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Thread: It's finally time - surgery is next Thursday Aug 3rd

  1. #1
    Join Date
    May 2006
    Posts
    19

    It's finally time - surgery is next Thursday Aug 3rd

    O.K. surgery is finally here. I'm feeling kid of numb. Amanda has had a summer of doctor visits and lab sticks. She had a seizure in May - had EEG, and MRI or brain and 2 visits with the neurologist. Amanda is now on a anti-seizure medication. No seizure since on the drug. The pedi. found a heart murmur. Amanda had a echocardiogram. She has been diagnosis with a Moderate Mitral Valve Prolapse. The valve is not leaking, so Amanda can still have her surgery. For the last 3 weeks Amanda has been a little dehydrated. We are pushing water. Nothing that will stop the surgery.

    Please pray for all of us
    Sue

  2. #2
    Join Date
    Apr 2006
    Location
    Southwest Florida
    Posts
    111

    Wink Wish you luck!!!

    Hey
    I wish you lot of luck and I'll be thinking of Amanda on the 3rd.
    I hope you will have a very succsess on the surgury!!
    Mák Veronika
    14 yr.o. girl 9th grade
    40T
    54L
    +rotation
    Boston Brace since December 2005
    Location in Florida

    I play flute.
    I LOVE ROCK!!!!!

  3. #3
    Join Date
    Oct 2003
    Location
    Utah
    Posts
    1,010
    Hi Sue,

    Big hugs and many P&PT to you and Amanda next week. Good luck with everything. Know that we'll all be cheering for you both. It's not easy, but you'll do great. We'll be anxious to hear an update when you can.
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

  4. #4
    Join Date
    Apr 2004
    Location
    Morpeth, Northumberland
    Posts
    194
    Hi Sue
    Just to wish you all the best for Thursday - I'll be thinking of you. Was that Amanda's first seizure? Genevieve started having them when she was 15 and they told me then that they quite often begin in adolescence. Probably related to all those rampaging hormones.
    Speaking of rampaging hormones, I don't know if anyone has warned you that it's very common for girls to start a period right after surgery - even if she hasn't started them yet it could trigger it so it might be as well to go prepared.
    Hugs and prayers coming your way.

    Lorrie

  5. #5
    Join Date
    May 2006
    Posts
    19
    Hi Lorrie,
    Amanda had what we thought were seizures starting 2 years ago. She had a EEG and saw a neurologist back then. He said Amanda was not having seizures, but reacting to gastic reflux. Amanda had a gastic reflux test and it showed no reflux, anyway they now think Amanda was having seizures all along. The one she had a school was 45 seconds long and scared even the school nurse. I was also told when Amanda becomes a teenager she had a greater chance of having seizures. Amanda has not started her period, her Pedi is surprised she has not.
    Sue

  6. #6
    Join Date
    Aug 2006
    Location
    Guernsey, Channel islands
    Posts
    35
    hi, could u pleas let us al no how amanda's surgery went? i hope it was alrite!
    becki

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