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  1. #1
    Join Date
    Oct 2006
    Location
    Texas
    Posts
    61

    Now pain in left hip

    I wonder if anyone out there can give me a bit of insite if experiencing the same thing as me.

    About 2 months ago or so I started to experience a pain in my lower left back and after one month it moved more toward my left hip. Now, every step that I take with my left foot I feel pain in my left hip. Short back history is below in my signature. Now, after 30 years of minimal ups and downs of pain (guess that I have a high tolerance of pain) I get daily and solid pain in my left hip. Mom tells me that doctor did not take bone from hip, or anywhere, to do fusion and I do not have the harrington rods any more. I don't get it...does anyone out there with lower back surgery, fused back, and no bone taken from anywhere all of the sudden start to get pain in one hip?

    Just wondering as went to doctor and he pretty much laughed at me. Said that my back has so many wrong things going that I should not come to visit him again unless severe pain persists. Did not phase me too much because I deal well with pain. He just said, no sense doing anything when so much is wrong unless is hurts to the point of being unbearable. Well, it doesn't hurt unbearably but it is a constant and steady pain for about 2 months now. It doesn't get better, it gets worse. I'm not down or anything but I'm getting pretty tired to feel this pain every day and at every move.

    Any ideas anyone? I just don't have a clue.

    Thanks.

    Marilyn

    1975 Clear hard plastic body cast worn
    1976 Operated for high grade Spondylolisthesis; lumbar fused from L2-Sacrum and Harrington rods inserted
    1976 Wore regular type body cast and in bed rest for 1 year
    1977 Rods removed
    2006 Diagnosed with Flat back syndrome with sagittal imbalance
    2008 Scheduled for wide pedicle subtraction osteotomy, sooner if pain increases


    My email is ahlan_warda@yahoo.com

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Hi Marilyn...

    First, you almost certainly would have had bone taken from your iliac crest for fusion, as I don't think they were using donor bone back in the 70s.

    Second, you need to get to a scoliosis specialist who has a lot of experience in treating people with prior scoliosis fusions. Until you do, you're likely to have the same experience as you've just had with the doctor laughing at you. If you can, my recommendation would be to try to see Dr. Michael LaGrone in Amarillo.

    Regards,
    Linda

  3. #3
    Join Date
    Jan 2006
    Location
    Houston TX
    Posts
    288

    Doctor's name.

    Who was the doctor that laughed at your pain? An ortho or GP?

    I'm just curious, because I live in Houston and have seen several of the scoliosis specialists here, none have not taken my pain seriously.

    I also have hip pain and low back pain. Over the years, it has turned into nerve pain down my leg. MRI says that it is foraminal narrowing.

  4. #4
    Join Date
    Oct 2006
    Location
    Texas
    Posts
    61

    Thanks Linda and PNUTTRO

    Quote Originally Posted by LindaRacine
    Hi Marilyn...

    First, you almost certainly would have had bone taken from your iliac crest for fusion, as I don't think they were using donor bone back in the 70s.
    Wow...thank you. Mom was never told many details or she just didn't understand. My doctor of more than 25 years who retired on me never went into much details...so tons of thanks for your input Linda.


    PNUTTRO...thanks! I'll google the foraminal narrowing to learn more about it. To make a long stroy short, I went to my same doctor, Dr. Jesse Dickson, for about 27 years and then he retired. Now I am still without a doctor. Went to an ortho, Dr. Larrey, who after spending over 1˝ hours with me told me not to worry about anything, including the increasing pain in low left back/hip, until I can't stand the pain. Linda recommends the doc in Amarillo...but it is difficult for me to get there. I guess that when my pain grows to a level that I cannot stand it, then I will go see the doc in Amarillo somehow. Tell me, please, what doctors in Houston have not taken your pain seriouslly. Email me at ahlan_warda@yahoo.com (just click on the link) or tell me here. This will save me time, effort and money in my search for a Houston doctor. Thanks!
    Last edited by MariHOU; 10-31-2006 at 08:02 AM.

    1975 Clear hard plastic body cast worn
    1976 Operated for high grade Spondylolisthesis; lumbar fused from L2-Sacrum and Harrington rods inserted
    1976 Wore regular type body cast and in bed rest for 1 year
    1977 Rods removed
    2006 Diagnosed with Flat back syndrome with sagittal imbalance
    2008 Scheduled for wide pedicle subtraction osteotomy, sooner if pain increases


    My email is ahlan_warda@yahoo.com

  5. #5
    Join Date
    Oct 2006
    Location
    Texas
    Posts
    61

    Dr. LaGrone...suggestions?

    Quote Originally Posted by LindaRacine
    If you can, my recommendation would be to try to see Dr. Michael LaGrone in Amarillo.

    Regards,
    Linda
    Okay, I now have an appointment with Dr. LaGrone on January 25. The extremely nice lady asked me how I learned about Dr. LaGrone and I said that Linda Racine from www.scoliosis.org recommends him. They know very well about Linda and this website.

    I know that my appointment is a long time from now but since it is so far away I need to plan my trip from Houston to Amarillo. Does anyone have any tips on going from Houston to Amarillo to Doctor LaGrone's office? Thanks bunches!

    1975 Clear hard plastic body cast worn
    1976 Operated for high grade Spondylolisthesis; lumbar fused from L2-Sacrum and Harrington rods inserted
    1976 Wore regular type body cast and in bed rest for 1 year
    1977 Rods removed
    2006 Diagnosed with Flat back syndrome with sagittal imbalance
    2008 Scheduled for wide pedicle subtraction osteotomy, sooner if pain increases


    My email is ahlan_warda@yahoo.com

  6. #6
    Join Date
    May 2004
    Location
    Houston, Texas now live in Colorado Springs, CO
    Posts
    543
    I just received an e-mail today from Southwest Airlines about a sale. Go to their website http://www.iflyswa.com and look at the specials that are running right now. You need to book the flight now to get the cheap fare.
    Theresa

    April 8 & 12, 2004 - Anterior/Posterior surgery 15 hours & 7 hours
    Thorasic - 79 degree down to 22
    Lumbar - 44 degree down to 18
    Fused T2 to sacrum
    June 2, 2005 - Pedicle subtraction osteotomy @L3 7 hours
    MAY 21, 2007 - Pedicle subtraction osteotomy @ L2, extended the fusion to S2 and added pelvic instrumentation 9 hours

    FUSED T2 - SACRUM 2

  7. #7
    Join Date
    Oct 2006
    Location
    Texas
    Posts
    61

    Thank you Theresa!

    Wow....$160 rountrip from Houston to Amarillo is an awesome fare! Thanks so much for the head's up.

    Hugz

    1975 Clear hard plastic body cast worn
    1976 Operated for high grade Spondylolisthesis; lumbar fused from L2-Sacrum and Harrington rods inserted
    1976 Wore regular type body cast and in bed rest for 1 year
    1977 Rods removed
    2006 Diagnosed with Flat back syndrome with sagittal imbalance
    2008 Scheduled for wide pedicle subtraction osteotomy, sooner if pain increases


    My email is ahlan_warda@yahoo.com

  8. #8
    Join Date
    Oct 2006
    Location
    Texas
    Posts
    61

    Hope to move Dr. LaGrone Appt

    This new pain is getting ridiculous. I will try to call Dr. Lagrone's office tomorrow and see if there is some way to move the late January appointment to either November or December. I hope this can be done. Pain is worst when I get up from a sitting position and I can barely lay on my left side any more. Trying to stay upbeat about this but its getting a bit more difficult.

    I try to stay away from heavy medication and take 2 Aleve's twice a day. Does anyone out there take over-the-counter medication for back pain that seems to work? If so...please share.

    Thanks!
    Last edited by MariHOU; 11-05-2006 at 07:55 PM.

    1975 Clear hard plastic body cast worn
    1976 Operated for high grade Spondylolisthesis; lumbar fused from L2-Sacrum and Harrington rods inserted
    1976 Wore regular type body cast and in bed rest for 1 year
    1977 Rods removed
    2006 Diagnosed with Flat back syndrome with sagittal imbalance
    2008 Scheduled for wide pedicle subtraction osteotomy, sooner if pain increases


    My email is ahlan_warda@yahoo.com

  9. #9
    jennifer b. Guest

    pain in left hip

    I have had three spinal fusions and now have a total of 45 bits of metal in my back. Since I am unable to bend from any joints but my hips the tendons have developed tears and I have bursitis in my left hip. My surgeon ordered an MRI and has prescribed physical therepy. perhaps your pain is due to an over use of your hip joints?

  10. #10
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Quote Originally Posted by jennifer b.
    I have had three spinal fusions and now have a total of 45 bits of metal in my back. Since I am unable to bend from any joints but my hips the tendons have developed tears and I have bursitis in my left hip. My surgeon ordered an MRI and has prescribed physical therepy. perhaps your pain is due to an over use of your hip joints?
    Yikes! There's barely room on the spine for 45 pieces of metal. Since there are 25 vertebrae, you'd essentially have to have 2 screws or hooks in almost every one of them. Any chance you have a picture of your xray?

    --Linda

  11. #11
    Join Date
    Oct 2006
    Location
    Texas
    Posts
    61

    3 fusions and 45 bits of medal...wow!

    Jennifer....

    Goodness!!!!! I just cannot imagine having 3 fusions and 45 bits of metal one's back. I also had no idea about overusing the hip bone and what that does in one's back. Thank you for sharing. I am so sorry to hear about all that you have been through and continue to go through. Have you started your physical therapy yet?

    1975 Clear hard plastic body cast worn
    1976 Operated for high grade Spondylolisthesis; lumbar fused from L2-Sacrum and Harrington rods inserted
    1976 Wore regular type body cast and in bed rest for 1 year
    1977 Rods removed
    2006 Diagnosed with Flat back syndrome with sagittal imbalance
    2008 Scheduled for wide pedicle subtraction osteotomy, sooner if pain increases


    My email is ahlan_warda@yahoo.com

  12. #12
    Join Date
    Oct 2006
    Location
    Phoenix, Arizona
    Posts
    68
    Maryhou, I talked to my mama (81) last night and she said someone ought to slap your doctor in the face. My mother by the way, is a RN, or a retired RN.

    Meanwhile, what is all this talk about "BAD" back. Bad back. Bad back. How bad my back is.

    It is what it is. Don't give it more character than it needs or feel like a bad person.

    My mama's right.

    I am thrilled you have a friend to go with you. btw, by 43 I realize people are more grown up and giving than they were in our teens.

    There will of course still be pills in the world but hey. aw, I don't think of my back as a "bad" back. What are you trying to do, separate yourself from us?

    If your back is "bad" does that make mine evil and someone else's good? I see a woman's back in a movie and I appreciate how beautiful it is but I don't think in terms of good or bad. I think of straight and what might of been and how pretty a woman's back can be. I don't feel that mine is ugly however.

    None of your read, "Looking for Mr. Goodbar"? Diane Keaton, who plays the character, has a moon shaped scar, in the book aw. The movie is not a pick-me but has little to do with scoli, and more to do with freedom in the 60s.

    Maryhou, so glad your new doc moved up your appt. That's humane. When I finally got my appointment, when I had the MRI in hand, I thought it will be good to know what's what.

    I do feel conspicuous for having a "severe" degenerated disc in my spine but that's because despite the literature or a doctor's a assurance to the contrary, I remain a tad "paranoid." That has to do with other people and their own need to reassure themselves, in my family, that it won't happen to them, or hasn't happened to them because it was of course, my scoliosis, bla bla. I choose to believe in my highly educated, experienced, knowledgeable practitioner who has presumably "seen it all" and still seeing it.

    I love the way my doctor was showing me the MRI and the smooth "pretty" cartilage between my vertebrae, oh except for there. It was a clinician's point of view, no "bad" or "good" just not there. I don't know how he had humor about it but he did and it made me feel solid.

    Maryhou, you need some action and control. Google etc. office location, and pick out some sights or a place to go to lunch. I find "balance" of thought a good thing. I didn't get a lollipo after the MRI so my husband took me to lunch. Heck, just saying the name Amarilla Amarillo can be fun. Can you joke about it with your friend?

    aw, hopefully my posts will give you some squareness between now and your appointment. Your new doc is NOT going to talk about your "bad" back, okay girl? Come back on the playground until someone tells you it's time to go. You've set your appointment, you have a friend to hold your hand but also someone who might like to eat something. Remember how in our youth we had some humor? How else to cope. I could use more humor.

    Mama gets the first slap, for your doc being unprofessional and uncaring. I get the second for him making you feel ugly and disposable. Rather than expose his own inexpertise he blamed you. Linda? You in for any thwacks of your own? Who else? I will not be complacent at 43. I will cry when I want to. I will be brave when it is appropriate.
    Traction at 13, body cast 1 mos., Milwaukee, first plastic (severe allergy, abdomen skin burst, watery) then leather. Harrington Rod @ 15, 9 mos body cast, hips up. 9 more mos being careful and protective. Degenerated disc C4-5 I think well above the rod. Degenerated disc below the rod now? Probably.

  13. #13
    Join Date
    Oct 2006
    Location
    Texas
    Posts
    61
    CK43... Thanks for your post. Tell your mama "thanks" for the first slap to the doctor that I visited recently and thanks to you for the second slap. I'm excited to be going to a top doctor later this month. I am so happy and thanks goes to Linda and others on this website.
    Last edited by MariHOU; 11-08-2006 at 01:44 PM.

    1975 Clear hard plastic body cast worn
    1976 Operated for high grade Spondylolisthesis; lumbar fused from L2-Sacrum and Harrington rods inserted
    1976 Wore regular type body cast and in bed rest for 1 year
    1977 Rods removed
    2006 Diagnosed with Flat back syndrome with sagittal imbalance
    2008 Scheduled for wide pedicle subtraction osteotomy, sooner if pain increases


    My email is ahlan_warda@yahoo.com

  14. #14
    jennifer b. Guest

    a little history

    I am 45 years old and was diagnosed with scoliosis at age 11, wore a Milwaukee brace for four and a half years. I had my first spinal fusion at 19 with a Harrington rod and a body cast for 9 months. I developed severe degenerative disk disease at the base of the fusion in the following years and four years ago had a laminectomy, and more fusion, (two posterior and one anterior).

    The fusion now runs pretty much from my bra line down through my sacrum, branching out and bolted into both sides of my pelvis. My wonderful surgeon Robert Banco at New England Baptist in Boston informed me that I would have lost my ability to walk within a year without intervention, so, I'm not complaining. I feel blessed to have had such wonderful people involved in my case. I'm waiting for my MRI report so I can arrange therapy for my hip. I have an x-ray, but not in form of a file to send on line.

    I am so grateful to have found this forum full of folks who understand the struggle. Thanks for listening to my ramblings.

  15. #15
    Join Date
    Oct 2006
    Location
    Phoenix, Arizona
    Posts
    68
    You ramble? Girl? I am the rambler here. fyi, if you look up top to "User CP", click on it, and "Edit Signature."

    You can spare yourself some energy. Ramble on girlfriend.

    See my "sig" below? It's automatic.
    Traction at 13, body cast 1 mos., Milwaukee, first plastic (severe allergy, abdomen skin burst, watery) then leather. Harrington Rod @ 15, 9 mos body cast, hips up. 9 more mos being careful and protective. Degenerated disc C4-5 I think well above the rod. Degenerated disc below the rod now? Probably.

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