Since my original surgery I have had permanent spasms going from my back, round the right side to the stomach, and spreading over time from to include the left side. Instead of reducing like the other post-surgical spasms they have got steadily stronger, and drastically since the hardware was removed in March. They were not due to a failure of fusion, which was tested thoroughly on my insistence, and nothing helps - everything that help ordinary spasms makes them worse. No medication has affected them even slightly, whether pain relief, muscle relaxants or anti-spasmodics. It has now got to the stage where their impact on breathing, standing and walking mean my everyday functioning is now very limited. With any slight stimulation they go from being acutely uncomfortable to a feeling of being cut in half and being unable to breathe.
The surgeon and the pain specialist have been unable to diagnose them until the last appointment, the second with the two of them. The consensus is that they are due to the removal of the rib at the original surgery setting up a nerve irritation which has taken on a life of its own, proliferating and intensifying instead of settling at some level. The good news is that there is now a treatment plan for intensive physiotherapy, rehabilitation and especially biofeedback as an inpatient, to see if the muscles can be trained to act differently.
It has been really hard watching the deterioration and not knowing what is going on with my body, especially since March. Neither of the specialists seemed to have seen this complication before, and nor have I on any scoliosis site. So I thought I'd post this up in case anyone else has a similar experience.
Spinal fusion T2-T12 Nov 04, reducing curves of 77 and 52 degrees by half.
Removal of hardward March 06, because of inflammation and swelling the length of the spine, and consequent loosening of a screw.
The surgeon and the pain specialist have been unable to diagnose them until the last appointment, the second with the two of them. The consensus is that they are due to the removal of the rib at the original surgery setting up a nerve irritation which has taken on a life of its own, proliferating and intensifying instead of settling at some level. The good news is that there is now a treatment plan for intensive physiotherapy, rehabilitation and especially biofeedback as an inpatient, to see if the muscles can be trained to act differently.
It has been really hard watching the deterioration and not knowing what is going on with my body, especially since March. Neither of the specialists seemed to have seen this complication before, and nor have I on any scoliosis site. So I thought I'd post this up in case anyone else has a similar experience.
Spinal fusion T2-T12 Nov 04, reducing curves of 77 and 52 degrees by half.
Removal of hardward March 06, because of inflammation and swelling the length of the spine, and consequent loosening of a screw.
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