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Thread: pain pain pain

  1. #1
    Join Date
    Jan 2007
    Location
    Clarkesville, Georgia
    Posts
    19

    Unhappy pain pain pain

    Hello to all. I will be 36 years old on June 1. I have only known about having scoliosis since last year. I have a lot of leg pain (shooting down my legs). I also have a lot of neck, shoulder and low back pain (exspecially when riding in a car or driving. My doc has had me taking neurotin 600 mg 3 times a day, baclofen 2 times a day, and elavil at night to help me sleep. But nothing seems to help. I have a long car trip ahead of me ( about 4 hours one way)
    any suggestions....

  2. #2
    Join Date
    Feb 2007
    Posts
    10
    Unfortunately, i feel your pain! I have had the same symptoms as you for years now, and took some of the same medication, with very view results. Have you had an MRI or bone scan? The pain I was dealing with ended up not being from my scoliosis. It was due to a few herniated discs and a bulging disc that was pushing on my S1 nerve, causing the shooting down the leg pain. Prescriptions usually dont fix that pain. This summer I'll be meeting with a neuro surgeon to discuss the surgery to fix the bulging disc. For your long car trip, I'd tell your doctor your issue and maybe he can give you some great pointers. When I'm suffering from the pain I use those stick on extra strength icy hot patches. They don't always do the trick, but they relax me a little bit. A foam pillow or one of those curved neck pillows made for the car/airplane may help also. If I think of anything else I'll let you know!
    Francesca
    19 years old College Soph
    Diagnosed: 6th grade (can't remember curve degrees)
    Boston Brace 2000-2002, 23/7...
    Curves reside at 35T and 33L
    Aug 2002: Osteoid Osteoma (tumor) removed from L3
    Jan 26.. diagnosed with slow progressing DDD and sacroiliitis.. get fitted for my new SI Belt on the 31st

  3. #3
    Join Date
    Jan 2007
    Location
    Clarkesville, Georgia
    Posts
    19

    Smile thanx

    Thanx Checka. I was told that I had a slipped disc about 2 years ago, but my doc said that I would always have back pain because of the scoliosis. I have to admit that I'm not very happy with her care right now. She has sent me to physical therapy a few times, didn't help...but she is a general practitioner and doesn't seem to want me to go to a specialist. I can't even get her to do another set of xrays it's been over 2 years since the last set and forget about an mri, she doesn't think I need one. Thank you for the tips, I live for heat on my back! I've got to get me one of those pillows!
    I hope to hear from you again soon...you have been very helpful!

  4. #4
    Join Date
    Aug 2006
    Posts
    16
    myree

    I would suggest that you see you GP again or even a different gp and ask them to reffer you to an orthapeadist or a neuro.

    If you say you have a herniated disc which is quite possible a neuro doctor would be the best choice as you will most probably get a MRI scan.

    I wouldnt let your GP push this to one side..

    regards

    Dave

  5. #5
    Join Date
    Jan 2007
    Location
    Clarkesville, Georgia
    Posts
    19

    Smile

    Thanx Dave
    I think you are right my GP seems to be seeing so many patients that she has lost her ability to be a thorough doc. I have to remember that she is not a GOD and let her know that I won't let her just push me to the side. I'm sure an MRI would be a useful tool for her to help me with my care or maybe at least help a specialist with my care. Hope to hear from you again soon!
    thanx,
    Myree

  6. #6
    Join Date
    Aug 2006
    Posts
    16
    Quote Originally Posted by myree
    Thanx Dave
    I think you are right my GP seems to be seeing so many patients that she has lost her ability to be a thorough doc. I have to remember that she is not a GOD and let her know that I won't let her just push me to the side. I'm sure an MRI would be a useful tool for her to help me with my care or maybe at least help a specialist with my care. Hope to hear from you again soon!
    thanx,
    Myree

    Yea I would push for you to see a specialist as they are the best to judge this.

    There are a few things that a neuro consultant can see in the MRI

    Herniated disc possible prolapse which can cause the servere pain you have alsi which has just been resently diagnosed for me is a Teatherd dpinal cord Caused by a fatty tissue which helps split the cord.

    I think a GP can only diagnose so much before a specialist is needed and I think in your case a proper examination via a specialist would be beneficial.

    Regards

    Dave

  7. #7
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    397
    Does Neurontin help with the pain any? Im curious because I was taking Ibuprofen, now have progressed to Hydrocodone just whenever I need it. I don't like it much because it makes me so drowsy I can't take it at work. But, this pain is just too much at times. Sometimes not bad. I average about one pill every other day - I was just curious if anyone else had any good luck with taking anything else? My dr said he would do whatever I wanted him to do - that kinda worried me, must think it's bad.... My appt is not until Aug 19th in St. Louis...

  8. #8
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,249
    Quote Originally Posted by RitaR View Post
    Does Neurontin help with the pain any? Im curious because I was taking Ibuprofen, now have progressed to Hydrocodone just whenever I need it. I don't like it much because it makes me so drowsy I can't take it at work. But, this pain is just too much at times. Sometimes not bad. I average about one pill every other day - I was just curious if anyone else had any good luck with taking anything else? My dr said he would do whatever I wanted him to do - that kinda worried me, must think it's bad.... My appt is not until Aug 19th in St. Louis...
    Hi Rita...

    Neurontin is not a pain medication, but helps to block nerve pain.

    --Linda

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