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Thread: scoliosis with 67 degrees

  1. #1
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    Nov 2008
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    scoliosis with 67 degrees

    Hi
    I am 24yrs old. I just met an orthopedic and he confirmed i have scoliosis with 67 degrees
    actually he compared my childhood x-rays and the recent x-rays and said that actually he didnt see much progress in the curve - meaning i am having 65 degrees curves since birth.
    he asked me to meet a physio therapist and asked to practise some exercises.
    according to him surgery is not necessary as my structure is fully grown.

    anyone any suggestions on this is greatly appreciated.
    i dont know if i need a surgery or .......

  2. #2
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    Hi...

    First, you might want to post to the area for adults (you've posted to the Adolescent & Teen forum).

    I always recommend that everyone get at least two opinions from doctors who specialize in scoliosis. You can find a list of specialists here:

    http://www.srs.org/find/

    Regards,
    Linda

  3. #3
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    hi linda
    thanks for your advice. i tried the link you gave but unfortunately it says no physician found for my search.( i tried to pick adult scoliosis in maryland area).
    If you know any doctor in maryland area would be really good.
    regarding posting in an adoloscent thread, how can I move my post to adult scoliosis thread.

  4. #4
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    SRS docs in Maryland

    Hi there,

    Try again on your SRS search--I tried for Maryland and found 15 specialists listed for adult scoliosis.

    Good luck!
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  5. #5
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    If he is in your insurance network, you might want to check out Dr. Lauerman at Georgetown in DC.

    We are in PA and he will be following my dd's case.

  6. #6
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    thanks guys for your suggestions and support. I will surely again try in SRS for the doctors around our place.

    Can you tell me how is Dr. Lauerman at Georgetown in DC.

    I am actually really scared. I want to approach a doctor if his reviews are really good.

    Thanks for all the love and support

  7. #7
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    Quote Originally Posted by scoliotensed View Post
    thanks guys for your suggestions and support. I will surely again try in SRS for the doctors around our place.

    Can you tell me how is Dr. Lauerman at Georgetown in DC.

    I am actually really scared. I want to approach a doctor if his reviews are really good.

    Thanks for all the love and support
    We have only met with Dr. Lauerman once (as a 3rd opinion for my dd as surgery was indicated). He took the time and listened to all of our concerns (of course I have more questions now). He was very thorough in asking us questions (asking me even about my pregnancy with dd--was she high risk, etc.?) which the other doctors didn't do. He also looked at her MRI more carefully and consulted with a neurosurgeon about a suspicious spot he saw (which turned out to be nothing, thank God!). He said he tended to be overly cautious, which is fine by me.

    He also struck as a very humble man.

    I have emailed 2 different people who had direct experience with him (one in an interview and the other whose son had 2 surgeries with him). They said he was the best and Georgetown's aftercare was wonderful. The first mom said that she really liked him and most likely would've gone with him, but her dd preferred someone else (you know how you just "click" with people). But this mom had also done her research on some of the top doctors in scoliosis surgery, and Dr. L's name came up as being one of the top 10 or so on the East Coast. She was very kind to share her information with me.

    So far we haven't found anyone who has not liked him.

    From the research I've done and what others have said, he is a professor at Georgetown as well, so he is up on the research and such (he does it as well).

    And, my dd said she trusts him. Something I didn't hear from her about the other surgeons we saw.

    Hope this helps. I think if he is in your insurance network, at least go and see him for a second opinion. With whomever you choose, you do want to find a surgeon who is a specialist in scoliosis surgery.

    We live in PA and traveled 3 hours to see him. It was well worth the trip. I do wish we lived closer, but you work with what you can.

    Take care,
    Marian

  8. #8
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    Hi Marian

    Thanks a lot for patiently giving me info regarding Dr. L
    I would surely contact him and hope I would also be comfortable with the doctor.
    Will keep you posted with the happenings.
    Please update me with your dd surgery. All my prayers are with her.

    Peace

  9. #9
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    Quote Originally Posted by scoliotensed View Post
    Hi Marian

    Thanks a lot for patiently giving me info regarding Dr. L
    I would surely contact him and hope I would also be comfortable with the doctor.
    Will keep you posted with the happenings.
    Please update me with your dd surgery. All my prayers are with her.

    Peace
    No problem! We are all here to help each other and share information. So many people have been so wonderful and helpful to me on this board.

    Do contact different doctors--you are the one who will know with whom you feel the most comfortable.

    Please do keep us posted with what is happening. I will do the same with our dd although we are in a down time right now and her next appt. is in mid-Feb. Just hoping it doesn't snow! At least we will miss all the traffic during the inauguration!

  10. #10
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    Quote Originally Posted by scoliotensed View Post
    Hi
    I am 24yrs old. I just met an orthopedic and he confirmed i have scoliosis with 67 degrees
    actually he compared my childhood x-rays and the recent x-rays and said that actually he didnt see much progress in the curve - meaning i am having 65 degrees curves since birth.
    he asked me to meet a physio therapist and asked to practise some exercises.
    according to him surgery is not necessary as my structure is fully grown.

    anyone any suggestions on this is greatly appreciated.
    i dont know if i need a surgery or .......
    i suggest you take a look at the Scoliosis SOS website.
    www.scoliosissos.com
    i went to SOS 2 years ago with a curve of 56.
    it then went down to 49-52. (:
    if you want more details just ask

  11. #11
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    Quote Originally Posted by Essi View Post
    i suggest you take a look at the Scoliosis SOS website.
    www.scoliosissos.com
    i went to SOS 2 years ago with a curve of 56.
    it then went down to 49-52. (:
    if you want more details just ask
    This, in the SOS FAQ pretty much summed it up for me ...

    Question: "What is the difference between the ScolioGold treatment offered by Scoliosis SOS and the Schroth method used on the continent? "

    Answer: "The difference is the quality of our results. At Scoliosis SOS our results are second to none. ScolioGold is a hybrid of the best non-surgical treatments for spinal curvatures and originated from the Schroth method.

    Many people (health professionals and patients) have commented on how our results, at Scoliosis SOS, are so much better than the Asklepios Katharina Schroth Klinik’s results. This is partly due to our high therapist to patient ratio i.e. our class sizes are smaller; 6 or 7 patients to each therapist compared to the 20 patients per therapist they have in Germany.
    We have also had English patients who went to Germany several years ago, before Scoliosis SOS opened in the UK, but who have now come to us for follow-up treatment and they have all commented that the treatment given at Scoliosis SOS is of a much higher standard. "


    Schroth (nor ScoliGold) demonstrates any "quality of results". One has merely existed longer than the other ... and neither is proven to reduce a curve.

    I really had to laugh at this snake oil hawker bashing another one with "Many people (health professionals and patients) have commented on how our results, at Scoliosis SOS, are so much better than the Asklepios Katharina Schroth Klinik’s results."

    Define "many" and the credentials of the "health professionals".

    At best, PT, exercise, etc. - or any program that makes wild claims while taking your hard earned money - MAY help reduce pain. NONE of them will CURE a curvature.

    BTW, Essi, your curve "correction" is well within the margin of error. Why was your Cobb 56° (absolute) at initial measurement, and now it's ±49-52°? 56° vs. 52° means nothing, and a hard Cobb of 56° compared to a range of 49° to 52° means even less. They're simply playing a numbers game with you, and I hope you don't fall for it.

    At the very least, if you had pain, I hope it has helped.
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op ±53°, Post-op < 20°
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  12. #12
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    Quote Originally Posted by txmarinemom View Post
    BTW, Essi, your curve "correction" is well within the margin of error. Why was your Cobb 56° (absolute) at initial measurement, and now it's ±49-52°? 56° vs. 52° means nothing, and a hard Cobb of 56° compared to a range of 49° to 52° means even less. They're simply playing a numbers game with you, and I hope you don't fall for it.
    If a chiro measured it and didn't take it out to at least 4 decimal places, I can't have confidence in the measurement. Digital protractors canNOT be beat!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  13. #13
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    I wasn't saying it can cure a curve, and i'm not saying that it has cured mine. My cob angle before was anywhere from 54-58 (56) and then the next time i got x-rays, it was 49 (47-51). This is what my surgeon told me. (it got a bit worse later with it getting to 52 (50-54).
    +
    The cob angle doesn't mean anything to me, I measure my back on my quality of life, and SOS has definitely changed my quility of life. I'm pretty much pain free and stand tall, so i'm completely satisfied. (:

  14. #14
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    Quote Originally Posted by Essi View Post
    I wasn't saying it can cure a curve, and i'm not saying that it has cured mine. My cob angle before was anywhere from 54-58 (56) and then the next time i got x-rays, it was 49 (47-51). This is what my surgeon told me. (it got a bit worse later with it getting to 52 (50-54).
    +
    The cob angle doesn't mean anything to me, I measure my back on my quality of life, and SOS has definitely changed my quility of life. I'm pretty much pain free and stand tall, so i'm completely satisfied. (:

    Interesting ...

    That's great you feel your quality of life has improved, but there's very little science to back it up.

    You take your pre-treatment 54-58° measurement as a median/centerpoint (I have no idea how many times each number occurred) of 56°: It could mean ±5° on EITHER side. You could have been as little as 49°; as high as 63°.

    Same for your "post-treatment" measurement: You now say you increased to 50°-54° (you didn't in your first post ... you chose the best numbers).

    Again, the median of 52° is inaccurate. You can say you COULD have been 45° at the least, and 59° at the worst.

    Margin of error is at LEAST ±5° (maybe ±10°) ... and, BTW, it's "Cobb" (not cob). I really worry about this kind of information. If it works for you, great ... but you really don't seem to know the details of how things are measured.

    Again ... if it makes you feel better, go for it. I'd ask you do some self study, however, on the details; make SOS explain their measurements compared to SRS standards.

    Regards,
    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op ±53°, Post-op < 20°
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  15. #15
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    I understand that you worry about this information, but still 45-59 is better than 49-63. Although, it's probably the roughly the same.

    The natural history for my age and curve type is for my curve to deteriorate. By doing exercises my curve has stabilised (over two years) with six monthly x-rays. The cobb angles have been measured by several independent people. Now I know that there is error but you are choosing to represent that I must be over-estimating improvement while you are under-estimating any change.
    I have a very senior and experienced surgeon who agrees that my curve has stabilised. Now this could be just good luck I suppose, or it could be that the exercises I have been doing have helped. I am not the only person to have undergone this kind of treatment and it been successful.

    I really dont want to pick a fight here and its hard for you to understand what my scoliosis is like as for it is different for everyone. I understand were you are coming from, though.

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