Hi all,
My daughter has scoliosis secondary to Chiari/Syrinx. She has been decompressed and currently the Chiari has been resolved and the syrinx is greatly reduced with no cord expansion. Her scoliosis is at 23 degrees now.
Down from 28 pre decompression. Her curve decreased after surgery and has remained stable for two years 5 months.
My worry is that as she grows, if she does progress, because of the Chiari/Syrinx, the use of traditional braces has not been shown to be very effective.
I have read the Spinecore website and found no indication that it CAN be used with this type of scoli. Has anybody with this type of scoli ever used the spinecor? If so what were the results? The idea of continuing to watch and wait seems ridiculous knowing that if progression starts, fusion surgery will probably be unavoidable.
I don't want to brace her if it is not necessary, and will not put her in a rigid brace until there is no other choice. However, I also want to be proactive and prevent progression if there is any way possible.
My daughter has scoliosis secondary to Chiari/Syrinx. She has been decompressed and currently the Chiari has been resolved and the syrinx is greatly reduced with no cord expansion. Her scoliosis is at 23 degrees now.
Down from 28 pre decompression. Her curve decreased after surgery and has remained stable for two years 5 months.
My worry is that as she grows, if she does progress, because of the Chiari/Syrinx, the use of traditional braces has not been shown to be very effective.
I have read the Spinecore website and found no indication that it CAN be used with this type of scoli. Has anybody with this type of scoli ever used the spinecor? If so what were the results? The idea of continuing to watch and wait seems ridiculous knowing that if progression starts, fusion surgery will probably be unavoidable.
I don't want to brace her if it is not necessary, and will not put her in a rigid brace until there is no other choice. However, I also want to be proactive and prevent progression if there is any way possible.
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