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Amazing news, diagnostic test for idiopathic scoliosis!

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  • Amazing news, diagnostic test for idiopathic scoliosis!

    I know this has been posted in the research folder, but I wanted to post here as well as it is amazing and exciting news for future generations I was watching the news last night and they were talking about how researchers at Ste.Justine hospital here in Montreal are working on a blood test that could diagnose idiopathic scoliosis in children and teens, so that the treatment could prevent surgery and start earlier. I don't have a link in English but if any have other info on it, feel free to post. I will check more links later, I don't have all the details but it's been posted already Dr. Cotrel who invented the CD rods(Cotrel Dubousset, in French) was there, he flew from France and was VERY excited.

    I saw two young women on the news segment, possibly late teens/early adults who have had the surgery and I was surprised to see that they looked stiff and did say that they were limited in what they could do, and talked about how scoliosis affects the ones who suffer from it so deeply on every level-physically, psychologically and emotionally-from wearing braces to getting surgery, and I could relate SO much! One has already had revision surgery for her curve coming back, and it made me feel more "normal" that sometimes we need more than one try to have the surgery work.

    I wish that this test existed when I was young but it's so encouraging for some of the women who want children who have scoliosis and don't want their children to suffer the same as them-I can understand that completely
    Last edited by sweetness514; 06-06-2006, 05:52 PM.
    35 y/old female from Montreal, Canada
    Diagnosed with scoliosis(double major) at age 12, wore Boston brace 4 years at least 23 hours a day-curve progressed
    Surgery age 26 for 60 degree curve in Oct. 1997 by Dr.Max Aebi-fused T5 to L2
    Surgery age 28 for a hook removal in Feb. 1999 by Dr.Max Aebi-pain free for 5 years
    Surgery age 34 in Dec.2005 for broken rod replacement, bigger screws and crosslinks added and pseudarthrosis(non union) by Dr. Jean Ouellet

  • #2
    Hello Sweetness it is me Cic

    I saw the new last night as well, and I have already shared with you my worries about my daughter and son. I bawled trew the whole thing.
    I am so excited it is unbeleivable, I hope that it will be availible for my children but if it isn't for them, it will at least be for their children.
    We will talk soon. I sent you pictures,hope you got them.
    Take care, Cic.

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