Has anyone else been diagnosed with Scoliosis and Neurofibromatosis. I understand that the two are very connected.
I was diagnosed with Scoliosis at the age of 7 and diagnosed with N.F. at age 20. I did have all the signs of NF at age 7 but no one seemed to know what is was.
It seems funny to me that spending 18 months in a hospital, being looked at by numerous Doctors, that one would have picked up on it.
Sorry if I seem negitive but I need to get this frustration of my chest!
I was diagnosed with Scoliosis at the age of 7 and diagnosed with N.F. at age 20. I did have all the signs of NF at age 7 but no one seemed to know what is was.
It seems funny to me that spending 18 months in a hospital, being looked at by numerous Doctors, that one would have picked up on it.
Sorry if I seem negitive but I need to get this frustration of my chest!