I just turned 18 in September and I was told that I can no longer see my doctor at the Children's Hospital of Eastern Ontario. I have had such bad luck with doctors I now feel like I can no longer trust what they say.
I have a 28-27 degree curve (depending on who is looking at the x-rays), I have had a bone scan, a CAT scan, a MRI and over 5 x-rays in the past year. All tests have come up negative for anything other than the curvature.
I am in constant pain that I cannot seem to relieve but I do not want to take pain medication (I am worried I will become addicted and dependent on them).
Now that I am 18, I feel hopeless to try and solve this pain issue. All the doctors that I have seen have simply told me:
(a) Scoliosis does not cause pain
(b) It's all in my head and I need to stop trying to get attention
(c) I will just need to deal with it
I had asked if there was anything that I could do to stop the pain that I am having, try something other then just waiting and dealing with it, with little enthusiasm from the doctors. They tell me that I cannot afford a brace (how would they know?), braces are too expensive to just "try" and see if they will work, or they say that I don't need it. Where do they get off saying this!
Sometimes I just wish that I could switch places with these so called doctors. I always thought that doctors wanted to help patients get better. I feel like I can no longer trust any doctor. Now, I don't even want to see another doctor for my scoliosis. My boyfriend is very supportive of me, and feels so bad when I lay in bed and cry because I am exhausted and haven't had a good night sleep for over a year.
I just don't know what to do anymore. Should I be looking on the internet for a good doctor to go see or should I just let this go and deal with this by myself?
Thanks to everyone who has listened to me whine through all of my posts. You've all helped me so much,
Justine
I have a 28-27 degree curve (depending on who is looking at the x-rays), I have had a bone scan, a CAT scan, a MRI and over 5 x-rays in the past year. All tests have come up negative for anything other than the curvature.
I am in constant pain that I cannot seem to relieve but I do not want to take pain medication (I am worried I will become addicted and dependent on them).
Now that I am 18, I feel hopeless to try and solve this pain issue. All the doctors that I have seen have simply told me:
(a) Scoliosis does not cause pain
(b) It's all in my head and I need to stop trying to get attention
(c) I will just need to deal with it
I had asked if there was anything that I could do to stop the pain that I am having, try something other then just waiting and dealing with it, with little enthusiasm from the doctors. They tell me that I cannot afford a brace (how would they know?), braces are too expensive to just "try" and see if they will work, or they say that I don't need it. Where do they get off saying this!
Sometimes I just wish that I could switch places with these so called doctors. I always thought that doctors wanted to help patients get better. I feel like I can no longer trust any doctor. Now, I don't even want to see another doctor for my scoliosis. My boyfriend is very supportive of me, and feels so bad when I lay in bed and cry because I am exhausted and haven't had a good night sleep for over a year.
I just don't know what to do anymore. Should I be looking on the internet for a good doctor to go see or should I just let this go and deal with this by myself?
Thanks to everyone who has listened to me whine through all of my posts. You've all helped me so much,
Justine
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