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Thread: 6 year old girl

  1. #1
    Join Date
    Oct 2006
    Posts
    3

    6 year old girl

    My 6-year old daughter was just diagnosed. She is 38% lower curve and 44% upper. We will see the orthopedic surgeon on Monday. Her pediatrician thought that she might be braced for awhile but that surgery is very likely. I've been unable to find much on kids this age. She has no other health problems. Can anyone tell me what I can expect -- what is the brace like? What is the surgery recovery time? How much school will she miss? Is there a lot of pain after surgery? Is the outcome favorable?

    We live in St. Paul, MN and will be seeing the pediatric orthopedists at Gillette.

    Thanks for any advice.

    Nancy

  2. #2
    Join Date
    Sep 2006
    Posts
    11

    re: gillette

    Nancy: we have 3 daughters that were just diagnosed this past month. they are
    3,5,& 6. Our 5 yr old is 39 thoracic and 33 lumbar. I worked many many years for orthopedic surgeons and have been in contact with them along with 2 pediatric orthopedic surgeons that have seen our girls. Everyone has told me that the 5 yr old unfortunetly will ultimately have surgery at some point. thats not what we want to hear. Our pediatrician and a physical therapist highly recommended Gillette to us to seek an opinion, but it will come down to a tlso brace from them just like everyone else...23 hrs a day for approx 10years. we want our daughters to live a fuller life if possible so we are driving from WI to Eerie PA to see about spinecor bracing. we had researched it on our own but the group of people on this forum sharing info make us feel that there could be hope for a better outcome if the girls meet the criteria to try the spinecor bracing. our 5yr old was casted today to have a tlso specially made for her and it was heartwrenching to see her lay there and cry.......so its not been a good day for me as a mom. you need to do whats best for you and your children.

  3. #3
    Join Date
    Apr 2006
    Location
    Southwest Florida
    Posts
    111
    Hey

    I don't believe your daughter should need surgury if she gets a brace it should be able to get straighter because she still has many many years of growing. For me i got my brace when i was 11 and had about a half of a year left to grow and my doc. predicted that my back will stay the same and will not get better. He also said that if I was younger he might of predicted more deprogresion(???)
    well i think you will be fine and no need for surgury
    Mák Veronika
    14 yr.o. girl 9th grade
    40T
    54L
    +rotation
    Boston Brace since December 2005
    Location in Florida

    I play flute.
    I LOVE ROCK!!!!!

  4. #4
    Join Date
    Sep 2006
    Location
    Sydney, Australia
    Posts
    20
    yes i agree with cloudy. she does have alot of growing left!
    Annie. (61* Before surgery 8* after, Surgery 1990)
    Mother of
    Anna, age 11, 54* curve (surgery on 9/2)
    Mack, age 7, 32* curve (TLSO Brace)
    Meghan, age 2 18* curve (Monitering)
    www.potterfamily.piczo.com

  5. #5
    Join Date
    Aug 2006
    Posts
    4
    Nancy,
    My daughter got a TLSO braces when she was Five she is now 8. They aren't as bad as they seem or look. I really worried about what they other kids would think, but she showed them hers and they all started writing on it like it was a cast!
    Hope this will help!
    Denise

  6. #6
    Join Date
    Oct 2006
    Posts
    3
    Thanks, that is very helpful. Will she need surgery at some point?

    Nancy

  7. #7
    Join Date
    Dec 2005
    Posts
    10

    6yr old

    nancy m - what about a growing rod, or vertabal stapeling, sounds like an S-curve- can be most agressive especially in girls. sometimes bracing fails. read this book, The scoliosis sourcebook, authors-michael neuwirth md & kevin osborn. my daughter has s-curve & brace didn't work 55*& 45* age 15 now, diagnosed when she was 9. surgery on oct. 17th w/ dr. boachie in ny . do lots of research!!!!!!!!! good luck.

  8. #8
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Hi Nancy,

    I agree with longislandmom that you may want to look into other options since your daughter is facing so many years of bracing. My son had the stapling done when he was 5 years old for that very reason (to try to avoid many more years of bracing). If you have any questions you can e-mail me at mariaf305@yahoo.com.

    Whatever you decide I wish you the very best of luck
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  9. #9
    Join Date
    Oct 2006
    Posts
    3
    Thanks Maria. I will probably contact you after I find out more today at our appointment. It is nice to have contact with someone whose child is about the same age.

    Nancy

  10. #10
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Nancy,

    You're very welcome. It was very frustrating when David was first diagnosed not to have anyone to talk to who had a child the same age, dealing with the same issues, concerns, etc.

    E-mail me anytime,
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

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