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7 year old diagnosed - hoping to find friends to talk with

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  • 7 year old diagnosed - hoping to find friends to talk with

    Hello everyone... it's my first time posting, but I'm very glad to be here. I have a lot of reading to do, but this is such a great resource - as are all of you!

    My 7-year-old daughter was diagnosed at the end of August. Although her curve is very slight (only 15 degrees at L2/L3), she does have a significant rotation (not sure the measurement of that; again, I'm 10 days into this), and my husband's family history is considerable. As such the orthopedist decided to brace her in (what I believe is) the nighttime Providence brace. We just had the mold casting done on Monday.

    I'm hoping to find some other girls who are going through this - my daughter is anxious to find others who are her age to penpal with. Any other JIS girls who'd like to correspond or even meet if we're close enough? I'm in Virginia.

    Thanks in advance.

  • #2
    Hi-
    I think your daughter might really like SpineKids
    http://spinekids.com/


    It has a kid friendly , moderated message board/forum of mostly kids and a few parents and they are really great about keeping the kids safe on-line.

    Best of luck with your daughter's treatment,
    Cara
    Cara, Mom to Nathan
    Diagnosed 24 deg. in July 2007, progressed to 38 deg. by August 2007
    Boston Back Brace 8/07 – 12/07
    VBS 12/10/07 Boston Children's Hospital
    Dr. Hresko
    40 Degrees before VBS
    11 Degrees now!! (2012)

    Nathan's VBS Video

    www.vertebralstapling.com

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