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Hello all,
I am a new member to the forum and find the sharing of information awesome. My daughter Kayleigh (15) has recently been diagnosed with severe Scoliosis with a thoracic curve of 72 degrees. The severity came as quite a shock to her mother and I since the doctors in previous visits (physicals and such) said we will "keep an eye on it, we might want to x-ray it" but never took it further. I was uneducated about the condition and had no idea it would turn into this. My wife and I feel awful and I guess we should for not being more proactive. We will have to live with that. Meanwhile we are trying to do the best thing for our daughter. The Orthopedist recommends surgery and we meet with a surgeon this friday (Dr. Kessler) and another on monday (Dr. Bernstein at Cedars-Sinai in LA). I spoke with Dr. Deutchman at Spinecor and he recommended that we visit him in San Fran at the end of September. He suggested that if the curve is stable, there is no rush to do the surgery and that the brace may help provide some reduction (5-10 degrees) until then. We are hoping to at least push off the surgery until the summer of 08. My daughter does not want to miss so much school as to be held back and she is in no pain. I believe she is still growing (does this mean curve progression??) I don't know what her Risser number is yet. Will find out on Friday. Her MRI came back (As i interpret the report) good, no neurological damage (spinal cord normal), only the scoliosis
Anybody have any experience with the spinecor at such a large curve (Dr. Deutchman said they have people in the brace with worse curves). Is there any hope to bring it down to where surgery is not required??? (wishful thinking?)
We will see what the surgeons say.
Thanks
Stephen
I am a new member to the forum and find the sharing of information awesome. My daughter Kayleigh (15) has recently been diagnosed with severe Scoliosis with a thoracic curve of 72 degrees. The severity came as quite a shock to her mother and I since the doctors in previous visits (physicals and such) said we will "keep an eye on it, we might want to x-ray it" but never took it further. I was uneducated about the condition and had no idea it would turn into this. My wife and I feel awful and I guess we should for not being more proactive. We will have to live with that. Meanwhile we are trying to do the best thing for our daughter. The Orthopedist recommends surgery and we meet with a surgeon this friday (Dr. Kessler) and another on monday (Dr. Bernstein at Cedars-Sinai in LA). I spoke with Dr. Deutchman at Spinecor and he recommended that we visit him in San Fran at the end of September. He suggested that if the curve is stable, there is no rush to do the surgery and that the brace may help provide some reduction (5-10 degrees) until then. We are hoping to at least push off the surgery until the summer of 08. My daughter does not want to miss so much school as to be held back and she is in no pain. I believe she is still growing (does this mean curve progression??) I don't know what her Risser number is yet. Will find out on Friday. Her MRI came back (As i interpret the report) good, no neurological damage (spinal cord normal), only the scoliosis
Anybody have any experience with the spinecor at such a large curve (Dr. Deutchman said they have people in the brace with worse curves). Is there any hope to bring it down to where surgery is not required??? (wishful thinking?)
We will see what the surgeons say.
Thanks
Stephen
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