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Thread: Scoliosis Support Group

  1. #1
    Join Date
    Jul 2008
    Posts
    3

    Scoliosis Support Group

    Hello Everyone!

    I will be a Junior in college this Fall. I have scoliosis and wore a back brace for 6 years. I have decided to start a support group in Ann Arbor, Michigan. I am hoping to hold the first meeting in late September. I really want to create a place where people of all ages can gather who all have one thing in common: Scoliosis. The first meeting will be very informal, basically a 'meet and greet' where we can talk about what each person wants to get out of the support group. Eventually I plan on having guest speakers and more structured and planned events. If anyone is in that area or knows of someone on the East side of Michigan that would benefit from a Scoliosis support group, please let me know. Sending me a personal message is great too! Even if you are too far away from Michigan, I would still love to hear your comments on what you would hope to get out of a support group, and any ideas you have for me. Thanks!

  2. #2
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,974
    Hi! That sounds like quite an undertaking, but a good idea! Best of luck with setting it up-- and with your college studies also. I don't live near there and there are no support groups nearby, so I don't really have any suggestions for you: Maybe some others will. ) Susie
    66 and still heartbroken...
    2007 52 w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  3. #3
    Join Date
    Oct 2006
    Posts
    132
    I think it's a fantastic idea!!! I wish we were a wee bit closer!
    Becky
    Mom to DD (15) with S 48*+ curve
    Had her surgery March 9, 2009

  4. #4
    Join Date
    Sep 2006
    Posts
    84
    Quote Originally Posted by ScolioSupport View Post
    Hello Everyone!

    I will be a Junior in college this Fall. I have scoliosis and wore a back brace for 6 years. I have decided to start a support group in Ann Arbor, Michigan. I am hoping to hold the first meeting in late September. I really want to create a place where people of all ages can gather who all have one thing in common: Scoliosis. The first meeting will be very informal, basically a 'meet and greet' where we can talk about what each person wants to get out of the support group. Eventually I plan on having guest speakers and more structured and planned events. If anyone is in that area or knows of someone on the East side of Michigan that would benefit from a Scoliosis support group, please let me know. Sending me a personal message is great too! Even if you are too far away from Michigan, I would still love to hear your comments on what you would hope to get out of a support group, and any ideas you have for me. Thanks!
    Please visit. www. sosort.org. Next international meeting for this Scolosis Organization is in France.

  5. #5
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Hi ScolioSupport,

    I just want to commend you on this effort!! It's SO important for folks not to feel alone. Just the other day, someone asked if I knew of a support group in their state - and I gave them the closest group I knew of to them. But it would be great if there were more support groups.

    I hear from lots of families - and rest assured that if I ever talk to anyone in your neck of the woods I will pass along your information.

    If you like, send me an e-mail with your contact info and/or that of the group and I'll keep it handy.

    GOOD LUCK!!!
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  6. #6
    Join Date
    Jan 2008
    Location
    United States
    Posts
    127
    have fun and good luck with this! i will be praying for you and the success of the group!
    Valerie

    Age: 18
    Hi, my name is Valerie, but you can call me Val or V.
    I wore a Boston Brace from 2007-2010
    My curves were 30 and 31
    I now have only a single curve which stands at 35 degrees.
    I owe all of my blessings to The Lord!
    I am very thankful with where my spine is at right now.
    I want to meet some new people on this forum!
    Don't be shy...
    Feel free to message me if you would like to chat!

  7. #7
    Join Date
    Jul 2008
    Posts
    3

    Thank You

    I just wanted to say thanks for everyone's comments! I am still in the planning process but hope to hold my first support group meeting at the end of September. I will keep everyone posted on the specifics but in the mean time, if you are interested, please let me know!

    Thanks!

  8. #8
    Join Date
    Jul 2008
    Posts
    3

    First Scoliosis Support Group meeting

    Hi Everyone!

    I wanted to let you know that I will be holding my first scoliosis support group meeting in Ann Arbor, Michigan at the beginning of November. Please let me know if you are interested in attending and I will send you more specific information. Thanks!

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