Okay, well all has been going good until recently. I have developed a burning/aching pain on the left side of my upperback around the area of one of the screws. Well, I am a fairly active person. (i'm in the military still) I don't know if I've aggrevated the muscles or what. I have also noticed that when I stand I am now leaning to the right with my left arm not hanging to my side the right way. It sort of sticks out kinda funny. (noticeably different from my right arm)! That and when I move my shoulders back it feels as if my shoulder blade is rubbing on one of the screws and it's not only uncomfortable, but painful as well. Before the surgery 2 years ago I was leaning to the left! Is this a sign of the curve progressing or something worse!?!! (Where I'm at I don't readily have access to X-rays or MRI's for that matter) I had a PT appointment and the doctor held my arms and pulled up on my back! After he made the top part 'crack' it has hurt since then and it has begun to hurt worse. It may be at least 7 months before I can get to a doctor back stateside, but even then I'm only there temporarily and then I get sent overseas again. Please help me out with this. If anyone has had this before please share your insight and pain relief remedies with me. I'm desperate at this point. It hurts!
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I would visit a stateside doc with experience dealing with prior fusions. You should not be tilting.
Before my revision surgery I tilted and my handle on another forum was "leaningtower".Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction
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I can sympathize completely. Heating pads can help with pain. Try putting a pillow under your knees when you are laying on your back. That can help sometimes. If you sleep on your side, put a pillow between your legs. I got those two tips from my physical therapist. I'm sure other members can give you more tips for dealing with the pain.
Now, I have a few questions. What lead to the doctor cracking your back? Is medical leave possible in your situation? I realize you are in the military, and am not sure how that works. Idealy, you should see your surgeon. He/ she would start out by taking an x-ray to determine if the problem was muscular or if something else was going on. However, I know this may not be possible for a few months. Not trying to scare you, just trying to be helpful. Is there a different doctor you can see? Good Luck and hang in there!Audra
Diagnosed at 12
42T, 52L presurgery
surgery in 1994: fused form T1-L2, curves corrected to 25T and 25L
infection leading to surgery and 10 day hospital stay w/ strong antibiotics 3 weeks later
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The PT thought it would 'alleviate' the pain I am having in that area. Unfortunately enough my surgeon is civilian and in Washington, D.C. while I am currently in South Korea. :/ I won't be able to go home until at least 7 months. There are no doctors here that have dealt with an issue such as this so I have to wait until I go stateside unless they send me to Japan (which I doubt, b/c there are people here with torn ACL's and messed up shoulders that they won't send to Japan to get looked at because of the cost) Although I saw one doctor who stated he scrubbed in on a few cases in his private practice, but in the same encounter was trying to force me to slouch (hello! Rods are in my back, I will never be able to slouch again!) I'll try the heat packs. Hopefully my husband will send me my TENS unit so I can use it over here. (I was doing good, so I didn't think I needed it anymore)25 yr old female =^_^=
Thoracic curve 48 degrees (with kyphosis)
Lumbar curve 23 degrees
surgery from t5-l1 25 July 2005
Two rods and 16 screws later . . . 0 degrees YAY!
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slouch...yeah, right Sorry to here its unlikely to be sent home or to Japan. Hope the TENS helps!Audra
Diagnosed at 12
42T, 52L presurgery
surgery in 1994: fused form T1-L2, curves corrected to 25T and 25L
infection leading to surgery and 10 day hospital stay w/ strong antibiotics 3 weeks later
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[QUOTE=itsjustme]Okay, well all has been going good until recently. I have developed a burning/aching pain on the left side of my upperback around the area of one of the screws. Well, I am a fairly active person. (i'm in the military still) I don't know if I've aggrevated the muscles or what.
That is exactly what it is. I had the same problem after my 1st surgery. They couldn't pin point what it was. They did exploratory surgery and took out 1 rod. They determined that my muscle was being irritated, or rejecting it. Problem seems to have been fixed now.
It is a odd pain. Comes and goes. Burning, sometimes very sharp. I would even have what felt like attacks.
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[QUOTE=Purklelove]Originally posted by itsjustmeOkay, well all has been going good until recently. I have developed a burning/aching pain on the left side of my upperback around the area of one of the screws. Well, I am a fairly active person. (i'm in the military still) I don't know if I've aggrevated the muscles or what.
That is exactly what it is. I had the same problem after my 1st surgery. They couldn't pin point what it was. They did exploratory surgery and took out 1 rod. They determined that my muscle was being irritated, or rejecting it. Problem seems to have been fixed now.
It is a odd pain. Comes and goes. Burning, sometimes very sharp. I would even have what felt like attacks.25 yr old female =^_^=
Thoracic curve 48 degrees (with kyphosis)
Lumbar curve 23 degrees
surgery from t5-l1 25 July 2005
Two rods and 16 screws later . . . 0 degrees YAY!
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I don't blame you for not wanting to have anything taken out with no family around to support you. Plus, the idea of having a surgeon who normally doesn't do revisions attempt one is scary.Audra
Diagnosed at 12
42T, 52L presurgery
surgery in 1994: fused form T1-L2, curves corrected to 25T and 25L
infection leading to surgery and 10 day hospital stay w/ strong antibiotics 3 weeks later
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Originally posted by ali8781I don't blame you for not wanting to have anything taken out with no family around to support you. Plus, the idea of having a surgeon who normally doesn't do revisions attempt one is scary.
that's my point exactly.... I've just got to wait for next summer when I'll be in Florida and then I'll see a civilian doctor. I just need to wade this out for the time being. and doing pushups isn't exactly helping the situation either.... oh well, I guess for now I've got to grin and bear it since the AF is moving onto the whole 'fit to fight' hooplah. Thank goodness my hubby sent my TENS unit or else I don't know what I'd do!!!! (and painkillers are not an option for me.. I hate them things) ..... :/25 yr old female =^_^=
Thoracic curve 48 degrees (with kyphosis)
Lumbar curve 23 degrees
surgery from t5-l1 25 July 2005
Two rods and 16 screws later . . . 0 degrees YAY!
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Don't completely rule out using the military's resources. I had my first surgery as a dependent at Walter Reed (I know all the bad publicity it has had recently, but I got excellent care there). My current civilian dr. said that the job they did on my original rods was good (my revision was due to a problem that could not have been averted at the time). It sure would save you a LOT of money!!!Jessica B.
"Bionic Woman"
1990 - 1993 - Wore Boston Brace
1991 - Post fossa decompression for Arnold Chiari Malformation
1993 - Posterior spinal fusion T4 - L4 and thoracoplasty T6 - T10 on the right
2007 - Lumbar laminectomy L4 - L5; L2 - iliac wing extension instrumentation and fusion
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I'm 3 years post op, and now I'm feeling this pain you're speaking of.
For me it hurts between my spine and my left shoulder blade in the area of the screws. It feels like a muscle is pinched or something? + general burning/aching pain in the area.
At the start of the day it feels fine, then at the end of the day I'm in agony.
When it hurts, it feels like a muscle spasm/twitch and like you said - it makes me jump like I got shocked.
It hurts
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My revision surgery was in 2000 and it was last summer I started to experience this pain too. I saw my doc about 3 weeks ago and he said that I was starting to develop a kyphosis at the top of my fusion so that the cause of the pain in my case appears to be one of my rods poking me. He wants me to think about having my rods cut down and about 4-5 more levels fused to stop the progression of the kyphosis. I haven't a clue what I am going to do as the thought of another surgery after 10 makes me sick!!!
chris
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