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Thread: neurological

  1. #1
    Join Date
    May 2008
    Posts
    30

    neurological

    I'm not sure what section to post in now! We were ready to see the pediatric specialist,and they had to cancel so we were refereed to a local regular orthopedic Dr. He said she does not have idiopathic scoliosis,its neurological. What? So what does that mean! He said not only is there a 18 degree curve in the upper,the bottom of her spine is not right,something about oblique. Her curve is opposite of what you normally see in idiopathic scoliosis.
    He is not comfortable treating her,and said we need to see the pediatric orthopedics specialist,and see a neurologist,which we have already seen many times,but never since the scoliosis.
    She's never had an MRI of the spine which i hope is the next step.
    Just a quick background in case you can help and figure out what this all means. No telling when we will get an appointment with the specialist. Lindsey is 12,coordination issues,pecus, ex, sprengles,2 spina bifida occulta's, feet turn out,hypotonia,developmental delay and verbal apraxia. She also has a narrow palate,and currently wearing a palate expander.
    if any of this sounds familiar ,please let me know, What is neurological scoliosis,and what she we be pushing for,and looking out for? i though idiopathic means unknown,well this is unknown too! This Dr said he's sure everything ties in together,which i've always though but never heard.

    Jennie

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    Hi Jennie...

    I suspect the doctor meant neuromuscular scoliosis, which refers to a scoliosis that is caused by an underlying neurologic condition (e.g., spina bifida, CP, syringomyleia, etc).

    I think this type of scoliosis is often reversed when the underlying condition is corrected.

    Good luck.

    Regards,
    Linda

  3. #3
    Join Date
    Feb 2008
    Location
    Texas
    Posts
    96
    I think Linda could be right. My cousin also has scoliosis and hers was caused by her spina bifida.
    Jamie Age 29
    Mother to a 6 year old daughter & an 11 month old baby boy.

    2000 Curves - 28/40/32
    2008 Curves - 39/63/44
    Surgery Date - 3/25/08
    T4 - L1

    63 degrees corrected to 15 degrees !

  4. #4
    Join Date
    May 2008
    Posts
    30
    I'm sorry it took so long to write back.

    We are still waiting to see a pediatric orthopedics Dr at Miamis Children's hospital. We saw the neuro and i was told even if its neurological,its not like there's a pill thats going to make her all better,we just have to deal with orthopedics at this point,she said she needs an MRI of the spine for sure,but we have to wait until we go to the new Doctor.

    I don't understand how her scoliosis can reverse itself,even after fixing something,if there's something that can be fixed.

    Jennie

  5. #5
    Join Date
    Sep 2005
    Posts
    195
    Please read my PM.
    Emily's mom-11 1/2 years old
    28 degree scoliosis 9/04
    Chiari Malformation/SM decompressed 11/04
    17-24 degrees 11/04-6/07
    Wearing Spinecor Brace since June 07
    3/31/10- 29 degrees oob
    11/18/09 17 degrees in brace

  6. #6
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Quote Originally Posted by borngmama View Post
    Lindsey is 12,coordination issues,pecus, ex, sprengles,2 spina bifida occulta's, feet turn out,hypotonia,developmental delay and verbal apraxia. She also has a narrow palate,and currently wearing a palate expander.
    if any of this sounds familiar ,please let me know, What is neurological scoliosis,and what she we be pushing for,and looking out for? i though idiopathic means unknown,well this is unknown too! This Dr said he's sure everything ties in together,which i've always though but never heard.

    Jennie
    Hi. Based on what I could grasp today in our visit to the geneticist, I would ask about ruling out homocystinuria at this point. That is a metabolic syndrome and can be ruled in or out with a simple blood test.

    Good luck.

    Good luck.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

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