Lots of things going on... we're in the process of moving and so if I haven't posted in awhile that's why.
Em went in on Dec 1st for angioplasty. After taking a lot of pictures - they decided it would be in her best interest to have a stent put in. Well they tried a few times, but every time they got close, her blood pressure and O2 stats dropped - so the ended up doing the angioplasty.
Now - we're in wait mode to see what will happen next :
1) In a couple of months they try the stent again (best case)
2) In a couple of months they do open heart surgery to replace the conduit
#2 frightens me as if that happens, then we'll have to postpone the spine surgery - because I'm not about to have her do 2 major surgeries back to back.
Now for my question - anyone have any good links for things like seats etc that can be used to help babies with congenital scoliosis? I have a special chair the wraps around - but I'm still having to prop with towels/blankets. She's really growing now and the curve which was 60 degrees a couple of months ago - is really getting pronounced. So I'd like to find some things that will help her sit up better.
Em went in on Dec 1st for angioplasty. After taking a lot of pictures - they decided it would be in her best interest to have a stent put in. Well they tried a few times, but every time they got close, her blood pressure and O2 stats dropped - so the ended up doing the angioplasty.
Now - we're in wait mode to see what will happen next :
1) In a couple of months they try the stent again (best case)
2) In a couple of months they do open heart surgery to replace the conduit
#2 frightens me as if that happens, then we'll have to postpone the spine surgery - because I'm not about to have her do 2 major surgeries back to back.
Now for my question - anyone have any good links for things like seats etc that can be used to help babies with congenital scoliosis? I have a special chair the wraps around - but I'm still having to prop with towels/blankets. She's really growing now and the curve which was 60 degrees a couple of months ago - is really getting pronounced. So I'd like to find some things that will help her sit up better.
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