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Thread: Migranes in 13 year old??

  1. #1
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    Apr 2007
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    Unhappy Migranes in 13 year old??

    Gidday Folks! Back again for more online advice. No! Not the doggy!!!!

    Anyone like to throw some suggestions my way on the following.....

    Elysia just scared the beegeezers out of me! I suppose every cough, sneeze, splutter, cry of wolf, is going to do that for a while, till this surgery is a distant memory!

    I've just been reading up on line and have discovered she getting all the signs of the "classic migraine". She had her first 2 days before her surgery and now it's happened all over again!!!! She gets the Aura of loosing her periphial (sp?) vision and then bang - it's headache, nausea, threw up twice, couldn't move the right side of her body (bloody hell, that would scare any new scoli surgery recovering patient) and couldn't speak properly. I was rubbing, stroking, icepaking, puffing pillows, rocking - you name it - I was 10 minutes away from calling an ambulance as "mother panic" was setting in.

    The only thing that held me back was that it happened like I said 2 days before surgery AND the fact that she threw up and felt slightly better after the first (OMG - do you know what happens when a recovering spinal surgery kid can't bend over the loo to throw up??? - Do you really want to know or have you been there done that!!!!!!) that's right folks - pavement pizza!!! This parenting is just getting better and better!!!! I'm having soooo much fun at the moment!!!!

    What do you think of my theory about toooo much radiation for Scoliosis patients??? We had 2 x-rays today to take to our appointment Monday. Maybe?? Coincidence?? In the last 8 weeks she's had a total of 7 x-ray exposures. That's a dam lot isn't it!!!!! Could this be causing the onset of Migraines???

    What about foods?? Easter has just been so lots of choc around??? But why now - it's always been there, no sudden change in diet.

    Gotta go - The revenge of "Chucky" is calling me!

    Del
    Elysia 16 in Feb 2010
    Sydney - Australia
    Feb 2008 Fused T5-L1 and 5 ribs removed.
    Dec 2009 - Crankshafting
    Dec 10 - Revision surgery...3 vertebrae taken down, hooks removed, at T11-L1 - screws inserted, fusion extended down to
    L3 using Pedicle screws, some rib removed to try to derotate. Praying for things to settle.

  2. #2
    Join Date
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    near Philadelphia
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    Del, my 12-year-old daughter started getting migraines about a year ago and we were told it was due to hormonal changes. (She doesn't have scoliosis.) Since many women experience changes in their menstrual cycles after surgery, perhaps hormonal upheaval/changes are triggering Elysia's migraines? Just a layman's theory. I really doubt that the x-rays have anything to do with them. Anyway, I hope they go away !!!!
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  3. #3
    Join Date
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    ny
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    Hi Del,

    Before I even read Singer's response, my first thought was "she's 13 - perhaps it's hormonal".

    I actually know of a few kids (without scoli) who developed migranes and related symptoms around the onset of puberty and the parents were told it was hormone related.

    I also don't think the x-rays are the cause - although I, too, worry about all the radiation exposure.

    Good luck and please keep us posted.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  4. #4
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    I agree it could be hormonal. My migraines are like clockwork, sometime in the three days prior to the onset of my period ...BANG. Unfortunately it took me years to make the hormonal connection. I also have other triggers such as bright lights, strobe lights. By the way my migraines started as a young teen. If they continue you might want to record them to see if there is a pattern.
    Looking forward to menopause.
    Ramona
    mom of Patrick, age 15 at time of surgery
    diagnosed July 2006 curves T58 L 38

    Nov. 2006 curves T72 L38
    also lordoscoliosis

    feb.2007 curves T79 L43

    Surgery May 16 2007
    fused T4 to L1

  5. #5
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    Sorry, but I have to agree with the hormonal theory. Braydon has had A LOT of xrays in his life. It could be radiation related, but I think that's a far stretched theory. Braydon started with migraines at age 11.5yrs old. Obviously hormonal related for him. He could FEEL the rages (hormonal) and knew it was happening, but couldn't control it. He's been on maintenance meds for over a year now, and doing very well with it. No major migraine since May 07.

    Being a teenager is hard without the "extras" our kids have. Scoliosis surgery is HUGE. Maybe the post-traumatic stress of going through surgery triggered the migraines? Could be, but you may never know WHY she's having them. Getting them under control so she doesn't have severe breakthroughs in the future is key. Good luck.
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

  6. #6
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    Quote Originally Posted by Aussiemum
    Gotta go - The revenge of "Chucky" is calling me!

    Del
    LOL, is that Elysia you're talking about?

    I would have to agree with everyone, I get migraines (not nearly as severe as Elysia's) 2 days before the onset of my period. They vary in intensity but almost always go away the day of my period. They were much worse when I was in my 20's and like Ramona, took me many years to connect the dots.

    Sheena threw up in the hospital 4 days after surgery, it was horrible. She was in excrutiating pain all night long from pulling her back.

  7. #7
    Join Date
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    Location
    Boston, MA
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    I agree with the other ladies - I got awful migraines for the couple of years before I started my period (around age 9 - 11) . Luckily now I only get them about once a year... Excedrin migraine is supposed to work very well

    I threw up in the hospital... not fun. Colorful though...
    2000 34*L/39*T
    2007 44*L/53*T

    12.3.07 Posterior Spinal Fusion T4-T12
    (initially planned T4-L1)
    12.18.07 11*L/10*T

    23 years old

  8. #8
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    Del:

    I get migraines the day before my period, right afterwards for a couple of days and mid-cycle (probably when I ovulate). This has gone on for a number of years. Some people have suggested Evening Primrose Oil helps with this but I have never tried it - I don't vomit with my migraines or I probably would have tried it!

    In your post you say Elysia couldn't move the right side of her body and couldn't speak properly - these don't sound like a symptoms of migraine - perhaps I am wrong though - perhaps others could comment on this?

    Ruth
    Ruth, 50 years old (s-shaped 30 degree scoliosis) with degenerative disc disease, married to Mike. Mother to two children - Son 18 and daughter 14. Both have idiopathic scoliosis. Son (T38, L29) has not needed surgery to date. Daughter (March 08 - T62, L63).

  9. #9
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    No Ruth, I had a look online regarding Migraines and that's what it said, trouble speaking and partial paralysis down one side of body. she could still move a little and her fingers, her middle finger she couldn't get to bend. She could talk a little but was crying saying I can't remember the words and not relay what she wanted from me. It's EXACTLY what was listed as the signs of a "Classis" as compared to "Common" type migraine.

    She doesn't have her periods yet - so maybe as everyone is saying it's hormonal. You can imagine this ontop of the recent surgery how my brain was working. I guess it's all just bad timing.

    thanks for the input - we have a GP appointment today and will discuss it with them.

    Cheers
    Del
    Elysia 16 in Feb 2010
    Sydney - Australia
    Feb 2008 Fused T5-L1 and 5 ribs removed.
    Dec 2009 - Crankshafting
    Dec 10 - Revision surgery...3 vertebrae taken down, hooks removed, at T11-L1 - screws inserted, fusion extended down to
    L3 using Pedicle screws, some rib removed to try to derotate. Praying for things to settle.

  10. #10
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    Utah
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    I also agree that one-side paralysis can be a sign of migraine. My husband has this kind of migraine (thankfully none since Dec. 05). They are terrible! He first gets a stabbing pain in his jaw and groin (always right side for him) then the right side of his face goes numb. Then, his throat feels like its swelling, but its just numb on one side, so odd sensation. He loses his gag reflex completely (gotta make sure he doesn't choke). Then, he loses function and feeling in his right arm and leg. By this time, panic attacks have set in and he is hyperventilating. He's been hospitalized for this 4 times. Each time they admitted him because of stroke-like symptoms (40+yr old man = stroke). Fortunately he finally found a good combination of maintenance medication to stop (we hope for good!) episodes. Paralysis is very real with migraines.
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

  11. #11
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    Wow - I had no idea migraine could cause these kind of symptoms. How awful.
    Ruth
    Ruth, 50 years old (s-shaped 30 degree scoliosis) with degenerative disc disease, married to Mike. Mother to two children - Son 18 and daughter 14. Both have idiopathic scoliosis. Son (T38, L29) has not needed surgery to date. Daughter (March 08 - T62, L63).

  12. #12
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    Location
    Bloomfield Hills, Michigan
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    I'll just add my experience to the hormone mix. Years ago when I was on birth control pills, I was almost guaranteed to have a 3-day "classic" migraine with my period, the visual aura appearing 20 minutes beforehand. Mine were usually one-sided, and I once temporarily lost vision in one eye. They stopped as soon as I stopped the pill.

    Carmell, I'm curious - not to second-guess your husband's doctors, but was he diagnosed with migraine or did they ever mention cluster headache? One of my sisters suffers from them even though they are more prevalent among men. Your husband's symptoms sound just like my sister's. It's been said cluster headaches are 100 times worse than migraines, which is almost incomprehensible to me, but I have seen my sister in the middle of it and it's devastating. The headache doesn't last long, but can repeat several times a day and sometimes months at a time, hence the term "cluster." Then as in my sister's case, they can disappear for months or years. As I said, just curious.
    FeliciaFeliciaFelicia
    10/24/00 posterior fusion T4-L4 at age 57
    8/5/05 posterior surgery for spinal stenosis at L4-L5; laminectomy and fusion
    5/14/07 posterior revision with fusion to sacrum
    2/11/08 anterior discectomy L5-S1, and reinforcement of fusion with plate attached to L5-S1
    3/9/2011 and 3/11/2011 revision surgery with Dr. Lenke, St. Louis - complete revision and fusion with instrumentation from T1 to sacrum, one lumbar osteotomy.

  13. #13
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    Hi Felicia,

    Thanks for asking. My hubby is not normal (did I say that? well...). He has some odd things going on, no one thing that is devastating, but, frustrating for him mentally. When he gets emotionally and mentally upset/stressed/can't calm himself, he tends to have an episode like I mentioned. They seem to be triggered by psychological events more than anything physical. He also has been diagnosed with MS. He has some odd spots on his brain, but they aren't typical MS spots. He has asymmetric optic nerves, reduced nerve sensation on one side of his body, etc. An MRI in Aug. 2005 showed a cervical lesion, which pushed him off the fence into the MS category (after 10 years of "maybe" MS). A followup MRI in May 2006 showed no cervical lesion. They went back to the Aug 05 scan and saw the lesion in two different planes, so it wasn't just artifact. They aren't UNdiagnosing him, but who knows for sure...

    That said, he sees a headache specialist and an MS specialist at the MS clinic. The headache specialist diagnosed the migraines before the MS was confirmed. Since he had the MS diagnosis and treatment, he has only had ONE migraine episode serious enough for hospitalization. He has had a couple of episodes where he feels them coming on, but we now know how to treat it before its a full-blown migraine.

    I have not heard of, or researched, cluster headaches in his specific situation. Something to bring up at his next appointment, for sure. Interesting...
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

  14. #14
    Join Date
    Jan 2007
    Location
    Ontario, Canada
    Posts
    140
    Felicia,
    I also years ago suffered immensely while on the pill, migraine at least 5 days out of 7 if not more, for many months. I stopped the pill, no migraine the next day and didn't have one for several months. Also during pregnancy/nursing I never once had a migraine. I normally suffer migraines 2-3 times a month.
    Ramona
    mom of Patrick, age 15 at time of surgery
    diagnosed July 2006 curves T58 L 38

    Nov. 2006 curves T72 L38
    also lordoscoliosis

    feb.2007 curves T79 L43

    Surgery May 16 2007
    fused T4 to L1

  15. #15
    Join Date
    Apr 2007
    Location
    Sydney - Australia
    Posts
    166
    Thanks everyone for the input - Yes "Chucky" I was referring to was Elysia! LOL.

    Saw the GP yesterday and basically nothing she can suggest except Aspirin! Luckily I had read on here that aspirin can interfere with the fusion process - so I told that to the Dr and THEN she agreed with me. Elysia finally started feeling better by last night and the Dr asked us to keep a diary to see if it's food related. So will see what happens.

    Carmell, just relating to your husband regarding the weird "spots" showing on his brain scan. My Dad was ill with a multitude of things going wrong for years until finally he was diagnosed with "Lewy Body Dementia" The Lewy body referring to the "spots" on his brain. It causes similar things that you mentioned with your husband. It's sort of a combination of Parkinson (without the shakes) and Alzheimers (best way I can describe it). Maybe worth a "throw out there" to the Dr's next time you see them.

    Thanks
    Del
    Elysia 16 in Feb 2010
    Sydney - Australia
    Feb 2008 Fused T5-L1 and 5 ribs removed.
    Dec 2009 - Crankshafting
    Dec 10 - Revision surgery...3 vertebrae taken down, hooks removed, at T11-L1 - screws inserted, fusion extended down to
    L3 using Pedicle screws, some rib removed to try to derotate. Praying for things to settle.

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