Ian is totally adorable & you are probably very stressed worrying about him, especially since you're pregnant & hormonal. You can find lots of support on this forum so don't hesitate to ask any questions & let people know how you're doing. I heard of a new VEPTR support forum (I know someone else will tell you about it) if Ian ends up needing that surgery.
My son has been able to live a very "normal" life with congenital scoliosis -except for the medical appointments, his brace from ages 8-11 & his recent surgery. We've known about his hemivertebrae since birth but he wasn't diagnosed until he was about 5 yrs old. If you have any questions, I'd be happy to try to answer them.
Good luck with everything!
Mother of Alexander & Zachary:
Alex is 16 years old and in the 11th grade. He has congenital scoliosis due to a hemivertebrae at T10. Wore a TLSO brace for 3 1/2 years. Pre-op curves were T45 & L65; curves post-op are approx. T31 & L34. Had a posterior spinal fusion from T8 to L3 on 7/12/07 at age 12. Doing great now in so many ways, but still working on improving posture.
Zach is 13 years old and very energetic.