My son, Jackson, is 10 months old and was diagnosed with a 70 degree spinal curve (thoracic) just two weeks ago today.
They're calling it congenital infantile scoliosis, but the MRI last week came back clean. (many, many answered prayers)
Today we pick up his semi-rigid brace and have him casted for positional plagiocephaly (he pulls to the left from the scoliosis and that side of his head has flattened causing some facial asymmetry).
Our doctor is the world-reknowned Dr. Lenke in St. Louis, so we know we're in good hands. I guess I just needed to know that others were out there going through this. We're facing surgery, but we don't know when. I'm secretly wishing that the brace somehow "cures" him and we won't need to deal with surgical growing rods. I'm anxious to hear what Dr. Lenke says on the 3rd. I'm sure if he does recommend surgery, we'll be here with lots of questions.
Sandi (& Jack)