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Thread: ALS (Lou Gehrigs)

  1. #16
    Join Date
    Mar 2010
    Posts
    2,755
    Oh, and my dad never received any therapy. He had hospice to help my step-mom with his day to day care and that's it. I think his quality of life could have been better if he did more than sit helplessly in a chair all day.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  2. #17
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    Terminal diseases are a whole different program. Neuromuscular diseases are devastating, and to be denied or shunned by the system is deplorable, its not the American way. Years ago.....Medicare wouldn’t supply a wheelchair, MDA wouldn’t either....we were on our own. Medicare did pay the hospital a HUGE amount of money for a 2 week analysis....this money would have been better spent on neuro research which could have benefitted all of us. Paying into a system your whole life to have funds directed and “tapped” in the wrong manner, bleeding the system, is a criminal act.

    People that are in need of assistance regardless of disorder, shouldn’t have to wrangle with a system when emotions cripple the thought process.

    http://www.medicareadvocacy.org/hidd...ment-standard/
    Contact info
    http://www.medicareadvocacy.org/about/contact-us-2/

    Does the Jimmo Settlement Agreement only apply to people with certain diseases, diagnoses, or conditions?
    A: No. The Settlement is not limited to particular conditions or diseases. It applies to anyone who requires silled services to maintain or slow deterioration regardless of the underlying illness, disability or injury.



    Will the Jimmo Settement allow people to get coverage for physical therapy at home?

    A. Yes. Physical therapy, speech and occupational therapies are covered service under the Medicare home health benefit. If the individual meets the other Medicare home health qualifying criteria, the Jimmo Settlement makes it clear that "maintenance therapy” can be covered under the home health benefit if a qualified therapist is required to ensure the care is safe and effective.



    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #18
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    I should have started a new thread because this applies to ALL of us. And by the way, this is NOW! So, if you need help now, you can get help.

    I wouldn’t have found or known this info if it wasn’t for Steven and Barbara Byer and ALS worldwide. Thanks guys....
    http://www.alsworldwide.org/


    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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