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Thread: What the ????

  1. #1
    Join Date
    Sep 2006

    What's the deal..pain 15 years later?

    Okay... I am 28 years old. I have Herrington rods since I was 13-14 about 1992, although I'm not very good at remembering everything. ( my mom died the year before ). I had a corkscrew and s curve. My surgery was done at Shriners in Northeast Philly. Not sure where the rods are located but inbetween my shoulder blades to above my time i go to the chiropracter i will find out. I am scared now of the pain i may have later in life, the hospital told me i would be fine...and at thirteen I believed them. After my son was born, I began having muscle spasms in the neck and shoulder area, then lower back pain. I started seeing a chiropracter who was a godsend and really helped me in these areas. He doesn't go near the rods.

    Anyways....last week i was in a car accident of signifigant force and all my problems from before have returned three fold..including new face twitching, numbness, burning in neck area and shoulder blades, arm pain and so on. I recently started reading about all these issues people are having with these rods. I love this forum, because i know i am not the only one. It has been wonderful reading all the support and information on here. Well i have been to my chiropracter everyday and i am getting relief but i feel like something else is going on...more signifigant. So i am seeing my Orthopedic guy tommorrow. I hope there will be some answers and relief in the future.
    Last edited by youngoddess; 09-12-2006 at 04:26 PM. Reason: more info

  2. #2
    Join Date
    Aug 2006
    New York

    thought I was fixed at age 15......

    Hey youngoddess... I thought I was "all fixed" after my first surgery in 1982, I am 40 now and had the old surgery with the Harrington rods, they probably already did it better by the time you had yours in 1992. I know exactly how you feel, I felt let down when I started developing more problems.
    The thing with scoliosis is they are developing better ways of correcting the curves as time goes by and they see the long term effects of surgical techniques.100years ago we all would have just spent the rest of our lives in wheelchairs until the curves progressed to the point of no the decisions we made to get our backs fixed to increase our quality of life were not completely fruitless.
    Since you were in an accident I would definitely find the best scoliosis surgeon that you can and find out what is going on and as soon as you can.
    Have you gone to your regular doc or had any x-rays? it might be a good idea
    if you haven't just to make sure nothing shows up, and if nothing urgent shows up it might just ease your mind a bit. Just don't panic, I know it's hard...hang in there
    1982- Scoliosis fusion with Harrington rod T3-L4
    1998- revision surgery for flatback syndrome: fusion extended to sacrum, 2 discs removed/replaced with
    titanium spacers, 2 new short rods attached to Harrington rod, 6 pedicle screws
    2005-found out one screw was broken-surgeon said fusion is solid and not to worry
    2004 to now: neck, shoulder and hip pain, degenerative disc disease in neck, herniated and bulging discs in neck, bone spurs, arthritis

  3. #3
    Join Date
    Apr 2005
    Hi Youngoddess,

    so sorry to hear about your accident. If you feel that you are in pain still after a few weeks I think you should get an Xray done for peace of mind. I know what you mean about thinking that you were fixed and okay, I feel the same. I had my first surgery in '97, not that long ago and after years of exercises and patience I thought all was good in my back, only to find out I had pseudarthrosis after my rod broke and basically all my screws were loose from rreading my medical report, not fun. Nothing showed on Xrays or bone scans, only when they opened me up again. I also had two other surgeries(that means three in the last 8 years) and still my ortho thinks it's normal that I will always have some pain b/c my right rod is not stable and he fixed all he could.

    I know it can be discouraging, but the way I see it when I'm positive is that we did what we knew best with the knowledge we had. I wish I would have held up a bit more, to at least get info from this forum before getting surgery and I know that every year they learn more and more about complications from these surgeries and how to make us deal with them and pain.

    Good luck to you, hang in there.
    Last edited by sweetness514; 09-16-2006 at 02:06 PM.
    35 y/old female from Montreal, Canada
    Diagnosed with scoliosis(double major) at age 12, wore Boston brace 4 years at least 23 hours a day-curve progressed
    Surgery age 26 for 60 degree curve in Oct. 1997 by Dr.Max Aebi-fused T5 to L2
    Surgery age 28 for a hook removal in Feb. 1999 by Dr.Max Aebi-pain free for 5 years
    Surgery age 34 in Dec.2005 for broken rod replacement, bigger screws and crosslinks added and pseudarthrosis(non union) by Dr. Jean Ouellet

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