Dear All-
I haven't posted in a while, but I thought I should post an update.
My daughter is scheduled for a fusion surgery for kyphosis on June 13th with Dr. Boachie at HSS. We just came back from our pre-op consult. Pre-op went great - the pediatrician (Dr. Perlman), pulmonologist (Dr. Dimaio), and other staff who work with Dr. Boachie were terrific. They conducted thorough exams of my daughter, and answered all of our questions in great detail and with patience. In fact, they answered all my questions (that I had written down beforehand) before I asked them.
I was a bit surprised to find out that my daughter had slightly lowerd chest function. Her kyphosis is in her lower lumbar, so I hadn't really thought that it would affect her pulmonary function. The pulmonologist thinks that it's possible that she may have been nursing a cold at the time of the test, so she has asked us to repeat the pulmonary function test in a year.
Dr. Boachie is planning on fusing L1 through L-4. He, too, was wonderful in explaining everything to us patiently. He is going to use titanium hardware, and will use the bone chips from her kyphotic 'bump' for the fusion. If it turns out to be insufficient, he will harvest some from her hip.
My daughter is totally calm about the whole thing, and the staff tells me that it's going to hold her in good stead.
Thank you everyone for guiding us along this far, and please keep my daughter in your prayers.
Sam
I haven't posted in a while, but I thought I should post an update.
My daughter is scheduled for a fusion surgery for kyphosis on June 13th with Dr. Boachie at HSS. We just came back from our pre-op consult. Pre-op went great - the pediatrician (Dr. Perlman), pulmonologist (Dr. Dimaio), and other staff who work with Dr. Boachie were terrific. They conducted thorough exams of my daughter, and answered all of our questions in great detail and with patience. In fact, they answered all my questions (that I had written down beforehand) before I asked them.
I was a bit surprised to find out that my daughter had slightly lowerd chest function. Her kyphosis is in her lower lumbar, so I hadn't really thought that it would affect her pulmonary function. The pulmonologist thinks that it's possible that she may have been nursing a cold at the time of the test, so she has asked us to repeat the pulmonary function test in a year.
Dr. Boachie is planning on fusing L1 through L-4. He, too, was wonderful in explaining everything to us patiently. He is going to use titanium hardware, and will use the bone chips from her kyphotic 'bump' for the fusion. If it turns out to be insufficient, he will harvest some from her hip.
My daughter is totally calm about the whole thing, and the staff tells me that it's going to hold her in good stead.
Thank you everyone for guiding us along this far, and please keep my daughter in your prayers.
Sam
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