Anyone have hand issues as well?
Emily not only has the spine issues, but her left hand/wrist aren't as strong and she tends to hold her thumb inside her hand a lot. Just wondered if anyone else's child had a similar problem. We have an OT/PT telling us that we should get a neoprene brace to help stretch and keep it in proper position. Any information would be extremely helpful.
Erin
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Erin - Mother to Emily who was born with:
1) Pulumnary Artresia/Tetralogy of Fallot
- 2 conduit replacement surgeries
- 2 stents inserted in conduit
2) Congenital Scoliosis (9 incomplete vertebrae - 2 hemi)
3) Cystic Kidneys
- Right one non-functioning
- Left one growing and working well