I am the mother of a 15 year old boy who was diagnosed with congenital scoliosis and kyphosis at 1. He had surgery with fusions at 18 months old.
He also had severe toe walking and had the botox injections and was casted several times nothing worked so he had to have surgery to lenghten his heel cords on both ankles at 6 years old.
He then had severe claw toes and other foot deformities that led to casting again and eventually another surgery at 13. He had a procedure called Jones procedure to correct that. Which his toes still curle and he has pain.
He now is in physical therapy because he has limited mobility in his lower extremities and has pain in his back. The PT said his lower extremities (tendons, muscles,ligaments) are severly tight and very limited. They asked if I was given any other diagnosis besides the scoliosis. The answer I have is no but I have been asking my self that for many years. I am told his curves are stable at about 35, 37, 42 and his spine for the most part is lined up ok.
I need to know if any one else has any of these other issues with the scoliosis and what did they do to get answers. I need help!!!
He also had severe toe walking and had the botox injections and was casted several times nothing worked so he had to have surgery to lenghten his heel cords on both ankles at 6 years old.
He then had severe claw toes and other foot deformities that led to casting again and eventually another surgery at 13. He had a procedure called Jones procedure to correct that. Which his toes still curle and he has pain.
He now is in physical therapy because he has limited mobility in his lower extremities and has pain in his back. The PT said his lower extremities (tendons, muscles,ligaments) are severly tight and very limited. They asked if I was given any other diagnosis besides the scoliosis. The answer I have is no but I have been asking my self that for many years. I am told his curves are stable at about 35, 37, 42 and his spine for the most part is lined up ok.
I need to know if any one else has any of these other issues with the scoliosis and what did they do to get answers. I need help!!!
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