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Thread: Congenital Scoliosis

  1. #1
    Join Date
    Jun 2006
    Location
    Melbourne, Australia
    Posts
    178

    Congenital Scoliosis

    Hi,

    I have congenital scoliosis. Does anyone have this and if so what kind of surgery did they have?

    Thanks

  2. #2
    Join Date
    May 2005
    Location
    Perth, Australia
    Posts
    64
    I have congenital kyphoscoliosis (a little different, but it still falls into the description!), but its angles are just under the threshold for surgery, and it wasn't picked up until I was 27. So no surgery for me. But yes to the congenital nasties.

  3. #3
    Join Date
    Oct 2003
    Location
    Utah
    Posts
    1,010
    Hi,

    I just posted to your other message. My son, Braydon (age 11) has congenital scoliosis. He had anterior/posterior fusion surgery at 11 months of age. At age 6yrs old he had VEPTR (vertical expandable prosthetic titanium rib) surgery to place two rods in his back to support his spine and to keep his chest expanded so his lungs can function as much as possible. To date, he's had 9 expansion surgeries (surgery to lengthen the rods as he grows). He's also had tethered cord release surgery. A total of 12 back surgeries so far.
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

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