Just prior to starting highbschool, was when I was checked by Education Dept. doctors (in New Zealand.) After that, Mum took me to the family doctor who told us about fusion (no rods) then spending at least 12 months in a cast, in hospital. I begged Mum not to make me go through that and even the Dr. felt it was drastic. Eventually we decided to wait and see. It was never mentioned again until my mid 50s when it started to progress and after I'd lost 6 cm in height in three years. At that point I asked my GP for xrays to check on it. She looked at the xrays and said, "Hmmm, you have the most interesting spine I've ever seen." And off to the surgeon I went.
Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free