Hi, I am new to this forum. My 12 year old daughter was diagnosed with congenital scoliosis while I was pregnant with her. She was born with a hemi-vertebra. She had surgery at 2 1/2 years of age. She had a fusion performed at Shriner's Hospital. She was fused at L3-L5. Her curve had progressed to a 36 degree curvature.
Now we are dealing with a curve occuring above where she was fused. This curve has progressed to a 60 degree curve. The doctors have told us that they just want to watch her because she has started her menstual cycle and they believe her curve will hold at this. Have any of you dealt with this? If so what happened? I certainly do not want her to have another surgery if she doesn't need one, but am concerned that it will not stop.
Thanks,
Mother of Bethany age 12
Now we are dealing with a curve occuring above where she was fused. This curve has progressed to a 60 degree curve. The doctors have told us that they just want to watch her because she has started her menstual cycle and they believe her curve will hold at this. Have any of you dealt with this? If so what happened? I certainly do not want her to have another surgery if she doesn't need one, but am concerned that it will not stop.
Thanks,
Mother of Bethany age 12
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