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Thread: Axial biotech scoliosis survey.

  1. #1
    Join Date
    Jan 2006
    Location
    Sarasota, Florida
    Posts
    260

    Exclamation Axial biotech scoliosis survey.

    Survey link. Scroll down to the link that says click here for survey. Only took me about 10 minutes. Completely confidential.

    I saw this in the NSF news letter and thought it was a great idea to help doctors and researchers figure out genetics and bracing and all that jazz, so I filled it out.

    Not sure if it has already been posted elsewhere but figured it was a great idea and everyone should do it to help them get a better understanding of this.
    36 year old single mom of teens ages 14 & 15.
    Anterior/posterior spinal fusion on February 9th & 16th 2006 with Dr. Anthony Moreno who now has his own practice.
    Fused from T-3 to S-1 (sacrum)
    Curve pre-op = 70 degrees
    Curve post op = 20 degrees
    No pain anymore!!
    Google is your friend

    I am not a doctor and will never give medical advice. I will support and answer questions from personal experience only.

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    I believe this is the same survey mentioned in a previous thread:

    http://www.scoliosis.org/forum/showthread.php?t=4032

    If that's not the case, please let me know.

    Thanks.

    --Linda

  3. #3
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Never mind... I see that there are two studies mentioned in the last issue of The Spinal Connection.

    Since it's not obvious until after you've filled in personal information, I thought I might add that they're only interested in FAMILIES that have a history of scoliosis.

    --Linda
    Last edited by LindaRacine; 08-31-2006 at 01:23 AM.

  4. #4
    Join Date
    Jan 2006
    Location
    Sarasota, Florida
    Posts
    260
    You're right, I'm sorry. It was about families with a history of scoliosis.
    36 year old single mom of teens ages 14 & 15.
    Anterior/posterior spinal fusion on February 9th & 16th 2006 with Dr. Anthony Moreno who now has his own practice.
    Fused from T-3 to S-1 (sacrum)
    Curve pre-op = 70 degrees
    Curve post op = 20 degrees
    No pain anymore!!
    Google is your friend

    I am not a doctor and will never give medical advice. I will support and answer questions from personal experience only.

  5. #5
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    If you haven't already participated in this study, I'd like to urge you to do so now. A newsletter from Axial Biotech claims that they are collaborating to develop a gene-based diagnostic test to predict which scoliosis curves are at risk for progression.

    To participate go to http://www.axialbiotech.com/participate.html, or call 888-992-9425.

    Thanks!

    --Linda

  6. #6
    Join Date
    Sep 2005
    Posts
    877
    Linda,

    thanks, I just took it.
    Melissa
    From Bucks County, Pa., USA

    Mom to Matthew,19, Jessica, 17, and Nicole, 14
    Nicole had surgery with Dr. Dormans on 9/12/07 at Children's Hospital of Phila. She is fused T-2 - L-3

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