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Thread: a regression- too good to be true?

  1. #16
    Join Date
    Sep 2008
    Posts
    14

    Regression of Curve

    Hi Abbysmom,
    Thanks for inquiring. The pediatric ortho surgeon wanted to see Emma in 1 year following her last appt (and the X-rays that showed her lessening curve). So that's our plan. I have stopped worrying about it. Initially, I think you are so frantic and reading so much, that it can be overwhelming. But ultimately I know that God is in control and whatever storms come, He will be with my family. I wish you and your family the best!
    Sally

  2. #17
    Join Date
    Feb 2008
    Posts
    12

    a new update

    Hi all- Just wanted to give an update. Abby had her first appt. with a new ortho closer to home yesterday (we decided not to visit the hospital since she will not be requiring xrays). After a visual check, the doc says she is still scoliosis-free! She will have another xray when she starts the dreaded adolescent growth spurt, but will only go back for visual checks every six months until then. Also, I wanted to mention that the doctor told her interns that Abby was "one of those kids who just outgrow it". She was also of the opinion that Abby's curve may not have been "real". I do not agree with her, having watched its' steady progression. She maintains that even experienced technicians can only do so much to keep young children still during an xray. She actually said to me "we'll know if the curve was real if it starts to progress during puberty". Thanks for some more sleepless nights. I'll update again in July after Abby's next appt.

  3. #18
    Join Date
    Sep 2008
    Posts
    14

    Good news

    That's wonderful news!!!

  4. #19
    Join Date
    Oct 2008
    Posts
    299
    That's great news, Abbysmom. Enjoy it! You, too Cakebaker, I saw your post in the children's section
    mamandcrm

    G diagnosed 6/08 at almost 7 with 25*
    Providence night brace, increased to 35*
    Rigo-Cheneau brace full-time 12/08-4/10
    14* at 10/09 OOB x-ray
    11* at 4/10 OOB x-ray
    Wearing R-C part-time since 4/10
    latest OOB xray 5/14 13*
    currently going on 13 yrs old

    I no longer participate in this forum though I will update signature from time to time with status

  5. #20
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    More great news!

    Whooooo hooooo - so happy for you!
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  6. #21
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791
    That is wonderful news!!

    You are so right!

    God is so in control of our lives if only we let him be

    Melissa

  7. #22
    Join Date
    Aug 2007
    Posts
    388
    Glad to hear more good news! Thanks for keeping us updated-with your scoli free life, it would be easy to forget about us yet it's so important for us to hear about all different types of developments where these curves are concerned. so thanks - i love hearing good news!
    daughter, 12, diagnosed 8/07 with 19T/13L
    -Braced in spinecor 10/07 - 8/12 with excellent in brace correction and stable/slightly decreased out of brace curves.
    -Introduced Providence brace as adjunct at night in 11/2011 in anticipation of growth spurt. Curves still stable.
    -Currently in Boston Brace. Growth spurt is here and curves (and rotation) have increased to 23T/17L

  8. #23
    Join Date
    Feb 2008
    Posts
    12

    quick update before the new appt.

    Hi all- just wanted to update that Abby is now 10 and seems to have entered the dreaded growth spurt. She looks the same to me, but is now symptomatic with upper back pain. We go to the doc Monday, 2/14 and I will update then...I am definitely losing sleep again. Wish us luck.

  9. #24
    Join Date
    Oct 2008
    Posts
    299

    Good Luck

    I hope Abby's recheck goes well for you! Hard not worry, I know. Pain is not often associated with scoliosis, particularly with young patients with small or moderate curves, so try not to convince yourself that it means something bad for her curve!
    mamandcrm

    G diagnosed 6/08 at almost 7 with 25*
    Providence night brace, increased to 35*
    Rigo-Cheneau brace full-time 12/08-4/10
    14* at 10/09 OOB x-ray
    11* at 4/10 OOB x-ray
    Wearing R-C part-time since 4/10
    latest OOB xray 5/14 13*
    currently going on 13 yrs old

    I no longer participate in this forum though I will update signature from time to time with status

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