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Thread: Questions for everyone?

  1. #1
    Join Date
    Jun 2008
    Posts
    7

    Wink Questions for everyone?

    Other than some lower back pain which my doc says looks like i have arthritis and this hip pain i'm feeling which may or may not be related to the scoliosis, I have been blessed compared to many.

    For the most part I've had absolutely no problems. Because i've been great i haven't followed up with scoliosis specialist and i'm wondering does everyone see someone on a regular basis to check your back or do you wait until you're hurting or feeling something wrong.

    My bigger problem is I don't have a scoli doc anymore, I had my surgery as a kid in children's hospital in philly my doc told me i could come back no matter how old i was he would follow me if i needed him and i did go back once about 17 years ago when i took a really bad fall but he told me eventually he was retiring. Well he's retired, where should I go? Anyone know a great doc in the NJ/Philly area (not NYC i live in SJersey)

    Thanks.
    Emma

    Scoliosis Surgery May 1989
    Children's Hospital of Philadelphia

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    Hi...

    There's really no reason to follow up if you're not having any issues. If you start having significant pain or other symptoms, that would be a good time to see someone.

    Regards,
    Linda

  3. #3
    Join Date
    Mar 2008
    Location
    Ottawa, Canada
    Posts
    101
    Hi Emma,

    We had our surgeries about the same time (mine was in 1990) and I too haven't been getting regular check-ups for my scoliosis. I was told I wouldn't need it as well. I hurt my lower back lifting something about 10 years ago, and was sent for an x-ray just to make sure my hardware was in place. I was then sent for physical therapy, recovered and never saw a specialist. About a year ago I hurt my lower back again and this time the CT scan showed a herniated disc pushing on a nerve, so I was given a referral to a back specialist. He was able to answer all of my questions about both the scoliosis (nothing has changed, so I don't need to worry about it) and the disc. Again, physical therapy has been working for me, so I've avoided surgery.

    I've read that you don't need to see a specialist if you have no pain, but it is a good idea to get an X-ray every ten years or so, just to make sure everything is still where it should be.

    My suggestion would be to get a referral to a back specialist in your area if you are having pain. You will probably also need to get an x-ray and a CT scan or MRI before seeing the specialist. If your pain is indeed related to scoliosis and the specialist you see does not work in that area, I'm sure he/she could give you a referral to a scoliosis specialist. You may find like me though, that the pain isn't related and the specialist will give you tips he/she would give anyone with back pain.

    BTW, I also had some hip pain and it turned out to be referred pain from my herniated disc. Just something to consider - hip pain doesn't always come from the hips.

    Good luck in your search for answer!
    - 39 years old
    - At age 14, curve progressed from 45 degrees to 62 degrees in two months.
    - Surgery in 1990 at the Children's Hospital of Eastern Ontario (CHEO) with Dr. Letts. Fused T5 to L2. Corrected to about 30 degrees.
    - Harrington rod
    - Herniated disc - L5/S1 - January 2008. Summer 2009 - close to making a full recovery.
    - New mommy as of February 2011
    - Second child - September 2013
    - Staying relatively painfree through physio exercises!

  4. #4
    Join Date
    Jun 2008
    Posts
    7

    Talking Thanks

    Thank you Linda and SisforSarah.
    Emma

    Scoliosis Surgery May 1989
    Children's Hospital of Philadelphia

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