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  • #16
    You people just posted 6 posts while I was writing my little one!

    Nevermind ;-).

    I'm still trying the pillow. So there - LOL!
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op ±53°, Post-op < 20°
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

    Comment


    • #17
      Originally posted by Aussiemum
      Hi Elaine,

      Elysia is two weeks post-op and if I could trust the kids at school not to bump or push her or touch her back then I feel she could return to school for 1/2 days. There is no way I will return her though until we see our Surgeon on 31st March for the all clear with the fusion. I personally don't think it's worth the risk - so long as they are happy to keep up with the majority of the school work at home and you can get the time off work to care for them (and tutor - ahhhh teachers should be paid more! We get zero home help here in Australia from the schools so it has to be the parents).

      Also although not in much pain at all - Yesterday Elysia wanted to go shopping for her B'day - after 30 minutes she had to sit down and have a rest - after another 30 minutes she said "Let's go". That's a big thing for a girl who just "LOVES SHOPPING". I carried the pillow around for her in bag and walked behind so no-one would bump or touch her back!!! Maybe I should have walked in front with a basket of rose petals that I scattered on the ground for her to walk on as she paraded through the stores! Might as well as she's getting treated like a princess!!!! One of her friends who came for dinner last night brought her a Tiara as a present!!!! Oh well, what they go through - they deserve to be treated like Princesses for awhile (only awhile - don't get any ideas kid!)


      xx
      Del
      Hi Aussiemom,

      I too was hysterical laughing about the rose petals. We have been out and about a few times since my daughter's surgery and it is so true. I have been following her like a bodyguard...scoping out the people who look like they might be careless and bump into her and altering our route. I even gave someone the evil eye when he didn't hold the door open for her!! And yes, I too carry the pillow around. I even call her reclining chair that she is most comfortable in, "the throne". Good to see that she is recovering so well. You must be so pleased!
      Samsmom
      Mom to Samantha, Age 17

      64 Degree Thoracic Curve
      42 Degree Lumbar Curve
      Fused T-4 to L-2
      Yale New Haven
      2/5/08

      Comment


      • #18
        No fair, y'all ... I want rose petals and a bodyguard! LOL ;-)
        Fusion is NOT the end of the world.
        AIDS Walk Houston 2008 5K @ 33 days post op!


        41, dx'd JIS & Boston braced @ 10
        Pre-op ±53°, Post-op < 20°
        Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


        VIEW MY X-RAYS
        EMAIL ME

        Comment


        • #19
          Sharon - thanks that is so very sweet of you. I'll see how I go here in Aus and if I can't track it down I'll get back to you.

          Pam - You'll get your roses and bodyguard eventually when you publish that book and they're holding back your fan base at your book signing!!!!!

          Elaine - Sorry if your initial thread has a lot of raving's in it - but as you can see this forum is what keeps everyone sane both before and after surgery. It is the most wonderful group of people you could ever meet and everyone will always be there to support and offer any advice or suggestions that they can throughout your daughter's surgery. It is such a serious thing to happen to anyone or their child and you have to keep your sense of humour.
          Maybe one day we should hold a Scoliosis Forum convention - how cool would that be for people to come from all over the world and meet up??

          Cheers
          Del
          xx
          Elysia 16 in Feb 2010
          Sydney - Australia
          Feb 2008 Fused T5-L1 and 5 ribs removed.
          Dec 2009 - Crankshafting
          Dec 10 - Revision surgery...3 vertebrae taken down, hooks removed, at T11-L1 - screws inserted, fusion extended down to
          L3 using Pedicle screws, some rib removed to try to derotate. Praying for things to settle.

          Comment


          • #20
            Road Trip!!!!!!!!!!

            Originally posted by Aussiemum
            Sharon - thanks that is so very sweet of you. I'll see how I go here in Aus and if I can't track it down I'll get back to you.

            Pam - You'll get your roses and bodyguard eventually when you publish that book and they're holding back your fan base at your book signing!!!!!

            Elaine - Sorry if your initial thread has a lot of raving's in it - but as you can see this forum is what keeps everyone sane both before and after surgery. It is the most wonderful group of people you could ever meet and everyone will always be there to support and offer any advice or suggestions that they can throughout your daughter's surgery. It is such a serious thing to happen to anyone or their child and you have to keep your sense of humour.
            Maybe one day we should hold a Scoliosis Forum convention - how cool would that be for people to come from all over the world and meet up??

            Cheers
            Del
            xx
            Del,
            I'm all in for the Convention! It would be sooooooo amazing to be able to put faces with the names of the beautiful people here. But I do have a request: can we come stay at your house? I would LOVE to see Sydney and quite honestly, would any of you REALLY want to come to Oklahoma? Yea, didn't think so!
            Becky, 46 years old
            Diagnosed at 13 with mild scoliosis
            Ignored until 448/07
            Left thoracic 49* T5-T11
            Right thorocolumbar 60* T11-L4
            Surgery Monday, June 9, 2008 Oklahoma Spine Hospital
            Fused T-10 to L-5
            14 titanium pedicle screws
            Corrected to approx. 10* YEA!!!
            Email

            Comment


            • #21
              must ... resist ...

              Becky ... started it ... but ...

              MUST ... fight ...

              urge ... to launch into ...

              Oklahoma ... jokes ...

              agggggggghhhhh ...

              not nice ...

              FUNNY ... but ...

              not nice ...

              (giggle!)
              Fusion is NOT the end of the world.
              AIDS Walk Houston 2008 5K @ 33 days post op!


              41, dx'd JIS & Boston braced @ 10
              Pre-op ±53°, Post-op < 20°
              Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


              VIEW MY X-RAYS
              EMAIL ME

              Comment


              • #22
                Hmmmm - not a problem Becky - but.... I just checked the members listing and there is 7,895 members - no probs I do have three Loo's! That calculates out at 10.94 seconds each, once a day - How fast can you pee?? LOL!

                xx
                Elysia 16 in Feb 2010
                Sydney - Australia
                Feb 2008 Fused T5-L1 and 5 ribs removed.
                Dec 2009 - Crankshafting
                Dec 10 - Revision surgery...3 vertebrae taken down, hooks removed, at T11-L1 - screws inserted, fusion extended down to
                L3 using Pedicle screws, some rib removed to try to derotate. Praying for things to settle.

                Comment


                • #23
                  Rebuttal

                  Pam, I'm going to deal with you first! When I was growing up, my older, yet shorter sister, was ALWAYS saying "Becky started it!!!!" so I just want to say thanks for the litle trip down memory lane! LOL! As as far as Okie jokes, weeeeelllllllllll, just don't get me started on Texas! And by the way, it's an absolutely mystery to me why every time Oklahoma makes national news for something, the networks always seem to pick the people with 3 teeth in their head to put on national TV. What's up with that?

                  And Del, ummmm, maybe I'll just stay in a hotel close by. Not that I don't appreciate the hospitality and all, but I typically need a little more than 10.94 seconds once a day. By the way, I totally impressed with your math skills!
                  Becky, 46 years old
                  Diagnosed at 13 with mild scoliosis
                  Ignored until 448/07
                  Left thoracic 49* T5-T11
                  Right thorocolumbar 60* T11-L4
                  Surgery Monday, June 9, 2008 Oklahoma Spine Hospital
                  Fused T-10 to L-5
                  14 titanium pedicle screws
                  Corrected to approx. 10* YEA!!!
                  Email

                  Comment


                  • #24
                    It's getting close...

                    Hello Everyone,

                    Oh my goodness, you guys are cracking me up! This is a good thing because Kim's surgery is less than two weeks away and everyday I feel myself getting more stressed so I can use the smiles. I like the "princess" comments - Kim's room is decorated in the Disney princess theme.

                    Her birthday is this Sunday, March 9th and she'll be 16 years old. What a crappy gift, huh? "How about some metal rods and screws for a belated birthday present? These things costs ten of thousands of dollars so ya know I love ya baby!!".

                    Thanks for all of your support.
                    ca-native (daughter had surgery)

                    Comment


                    • #25
                      Elaine,

                      We're all rooting for Kim to do great. It's going to be tough on all of you. But you'll all get through it. You're not alone.
                      Melissa
                      From Bucks County, Pa., USA

                      Mom to Matthew,19, Jessica, 17, and Nicole, 14
                      Nicole had surgery with Dr. Dormans on 9/12/07 at Children's Hospital of Phila. She is fused T-2 - L-3

                      Comment


                      • #26
                        Originally posted by ca-native
                        Hello Everyone,
                        Her birthday is this Sunday, March 9th and she'll be 16 years old. What a crappy gift, huh? "How about some metal rods and screws for a belated birthday present? These things costs ten of thousands of dollars so ya know I love ya baby!!".

                        Thanks for all of your support.
                        OK, I know this is old but I laughed when I read this. I know how you felt as I'm feeling the same way. DD's birthday is March 10 and they are talking surgery in February. She was so excited because it was going to be the first birthday that she didn't have a gymnastics or cheerleading meet to attend. Instead she now gets recovery from surgery for her 15th birthday!
                        Becky
                        Mom to DD (15) with S 48*+ curve
                        Had her surgery March 9, 2009

                        Comment


                        • #27
                          I had my surgery at the beginning of summer, but if I had have been in school, I would have been back 4-5 weeks after, but not longer.
                          I'm only 7 weeks post-op and leave for vacation tomorrow and have to drive two days to get there.
                          I NEVER thought I'd be able to go on vacation but I'm feeling great!
                          17 years old - Female - Canada
                          Had fusion surgery June 26th, 2008
                          Feel free to ask me ANY questions about my experience!

                          Comment


                          • #28
                            Scared mom

                            We are now trying to gauge the recovery time also. My 17 year old has a curve of 58, but has an autonomic illness called dysautonomia and we have ben putting off her surgery hoping she would get stronger. As it stands now she only has the stamina to go to school 2 to 3 days a week. She has been totally homebound until last January, 2008. We are so afraid this surgery will knock her back down again.
                            It seems many of the children I have read about here bounce back rather fast. Once the kids are back in school, do they continue to heal well and just get back to normal without complications? What about the sitting all day and carrying heavy backpacks?
                            I am a divorced mom and must admit I am so scared for my daughter, does any one have words of reassurance or comfort? also, any things I can have ready to help her through recovery?

                            Comment


                            • #29
                              Originally posted by Mary jane View Post
                              We are now trying to gauge the recovery time also. My 17 year old has a curve of 58, but has an autonomic illness called dysautonomia and we have ben putting off her surgery hoping she would get stronger. As it stands now she only has the stamina to go to school 2 to 3 days a week. She has been totally homebound until last January, 2008. We are so afraid this surgery will knock her back down again.
                              It seems many of the children I have read about here bounce back rather fast. Once the kids are back in school, do they continue to heal well and just get back to normal without complications? What about the sitting all day and carrying heavy backpacks?
                              I am a divorced mom and must admit I am so scared for my daughter, does any one have words of reassurance or comfort? also, any things I can have ready to help her through recovery?
                              While it's fair to say most kids recover fairly quickly, a relative few develop some complication (wound infection, etc.).

                              What I think might be an issue and which your surgeon should address is the need to walk during recovery. Walking seemed to be very important in my daughter's recovery. By the way, my daughter also had a 58* curve at surgery. It was moving several degrees a month at that point, too fast for any bracing, and the surgery happened none too soon.

                              It is likely no brace would have helped anyway because she likely has some connective tissue disorder. Her twin, who likely has the same disorder, is in a brace that is failing and will likely be told she needs surgery at her next exam in the spring.

                              So bottom line is you need to address the walking issue, if that is an issue, in my opinion. The recovery will go quicker the more she can walk as I understand these things.

                              Good luck.
                              Sharon, mother of identical twin girls with scoliosis

                              No island of sanity.

                              Question: What do you call alternative medicine that works?
                              Answer: Medicine


                              "We are all African."

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