hospital
    **AFTER: less than 10* Thorasic/15* Lumbar**

  8. #8
    Join Date
    Nov 2008
    Posts
    16

    Old At 37

    You know you are so right LOL. I think I feel so old because of the ****** pain! Hee hee

  9. #9
    Join Date
    Nov 2008
    Posts
    16

    Surgery (2nd) Dec 19!

    Thanks everyone for your thoughts, it helps so much. My surgery is December 19 at Baylor with Dr. Shelekov's partner Dr. Hostin (I see them both-maybe they switch me around because I am sucha regular customer LOL).

    They are really great because they actually fit me in the schedule since I am in so much pain. I actually didn't sleep at all last night - you'd think with all these meds I would be knocked out! My 8mo old puppy sleeps with me and he was not at all appreciative of all my tossing and turning, he will probably chew more carpet today in revenge. Actually stupid as it sounds the dog has been a big help getting through this. Think Baylor will let him visit? (lol)

    Did anyone have to wear a brace after this surgery? I didn't after my first one.

  10. #10
    Join Date
    Nov 2007
    Location
    Big Bear, CA
    Posts
    290
    Hi Kate,
    I sent you a PM regarding this thread. Good Luck.
    Geish
    Geish
    47 years old, dx at 13
    +30* to the right, +60* to the left, +30* to the right
    Surgery 12-13-07 - fusion from T4 to sacrum.


    http://www.scoliosis.org/forum/attac...tachmentid=267 Pre surgery
    http://www.scoliosis.org/forum/attac...tachmentid=268 Post surgery
    http://i156.photobucket.com/albums/t...s/DSC01091.jpg Xray from the side
    http://i156.photobucket.com/albums/t...1089-1-1-1.jpg Xray from the back

  11. #11
    Join Date
    Mar 2008
    Posts
    74
    Hi, Kate-I am a Shelokov patient also, and I did have to wear a brace. My problem is sort of opposite of yours. I am fused upwards to C1, so my brace involved the neck collar as well as the TLSO. Wasn't too bad.
    Posterior fusion T5-L1 May 5, 2003-age 43
    Posterior revision, thoracotomy,fusion T2-L2 April 8, 2008-age 49
    Fusion extension C1-L2 evacuation left pulmonary effusion May 9, 2008, age 49
    www.buggfamily.blogspot.com

  12. #12
    Join Date
    Sep 2008
    Location
    Colorado
    Posts
    94
    Kate 7 Lynnmarie74,

    I am 32 but all this pain doesn't make me feel young at all. I understand totally!! LOL I feel older then my mom at times and that ain't good. haha Getting older is --------
    Adrienne
    1991 T4 - T12 Fusion
    1993 Rod Removal
    1999 T4-L4 Fusion (7 rib thoracoplasty)
    2002 Rod Removal 58;49 degrees
    Denver, CO; Dr. John Odom
    Rocky Mtn. Spine Center

  13. #13
    Join Date
    Sep 2007
    Location
    Geneseo, NY
    Posts
    133

    Thumbs up gettin old with a fusion

    Someone on this thread said they were getting old at age 34???? Just wait until you reach your 50's! But really, I am very blessed to have had relatively few problems with technology that was very new when it was put into my back. At that time they certainly did not recognize the stress a fusion places at its base. So while you will be somewhat limited in your bending, if you have a fusion to the pelvis now, you will avoid the likely problems as you grow older.
    1966 fusion in Buffalo of 11 thoracic vertebrae, with Harrington rod

  14. #14
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,555

    tights?

    Kate

    You should have seen me trying to get my opaque tights on! LOL (that's a joke guys)

    Actually, for getting socks on what I do is use a stool that is 24 inches above the floor, set my foot on the stool and lean into it.
    If you cross your leg as if you were starting a yoga sitting position, you should be able to push your foot up into your groin area which will give plenty of access to the foot. I clip my toenails this way also. I have thrown my sock installer in the trash. A short length sock with a high amount of (stretchy) latex is preferable. I put 2 socks on in 5 seconds now.

    The way women remove their bras with a shirt on is a little too complicated for men to figure out. I've been thinking about that for years, and basically I have given up. As far as the tights goes, I don't know, cut the crotch out and go over the head? Start inside out, and jump up and down.? When one of you figures it out, don't tell me, I don't care! LOL

    Before my surgery, I was able to bend over and press my palms flat on the floor. Now with a little knee bend I can touch the floor with my fingertips. Once I get my legs stretched out again, I will be able to touch the floor with my fingertips.

    I had absolutely no choice in my decision to have surgery due to my extreme pain and sciatica. I was corked hard down low,and I expected to be fused all the way to the pelvis. Change is always difficult, and adaptability is something that we learn no matter what happens. After one adapts, you always look back and think, 'wow that wasn't all that big a deal'.

    A long time ago down in San Diego, I was sitting by a pool and there was this guy with no arms. He had a pack of cigs in his shirt pocket and I was wondering how he smoked them. All of a sudden, he pulled the pack from his shirt pocket with his toes, inserted a cig into his mouth, took a book of matches out and lit the match with his toes, and lit his cigarette. Now this is an example of adaptability.

    He wasn't wearing tights.

    Good luck
    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  15. #15
    Join Date
    Sep 2005
    Location
    Tennessee
    Posts
    389
    ROFL, Ed!!!!!!

    Thanks for the laugh.... Now i'll think of this the next time i'm wrestling with panty hose!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •