Page 1 of 2 12 LastLast
Results 1 to 15 of 22

Thread: 6 years old 35º

  1. #1
    Join Date
    Feb 2007
    Posts
    10

    6 years old 35º

    Hello everybody
    My name is Raquel. I´m from Spain. My daugther who is 6 years old has been diagnosticated of scoliosis recently. In fact I was the one who detected something "not normal" in her chest (last left rib outcoming more than the other). The pediatric traumatolog told us she has a 35 degrees scoliosis and needed a brace. She has been in her boston brace for one month and a half. She is bearing it really great (I can´t believe it- she has no complains) but I´m worried about muscle atrophy and lack of effects. I have read a lot about spinecor and seems great but I ask a spanish doctor (only two places in Spain has spinecor) and he has never put it to someone so young (I asked him about it, he wouldn´t have told me). He told me to visit him but that fact discouraged me.

    I´d love Celia Vogel or anyone else to answer some questions, please:

    Do you think I should try with this doctor who never use it with someone so young?
    I think I don´t have a lot of time because I have read that after more than 6 months in a rigid brace the spinecor has no longer effects. Is it so?
    If I would spend a lot of money going to Canada for the first visit to put the brace in, would that be enough or we would need to make there much more visits?
    How is it possible 35º without realizing anything before? Does that mean a bad future?

    Please answer me I´m going crazy trying to take a decission (and it is harder to think of changing when she is doing great with the Boston brace)

    Sorry for my english- hope I can make myself understood.

    Thank you Thank you Thank you

  2. #2
    Join Date
    Mar 2004
    Posts
    1,140
    Hi Raquel,

    Your English is great by the way! When I first met with Dr. Rivard he explained to me that he had only fitted one other 4 year old child from Maine, U.S.A. with the spinecor brace and later I found out it was Ann's daughter, Lauren. Personally, I would not subject my daughter to countless years in a rigid brace but I know a few parents who have no problem with this and their children are doing incredibly well. Muscle atrophy was a very big concern for me, especially the muscles that support the spine.

    I would find out what kind of success rate the two centres in Spain are having and even go for an initial consult and see the kind of correction your daughter gets with the Spinecor. I believe Ailea would be able to give you some feedback on the centres in Spain because her teenage daughter was going there for a period of time. If you're not happy with the centres and the initial correction, then by all means contact Montreal and go for a proper fitting there and then continue with treatment in Spain. That's what I would do!

    Spinecor moms and dads, what do you think ?



    *
    Last edited by Celia; 02-14-2007 at 08:04 AM.

    Canadian eh
    Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

  3. #3
    Join Date
    Mar 2004
    Posts
    1,140
    Raquel,

    Are you sure there are only two centres in Spain? I found these centres when I did a search on Spinecorporation.com. Actually, if you phone Drs Rivard and Coillard, they would probably be able to tell you which centre in Spain is having the best success rate since I think they keep tabs on things like that and they would give you an honest answer

    SPAIN


    GERONA
    CENTRE AND ORTHOPAEDIC SURGEON
    Dr Carlos Herrero i Jover
    Centre d'Especialitats en Adolescencia i Pediatria
    Mossén Joan Pons, 3 bxs
    17007 Gerona, Spain
    Tel: +34 972 200298
    Fax: +34 972 200298
    e-mail: carlosherrero@comg.es
    Website: www.carlosherrero.es

    PHYSIOTHERAPY
    Ms Carme Armengol i Niell
    Fsioart
    C/Impressors Oliva 5, bxs
    17005 Gerona
    Tel/Fax: +34 972 210303


    SPINECOR ANDALUCIA
    DISTRIBUTOR
    Carlos Barbero Rodriguez
    G.I.B, S.L.
    C/ Bami, 1 - 2°D
    41013 Sevilla
    Tel: +34 954 234523
    Fax: +34 954 239796
    email: cbr@ortopedia.com


    SEVILLA
    CENTRE AND ORTHOPAEDIC SURGEON
    Dr. A Vera Miller
    (SpineCor Andalucia Technical Director)
    Specialist in Orthopedics, Physical Medicine and Rehabilitation
    Centro De Enfermedades de la Columna Vertebral
    C/Jauregui 4-6, portal D, B-2
    41003 Seville
    Tel: +34 954 513162
    e-mail: alfvera@telefonica.net



    ORTHOTISTS WORKSHOP
    Mr Carlos Barbero Rodriguez
    Ms Rocio Puerto Zambrano
    Ms Maria Dolores Poley Navas
    Ortopedia Bami Optica
    Ortopedias Baro
    C/ Marques Luca de Tena, 24
    41013 Seville
    Tel: +34 954 234523
    Fax: +34 954 239796
    email: cbr@ortopedia.com


    ALBACETE
    Dr Pilar Andujar
    Dr Mercedes Cabañero
    Dr Francisca Medrano
    Dr Carmen Alonso
    Dr Amelia Rubio
    Complejo Hospitalario Universitario de Albecete
    Hospital Perpetu Socorro
    Servicio de Rehabilitación
    C/ Seminario, 4
    02006 Albacete


    Dr Pilar Andujar
    Grupo de Tratamiento Integral del Aparato Locomotor (ASA)
    C/ Tejares, 75
    02002 Albacete
    Tel/Fax: +34 967 610037
    Email: asarehabilitacion@ono.es


    ORTHOTISTS WORKSHOP
    Mr Antonio Javier Gómez Gonzàlez
    Tecniorto
    C/Rosario 64
    02003 Albacete
    Tel: +34 967 512581
    Email: javitecniorto@hotmail.com
    CENTO DE ADAPTACIÓN
    Sr. José Luís Domínguez Piña
    ORTOPEDIA PIÑA S.L.
    C/ Pérez Galdós, 10
    02003 Albacete
    Tel: +34 967 501 614
    Tel/Fax: +34 967 501 943
    email: ortopi1980@ono.com



    PHYSIOTHERAPY
    Ms Leonor Torrado
    Ms Laudelina Gonzàlez
    Complejo Hospitalario Universitario de Albacete
    Hospital Perptuo Socorro
    Servico de Rehabilitación
    C/ Seminario, 4
    02006 Albacete
    Ms Ma Inmaculada Moreno
    Ms M Pilar Cózar
    Ms Montserrat Pérez
    Grupo de Tratamiento Integral del Aparato Locomotor (ASA)
    C/ Tejares, 75
    02002 Albacete
    Tel/Fax: +34 967 610037



    MURCIA
    Dr Fernando Antonja Medina
    IMUCOT
    Avd.Primo de Rivera 4, 10C
    30009 Murcia
    Tel: +34 968 233953
    Fax: +34 968 243943


    ORTHOTISTS WORKSOP
    Mr Juan Sabater Iniesta
    Ortopedia San Juan Bosco
    Avd. Primo de Rivera, 4
    30008 Murcia
    Tel: +34 968 241013


    PHYSIOTHERAPY

    Sra. Mª del Mar Sáez Meseguer

    RAQUIS MURCIA S.L.

    Avd. Primo de Rivera 4, 1ºC

    3005 Murcia

    Tel: 968 23 43 13

    Email: m.mare@telepolis.com


    Ms. Mª Pilar Carnicero García

    Salud Pilates

    C/ Gran Vía 19, 1º derecha

    3005 Murcia

    Tel: +34 968 930828

    Email: info@salud-pilates.com



    Ms. Mª José García Asensio

    Ms. Inmaculada Díaz Nicolás

    Clínica de Fisioterapia “El Palmar”

    C/ Nuestra Señora de Lourdes 1, Bajo

    30120 El Palmar – Murcia

    Tel: 968 886411

    Email: fisiopalmar@regmurcia.com



    Ms. Josefa Herrera Lardín

    Sra. Lidia García Bonache
    Fisiosalud Librilla

    C/ Francisco Melendreras, 13

    30892 Librilla – Murcia

    Tel: 968 790891



    Sra. Carolina Zafrilla Disla

    ZAFRILLA SERVICIOS MÉDICOS

    C/ Parque Constitución 5, bajo

    30510 Yecla – Murcia

    Tel/Fax: 968 790891



    Sra. Esther García Delgado

    CENTRO MÉDICO TORRE-PACHECO

    Avd. Europa 2

    30700 Torre-Pacheco – Murcia

    Tel: 968 585058

    Fax: 968 579691

    Email: esthergarc@terra.com


    MADRID

    Dra. Paloma Cervera
    C/ García de Paredes 68, bajo centro drcha.
    28010 Madrid
    Tel: +34 91 446 2301
    CENTO DE ADAPTACIÓN

    Sra. Alicia Trallero
    CENTRO CORAS
    C/ Aravaca 12, 3ºC

    28040 Madrid

    Tel: 91 535 89 82

    Email: consultas@centrocoras.com





    PHYSIOTHERAPY
    Sra. Alicia Trallero
    CENTRO CORAS
    C/ Aravaca 12, 3ºC

    28040 Madrid

    Tel: 91 535 89 82

    Email: consultas@centrocoras.com


    Last edited by Celia; 02-14-2007 at 09:52 AM.

    Canadian eh
    Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

  4. #4
    Join Date
    Aug 2006
    Posts
    369
    Happy Valentines day everyone. We are home today in a snow/ice storm. But that is Okay we can all use a "down day"


    Raqual
    My daughter is 6 and has been wearing spinecor since 8/06. We have had great results so far. The reason we chose spinecor is because of the muscle atrophy and lung compression associated with the ridgid braces. Also the ridgid braces claim to only slow progression. At 6 years old that seemed risky to me because of the # of years left to grow.

    We were going to see a chiro for the brace but then were re directed to Montreal. It is a 7 hour drive one way for us but would not change a thing. I truely beleive in my head and in my heart that spinecor is our only chance to reduce the chance of surgery.

    My daughter is also scheduled for an MRI next week. Has your daughter had one yet?
    Christine
    from CT, USA
    6 year old daughter diagnosed 7/06 33* T9

    Spinecor 8/06 - 8/2012
    8/06 11* 3/07 5*-8/07 8*-2/08 3*
    10/08 1* 4/09 Still holding @ 1*
    10/09 11* OOB 4/10 Negative 6*
    10/2011 Neg.11* IB 11yrs old 0 rotation
    4/2012 12* OOB 0 rotation
    8/2012 18* OOB for 2 weeks. TSLO night time
    2/2013 8* OOB 3 days TSLO nightime
    3/2014 8* Out of Brace permanently

  5. #5
    Join Date
    Mar 2004
    Posts
    1,140
    Happy Valentine's Christine! This will give you a chance to buy chocolates for your sweetie



    *

    Canadian eh
    Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

  6. #6
    Join Date
    Feb 2007
    Posts
    10

    raquel

    I want to answer to Christine and Celia: I hope I´m writing this message in the right place. I am new using a forum

    Thank you so much

    It´s not only because you are telling me what I wanted to hear (put your daugther in spinecor) but also because I don´t feel so alone anymore.

    I DO WANT to try SPINECOR but when I asked about it in the spanish forum only 2 people have tried it and without good ressults. Ailea was one of them, her daughter improved some (10 degrees) but then no more improvement and she gave up.

    Celia:
    you are right: there are more places. I called the one who was the first in Spain because of having more experience (but never handle such a young patient) and I read in his web he was in touch with the spinecor people from Montreal (he even has pictures with the "developpers" of Spinecor). This was the one from Gerona
    Anyway I like your idea. Do you think I can send him a mail?. I´d rather write in english than speak it. Is the mail in the web?

    Christine:
    thank you for answering. It´s so important for me to hear a similar case. I´m glad is going so good to you.
    Another question: do you think is normal to diagnos a 33 or 35º scoliosis at the first time? do you think that was so fast or doctors wouldn´t have noticed before for a mistake?

    Both:
    good luck and thank you

  7. #7
    Join Date
    Feb 2007
    Posts
    10
    Christine:
    I am going to see the doctor on march the 13th. He told us he would probably then made an appointment for MRI. I mean we are getting one done but I don´t know exactly when

  8. #8
    Join Date
    Mar 2004
    Posts
    1,140
    The fact that one particular doctor has never treated children so young would not discourage me unless he tells you that your daughter is too small for the brace and refuses to brace her. The spinecor brace is really intended for preadolescent children and so far it appears from our little group of parents that six year old children are having amazing results and correction with the brace - I know it's too early to tell but the results are very encouraging when you consider the alternative of countless years of rigid bracing and muscle atrophy/rib cage compression.


    I got the following information from the Spinecorporation website:

    MONTREAL
    HOSPITAL AND ORTHOPAEDIC SURGEONS
    Hôpital Sainte-Justine
    3175, Chemin Côte Sainte-Catherine, Suite B-922
    Montreal, Quebec, H3T 1C5
    Contact: Dr. Charles Hilaire Rivard
    Contact: Dr. Christine Coillard
    Phone: (514) 345-4839
    Fax: (514) 345-4723

    e-mail: charles-hilaire.rivard@recherche-ste-justine.qc.ca

    e-mail: christine.coillard@recherche-ste-justine.qc.ca


    Canadian eh
    Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

  9. #9
    Join Date
    Aug 2006
    Posts
    369
    Raqual

    I am not 100% sure I understand your ? but heres a shot. My daughter's back has been checked at every wellness visit. I remember seeing the doc do it. I do beleive that her curve did develope in less than 1 years time. My daughter has been growing fast in fact she is a little over an inch taller than her twin brother.

    I remember reading somewhere that curves can increases quickly especially in young flexable backs. So We had our daughter braced in spinecor within 3 weeks of her diognosis. Dr Rivard must have been concerned about quick progression too, because he got us in that quickly!

    Chrisitne
    from CT, USA
    6 year old daughter diagnosed 7/06 33* T9

    Spinecor 8/06 - 8/2012
    8/06 11* 3/07 5*-8/07 8*-2/08 3*
    10/08 1* 4/09 Still holding @ 1*
    10/09 11* OOB 4/10 Negative 6*
    10/2011 Neg.11* IB 11yrs old 0 rotation
    4/2012 12* OOB 0 rotation
    8/2012 18* OOB for 2 weeks. TSLO night time
    2/2013 8* OOB 3 days TSLO nightime
    3/2014 8* Out of Brace permanently

  10. #10
    Join Date
    Dec 2004
    Posts
    236
    Curves most certainly can change quickly, my oldest daughter was a 10T and 18L, and four short months later, she was at 33T and 45L.

    I have a 13 year old in Spinecor now, she's been in it for about 16 months, and we're very pleased so far.
    pat

  11. #11
    Join Date
    Feb 2007
    Posts
    10
    Thank you everybody

    I hope you understand me. Sometimes I wonder if her paediatrician should have noticed something before she is in her 35º (5º degrees from surgery). I know he checks her back every year because I have seen him.

    Anyway, it´s kind of silly from me to try to blame someone. I´m sorry. It doesn´t make any change. Only if you think I can sue him and he pays for all the treatment (trips to Montreal every month, spinecor, subsistence allowance... ha ha ha

    You already gave me your opinion about what it´s really important: I should try spinecor. Thank you.

  12. #12
    Join Date
    Sep 2005
    Posts
    877
    Raquel,

    I know how you feel. I am angry at Nicole's doctor because she noticed something and she didn't send me for x-rays or to an orthopedic. Other doctors in our practice do that for other patients. I waited an entire year before going back to her doctor and at that point her curve was 40.

    Lucky for you that your daughter is so young and possibly her spine will do as well with Spinecor as the other little children on this site have done.

    The most we can hope for with Nicole is that she doesn't get much worse.

    Don't look back. Just look at today and the future. Believe me, I have wasted a lot of energy with guilt. It really is pointless.

    But it is true that Dr. Rivard doesn't like to do the Spinecor after a child has been in a hard brace for too long. Please don't wait too long to decide what you are going to do. The best of luck to you.
    Melissa
    From Bucks County, Pa., USA

    Mom to Matthew,19, Jessica, 17, and Nicole, 14
    Nicole had surgery with Dr. Dormans on 9/12/07 at Children's Hospital of Phila. She is fused T-2 - L-3

  13. #13
    Join Date
    Aug 2006
    Posts
    369
    I feel guilt as well. After the doctor pointed out my daughters curve I could have kicked myself for not seeing it before. There it was clear as day. But you are right we must look forward and not beat ourselves up over something that will not change.
    from CT, USA
    6 year old daughter diagnosed 7/06 33* T9

    Spinecor 8/06 - 8/2012
    8/06 11* 3/07 5*-8/07 8*-2/08 3*
    10/08 1* 4/09 Still holding @ 1*
    10/09 11* OOB 4/10 Negative 6*
    10/2011 Neg.11* IB 11yrs old 0 rotation
    4/2012 12* OOB 0 rotation
    8/2012 18* OOB for 2 weeks. TSLO night time
    2/2013 8* OOB 3 days TSLO nightime
    3/2014 8* Out of Brace permanently

  14. #14
    Join Date
    Mar 2004
    Posts
    1,140
    I meant to say it works very well for a variety of curves and stages in development. When I said preadolescent I meant before the peak height velocity period and a curve below 30 degrees but Melissa's daughter Nicole is doing very well as is Cheryl's daughter Rachel, Pat's daughter and of course Gerbo's Lisanna.....did I miss anyone?



    *
    Last edited by Celia; 02-15-2007 at 10:33 PM.

    Canadian eh
    Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

  15. #15
    Join Date
    Feb 2007
    Posts
    10
    Christine:
    Do not feel guilty. I am sure you see it clear now because of looking at it so many times. It happens to me: people don´t notice but I ask my poor daugther to bend a lot of times and I watch her back again and again.

    Matjesnic:
    Thank you. I won´t wait much longer but I want the doctor send us for MRI before and then I´ll go for it.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •