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  1. #1
    Join Date
    Jul 2006
    Posts
    9

    Question Anybody in Texas?

    Hi: I had my original Harrington Rod surgery in Baltimore, MD in 1972. I just moved to Texas and don't know any doctors who are knowledgeable on this subject. Anybody from Texas (I'm in East Texas) that can offer suggestions? I'm new to this site and I'd like to talk with older patients. I'd like to know more about the rod breaking down (this is new info to me,) when the revision surgery is called for and who are the top notch surgeons. I have LOTS of pain that I deal with and my life is getting more and more restricted. Anything ya'all want to share, I'd appreciate. I'm alone out here....THANKS
    Wolf

  2. #2
    Join Date
    Oct 2005
    Location
    Houston, Texas
    Posts
    80

    Welcome

    I am in Houston. I wore a Milwalkee brace and then had surgery in 1989. I have recently (in the last 3 years) started having back pain.... severe pain. My doc has since retired. Dr. Hanson apparently trained underneath him so that is who I am trying to get help from. The problem I am having is with getting in to see him, getting his office to return calls, etc. I would love to find a different doc in Houston! Good luck on your search.

  3. #3
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Hi Wolf...

    Do a Search on the forums (link above) on LAGRONE. Dr. Mike LaGrone in Amarillo is widely considered one of the leaders in treating patients with prior scoliosis fusions.

    Regards,
    Linda

  4. #4
    Join Date
    Oct 2005
    Location
    Houston, Texas
    Posts
    80

    Unhappy

    Linda, Do you know any in Houston?? Jesse Dickson did my surgery in 1989. Now, I am having some pretty severe pain. I went to Dr. Hanson (that trained underneath him) and basically got no attention once my tests came back and everything "looks" ok. Then, I kept calling and he said to try cortisone shots. I haven't done it because I would like some more information before doing that. Now, I am trying to get back into his office and am being told it will be 4-6 months. I am in pain! Any suggestions?

  5. #5
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Hi...

    Unfortunately, I don't know of anyone. Revision of previous scoliosis surgeries is really a specialty, and there are very few doctors who do any amount of treatment on that population.

    I know that Amarillo is a long way for you, but I've known people who've flown there from all over the U.S. for surgery, who will tell you that it's worthwhile.

    Regards,
    Linda

  6. #6
    Join Date
    Jul 2006
    Posts
    34
    This is interesting!!! I am in Houston, Texas also. Dr. Wendell Erwin did my surgery in 1987. I went to Dr. Esses a year ago (he officed with Dickson) and he said the same thing. He never talked to me and told me "the rods aren't broken and you are more solid than a normal person because of the rods" I have an appt. with Dr. Hanson for September. The major pain started a year ago and I have been trying to find someone to help me. My problem is to convince the scoliosis specialists such as Dr. Esses, Dickson, etc. that I am not questioning their job, I just want help. But I think they are afraid to admit or tell me something is wrong, because then it would be putting down or questioning the work of their colleague. Have you had these types of problems? My pain is getting worse.

  7. #7
    Join Date
    Aug 2006
    Posts
    1

    Another place to consider in Texas

    Have you researched the Baylor Scoliosis Center in Plano, Texas?

  8. #8
    Join Date
    May 2006
    Location
    Near Houston, TX
    Posts
    495
    I wanted to say Hi to everyone, I live in Missouri City. I also
    wanted to give you another option. I'm taking my daughter tomorrow to see Dr. Rex Marco at the Univ. of Texas Spine Center (off 610 somewhere around Bellaire, http://www.utdocs.com/provdir/provdir_frmst.htm, type in his name to see a brief bio). I really don't know anything about him, this will be our first visit, but it said he's certified in Spinal surgery. He's also recently been trained to fit the Spinecor brace which is the reason we are seeing him tomorrow. My daughter is already wearing it, but we are seeking a 2nd opinion on the proper fitting of it. I'm assuming he has an interest in scoliosis or he wouldn't be doing the Spinecor. I've also heard the Spinecor may give pain relief to some adults, but I don't know any adult who's actually worn one so don't take my word on that. Anyway, he could at least give you another opinion, can't hurt!
    Good luck to all of you.
    Sherie
    Last edited by Sherie; 08-03-2006 at 12:13 AM.

  9. #9
    Join Date
    Jul 2006
    Posts
    34
    Sherie let us know how it goes. I read a little about the Spinecore brace and was curious about it. It looks like it would help the hip pain by keeping the hip where it belongs rather than sticking out. I will be there on the 17th. I am glad we were able to move the date because I was also not going to be able to make it on labor day weekend. We will have a lot to share since MoCity has her appt. with Hanson this month and I have my appointment with Dr. Shelekov's assistant this month also. I can't wait to compare our experiences.

  10. #10
    Join Date
    Jul 2006
    Posts
    15
    All,

    I finally decided its time to confirm my self-diagnosis of Spinal Stenosis.

    I have an apt. with Dr. Hanson here in Houston.

    I'm glad I dont believe in bad luck.. (Dr. Hanson Sept. 11th on the 13th floor??)

    I'm still looking forward to Sam's Boat on the 17th.

    Steve

  11. #11
    Join Date
    Oct 2005
    Location
    Houston, Texas
    Posts
    80
    Yikes! No bad luck!

    I will be seeing Dr. Hanson today at 2pm. Wish me luck!
    Background - Diagnosed in 1981 with a s-curve. Very progressive. Wore a Milwalkee brace from 1981-1986. I had back surgery in 1989....spinal fusion with Harrington rods and bone from my hip.

  12. #12
    Join Date
    Oct 2005
    Location
    Houston, Texas
    Posts
    80
    Thanks to all for asking about and thinking of me...

    Well, I went to Dr. Hanson today. He did say that my saggital balance is ok so that was positive. BUT I have so much pain. I already had a mylegram which showed spinal stenosis. I wish I would have asked him to explain that a little better. He wants me to get an MRI which he said would work because he is looking that the part under my fusion so he would be able to see it. I am fused to L3. He basically said since most of my spine is fused my lower vertebrae are taking all the pressure. I am probably not explaining this very
    well. Long story short.... MRI is next and then depending on that.... injections to see if that helps the pain.

    I also got the impression he thought I was ok but I kept telling him I was in pain.

    I guess I will keep trucking along to find some relief. At 35 I am feeling 75.

    Take care!
    Background - Diagnosed in 1981 with a s-curve. Very progressive. Wore a Milwalkee brace from 1981-1986. I had back surgery in 1989....spinal fusion with Harrington rods and bone from my hip.

  13. #13
    Join Date
    Jan 2006
    Location
    Houston TX
    Posts
    288

    surgeons

    Quote Originally Posted by mocity
    I also got the impression he thought I was ok but I kept telling him I was in pain.
    I know what you mean. He responds to pain complaints, rather "matter of factly". He can't know what your pain is--no sympathy here. So he gets the test and then makes a decision. Seems typical of surgeons though.

  14. #14
    Join Date
    Sep 2004
    Location
    Edmond, OK
    Posts
    32

    Revision surgery

    Quote Originally Posted by WolfSoul
    Hi: I had my original Harrington Rod surgery in Baltimore, MD in 1972. I just moved to Texas and don't know any doctors who are knowledgeable on this subject. Anybody from Texas (I'm in East Texas) that can offer suggestions? I'm new to this site and I'd like to talk with older patients. I'd like to know more about the rod breaking down (this is new info to me,) when the revision surgery is called for and who are the top notch surgeons. I have LOTS of pain that I deal with and my life is getting more and more restricted. Anything ya'all want to share, I'd appreciate. I'm alone out here....THANKS
    Wolf
    I would be more than happy to communicate with you. They found my scoliosis when I was 14. It was severe then, but I waited - actually refused surgery when I was a teenager. I slipped and fell in a shower in 2000 and ended up having surgery 2 years later. They fused 16 disks in my first surgery. I have had additional surgeries and am finally to the end of my surgical career. At 51, I am now fused from T1-S1. I have great respect for my surgeon and know that he is highly qualified and specializes in revision surgery. He would be a great resource for you. He is in Plano, TX.

    I popped into the forum tonight because I want to post a message about communicating with people who have similar conditions. So I should be around if you want to talk.
    Best of luck. I know it's hard to smile through the pain sometimes, but we do it anyway.

    Christy
    Christy
    Plano, TX
    Surgical dates
    3/25/02 - fused T1-L3, T - 88 degrees
    L - 74 degrees
    7/8/04 - repaired 6 areas of non-union & fused L3-L4
    12/15/05 - fused L4-L5, L5-S1
    2/27/06 - corrected hardware failure
    3/5/06 - corrected hardware issue
    6/16/06 - replaced broken screw in pelvis
    3/9/07 - rear ended auto collision
    2/12/09 - totaled car - someone pulled out in front of me - Yikes!
    3/30/09 - Revision surgery, removed & replaced t12through S1

  15. #15
    Join Date
    Jun 2007
    Location
    Great Barrington,MA
    Posts
    3

    wolfsoul

    I just found this site thru Consulting Physicians at the Baylor Scoliosis Center.Check out their site they may be helpful.Good luck! I'm 60 and investigating revision surgery post harrington rod fusion T3/4 to L3.Suemc

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