View Poll Results: How was your scoliosis first detected?

Voters
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  • School screening.

    49 18.77%
  • Pediatrician or family doctor.

    70 26.82%
  • Family or friends.

    69 26.44%
  • Self.

    21 8.05%
  • Chiropractor.

    12 4.60%
  • x ray/exam for accident or other reasons

    21 8.05%
  • Other

    19 7.28%
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Thread: How was your scoliosis first detected?

  1. #46
    Join Date
    Sep 2006
    Location
    USA
    Posts
    75

    How my scoliosis was detected

    My Scoliosis was detected actually by my mom. She saw some curvature in my spine and saw that one of my hips was higher than the other as well as by a doctor.

  2. #47
    Join Date
    Sep 2006
    Location
    i live in brooklyn, ny
    Posts
    13

    Smile hi coloradogirl

    wow, i'm glad your mom detected it on you too! i know i have been so blessed to have my mom have that keen eye to know what to look for. going thru what i went thru with scoliosis sure has helped me look for, in my son, my nephew & tell other family & friends about what to look for. my son (will be 26 in jan/06) doesn't have it (thank God) and HIS son (almost 2 the end of october) doesnt either, thank God again! my nephew, just recently turned 20 doesn't have it either. my sis, my nephew's mom, doesn't have it either. thank GOD too! my best friend (since kindergarten) found out a few years ago that her dad has it, and recently her 16 year old daughter was diagnosed with it. her dad is in bad shape but he's approx 77 and DOES have doctors but his is so far gone now, unfortunatly they cought it too late. her daughter, however, is fine, but has SOME degree of curvature, under 20 degrees (top & bottom) but they ARE keeping watch on her. she's been a gymnast since she was a toddler too so thank God for all that flexibility & excercize! (<--she's very good too! & is now teaching toddlers gymnastics!) her son, recently 13, doesn't have it. whew! in anycase, she knows what i went thru and knows the detrimental health risks when NOT taken care of. so, no worries there. u know, when i was a kid, it was quite rare to HAVE scoliosis, now, it's just pretty much EVERYwhere! in anycase, i pray for healing for all! if you want to e-mail me, please, feel free... i'm stasi (pronounced 'stacey' but MINE is spelled correctly.. AAAHAHAHAHAAA!!!) i'm at: tersieface2@aol.com
    God bless to all,
    stasi
    stasi

  3. #48
    Join Date
    May 2005
    Location
    Wheeling, WV
    Posts
    1,105
    It was my also my mother that noticed something was wrong. All through elementary school, she made all of our clothes. Around about the age of 12, she noticed that when she pinned the hem on me, then layed it down to sew it, it was never even. At first they thought it was because I had one leg slightly shorter than the other, and soon after that the scoliosis was discovered. That was in 1972.

    Shari

  4. #49
    Join Date
    Oct 2006
    Posts
    1
    I discovered that I had it six years ago at a school screening. Every year I was tested at my school but it wasn't until we moved and my new school's screening caught it. I knew something was wrong when the doctor spent more time on me than all the other girls. Five months later I had the surgery and I am so grateful that I got it over and done with.

  5. #50
    Join Date
    Jan 2008
    Location
    United States
    Posts
    128

    Unhappy how my scoliosis wuz 1st detected

    well, i'm val. my scoliosis wuz 1st found out in actually 2 ways... i'll explain.
    1st of all, i'm a volleyball player and i luv it along w/ sk8ing and singing. i wuz playin my 2nd game and my mom's the coach's helper so we wore game jerseys w/no sleeves. my mom noticed that day and mentioned it 2 my grandma. then, about 1 month l8er, i went bra shopping. i know i'm shy 2 tell this..... anyway, my grandma heard my tears and said "u okay?" i told her no i wuzn't cause i noticed somethin about me wuzn't right. she told me bout it before, but i thought she wuz full of bull crap. (plz pardon my language) anyway, i wen't 2 get an x-ray and there it wuz, i had scoliosis and wuz put in a boston brace. i have never felt so miserable in my whole entire lifetime. (even tho i'm only 11, lol) but i know that God is just testin me 2 c how much i trust in Him, and i know that He'll guide me thro it. i pray 2 Him everyday also, and i know He luvs 2 hear from me, so i talk 2 Him WHENEVER I HAVE A CHANCE IN THE DAY ALL BY MYSELF. we should ALWAYS SET ASIDE TIME 4 GOD SINCE HE'S SO MERCIFUL 2 US!!! and that's my story. i'll be prayin 4 all of u who have scoliosis and plz pray 4 me 2! thx again!
    Last edited by sparklegirl59; 04-22-2008 at 05:59 PM.
    Valerie

    Age: 18
    Hi, my name is Valerie, but you can call me Val or V.
    I wore a Boston Brace from 2007-2010
    My curves were 30 and 31
    I now have only a single curve which stands at 35 degrees.
    I owe all of my blessings to The Lord!
    I am very thankful with where my spine is at right now.
    I want to meet some new people on this forum!
    Don't be shy...
    Feel free to message me if you would like to chat!

  6. #51
    Join Date
    Sep 2006
    Location
    i live in brooklyn, ny
    Posts
    13

    Talking HI VAL! stuff from stasi re: how & WHEN my scoliosis was 1st detected.

    well, val, 1st let me tell you, you are the COOLEST 11 year old i've ever 'met!' God bless you & i too, 'tawk' (<--my brooklyn, new 'yawk' accent for ya! LOL!) to God at LEAST a few times a day and i pray for everyone as well, you GO girl!
    i am so happy for you that you DO have God in your heart & in your life!! He IS the most wonderful! quick synopsis here-->i was raised in a jewish family and i was led to accept Jesus as my Saviour in 1980 (when i was not quite 22) and so now, i often say, in a joking but loving way, "i'm a complete jew 'cause i have Jesus as my Saviour! WHOO HOO!" (yeah, i can't say it without 'whoo hoo-ing' either... LOL!!!)
    ok, here's the 'scoop' on how & when my backwards double "S" curve was 1st detected... are you ready? are you sitting? i was 7 months old and my mom who had worn a brace for the very same thing from the young age of 2 years old to the 'old' age of 18 (yes, you DID read that correctly, she DID wear HER brace (starting in 1931) for SIXTEEN YEEEEEEEEEEEARS!!!) OK, 'nuff o'that.. seriously tho, when my sis was born, 2 years & 8 months before me, my mom knew that she didn't have it, but, when i was 7 months, i was unable to sit up properly, and usually babies that age can sit up with NO help at all... so... as my mom told me, my teeny tiny right shoulder blade was 'sticking out' more than usual, so, she knew i had it. she'd taken me to an orthopedic specialist from the age of 6 years old and now... well, i'm going to be 50 this september (and 'BLEEPING' EXCITED about it too! LOL!) and my back is COMPLETELY straight! YEAH BABY! YEAH! (sorry, i'm an 'austin powers' fan... heeheehee) i wore the milwaukee brace from age almost 13 to almost 17 1/2 when my backwards "S" curves were a bit under 50 degrees each but my doc KNEW i had to have the life saving surgery. so, he did it, and i'm thankful to God that i am quite alive and thank GOD again, respectively healthy, even tho i had a gastric bypass almost 5 years ago which is another 'epic' in itself, but i'm healthier than i have been in a LONNNNNNNNNG time and OOOOOOOOOOH so thankful to God for EVERYTHING in my life, even when some not so fun things happen, we must give thanks to Him for everything... so, as you said, please keep everyone in your prayers and share His love! WHOO HOOO!!! you can e-mail me directly at: tersieface2@aol.com... oh, sorry, i forgot to tell you, my name is stasi (pronounced 'stacy' but MINE is spelled correctly.. AAAAAAHAHAHHAHA!!!) must run.. keep staying healthy and enjoy your sports!! i'm a 'mermaid' of sorts and i sing too!! LAAAAA and/or do re mi... seriously, i've been singing with my sister since BEFORE i was born. i was sining with her echo in my mom's womb... LOL!!! gotta run.. keep in touch!
    God bless & love,
    stasi
    stasi

  7. #52
    Join Date
    Sep 2007
    Posts
    338
    A few weeks after my son turned 11 I noticed his hips were uneven. I think I had actually noticed it several months before, but it took a while to surface to my concious awareness. When I asked him to straighten them and he couldn't, I took him to my chiropractor, who ordered an x-ray and immediately referred us to a ped. ortho., who is also a surgeon. Six months later he was in a Boston brace, which did not stop progression. Feeling we had nothing to lose, we switched to a SpineCor brace. His curve has continued to progress, and now, 18 months later, he is definitely in surgery territory. However, we are going to try one last intensive physiotherapy/chiropractic treatment an an effort to decrease the curve and delay surgery as long as possible. We estimate he has about a foot left to grow. He is 3 months shy of his 13th birthday. It is frightening and sad.

    By the way, his school does not screen for scoliosis.
    Last edited by WNCmom; 04-23-2008 at 11:39 AM.

  8. #53
    Join Date
    Sep 2006
    Location
    i live in brooklyn, ny
    Posts
    13

    Smile Hi 'wnc Mom!'

    i'm stasi (pronounced 'stacey' but MINE is spelled correctly LOL!) i am keeping your son in my prayers, i know EXACTLY what he is going thru with the exception that i had MY scoliosis surgery at the age of 17. i started to wear my 'milwaukee brace' a month prior to my 13th birthday. i wore it for almost 4 1/2 years before my doc said, "surgery" to me, but it WAS to save my life and i knew that then and i'm so grateful. i KNOW it's so scary, but i also know, since I had MY surgery (12/1/75) there have been MAAAAAAAAJOR improvements. keep being there for him which i'm SURE you (& the rest of your family & friends are and have been) and he'll get through it all just fine.. you can tell him, if he wants, to e-mail me if he wants to 'tawk' (<--my brooklyn accent for ya. LOL!) my e-mail is: tersieface2@aol.com
    in fact, a few years ago, after "EONS" of not being in touch with my FANTASTIC scoliosis orthopedist/surgeon (dr. hugo keim, the TOP DOC in the scoliosis field when i was a kid) i 'FOUND" him again online and i PROPERLY thanked him for saving my life. all these years i felt that i never properly thanked him. he had told me, at the time that he knew i'd needed surgery, "do you want to live? or do you want to die?" so, obviously i chose correct, "i want to live" so.. he explained, my backwards "S" curved spine would eventually crush my heart & lungs and i would die if i did NOT have the surgery. i had progressive scoliosis, so, no matter HOW long and HOW many hours a day i was in the brace, it just was NOT getting better, it just kept getting worse. both my curves were just a bit below 50 degrees so... long story short, my spine is SOOOOOOOOOOOOOOOOOO(etc..) straight and i'm ALIVE!! YEAH BABY!!! ok, i'm calm now... LOL! seriously, i made the right choice no matter HOW scared i was. but seriously again, i KNEW i was going to be ok because i was in God's Hands...
    ok, now i must go... 'stuff' to do before the day is thru.. you can e-mail me too, please keep me informed how your son is doing! healing prayers for everyone!
    hope to hear from you soon...
    God bless,
    stasi
    stasi

  9. #54
    Join Date
    Jan 2008
    Location
    United States
    Posts
    128

    Talking I'm Glad The Lord Has Saved Me!!!

    hi stasi! thx 4 tellin me that interestin story... mine wuz very sad the 1st time i went 2 the doctor and he said YEP, U GOT IT THE X-RAY SHOWS. i wuz so upset!!! anywho, (lol) my mom said that God is w/me and always will be! i know she's right 2 cause it says so in tha B-I-B-L-E sista! YAH!!! and i know that He luvs me and will ALWAYS be there. all u have 2 do is say, LORD INEED UR HELP, PLZ HELP ME! and He WILL be there w/u EVERY SINGLE STEP of the way. isn't that gr8? (oh by the way, i wuz also saved at the age of 6, yah, 6!!! young age i know, but i understood and wuz ready! i wuz at my grandma's house 2!!!) anyway, TTYL! -val
    Valerie

    Age: 18
    Hi, my name is Valerie, but you can call me Val or V.
    I wore a Boston Brace from 2007-2010
    My curves were 30 and 31
    I now have only a single curve which stands at 35 degrees.
    I owe all of my blessings to The Lord!
    I am very thankful with where my spine is at right now.
    I want to meet some new people on this forum!
    Don't be shy...
    Feel free to message me if you would like to chat!

  10. #55
    Join Date
    Sep 2006
    Location
    i live in brooklyn, ny
    Posts
    13

    stuff from stasiface

    hi val!! you are an amazing young lady! keep that wonderful spirit alive and pass His Love around! sharing God's Love is such a gift! WHOO HOO!!
    re: you first finding out about your scoliosis: ya know, i can NOT remember a time in my life when i was NOT aware of it. i guess it's 'cause my mom noticed it on me when i was so young (7 months) that i just grew up with it. in fact, when I was 6 was the very FIRST time i went to see an orthopedist for it! he would see me EVERY SIX MONTHS and take x-rays! it's amazing that i am NOT GLOWING! AAAAAAAAAHAHAHAHAHAHAHAAA!!! <--sorry, i could NOT HELP that! LOL!!! (i laugh at ME whenever i get the chance, but not at others )
    i am so happy to know that you were saved at such a young and wonderful age! i however, was raised in a jewish family but God led me to accept Jesus as my Saviour when i ws 20! so, my ongoing joke is, "i'm a COMPLETE JEW 'cause i have Jesus as my Saviour! WHOO HOO!!" (yeah, i know, i'm pathetic , i can NOT SAY that withOUT 'whoo hoo-ing!' LOL!!!)
    sorry but i must go start dinner! the love of my life, my sweet neal, my sweet husband will be home soon and OOOH i must make the chicken!!!! LOL!! he loves my cooking!! it's yum-a-licious!' LOL!!
    stay well & keep doing great in school and keep having that WONDERFUL attitude (by God's Grace) that you have... we'll 'tawk' again...
    God bless & love,
    stasi (<--mean's 'stasiface')
    stasi

  11. #56
    Join Date
    Jan 2008
    Location
    United States
    Posts
    128

    Smile Ok!

    hey stasi! u rock! i must officially say! don't worry, 'i laugh out loud ' alot 2! i just can't help it either. don't worry- i will keep the positive attitude up. i know that God is happy with it, even tho i do whine a little sometimes. (lol) anyway, have a good dinner. -val
    Valerie

    Age: 18
    Hi, my name is Valerie, but you can call me Val or V.
    I wore a Boston Brace from 2007-2010
    My curves were 30 and 31
    I now have only a single curve which stands at 35 degrees.
    I owe all of my blessings to The Lord!
    I am very thankful with where my spine is at right now.
    I want to meet some new people on this forum!
    Don't be shy...
    Feel free to message me if you would like to chat!

  12. #57
    Join Date
    Dec 2007
    Posts
    12
    I know I'm probably late in posting in this thread but I was diagnosed with scoliosis after falling down the stairs and going to my GP because I thought I had hurt myself, she made me do the bending forward test and found the curve. It was quite an early detection when I was about 10 or 11 (I'm 19 now) I just wish they the hospital I was refered to would have done something to stop my curves from worsening like with a brace or something because I had surgery in the end. There was talk of a brace but I just don't know why it never happened. All I ever got was physiotherapy and the Ortho Dr was baffled as to why my scoliosis curves were getting worse even though I'd stopped growing.

  13. #58
    Join Date
    Jul 2008
    Posts
    408
    I'm a little late to the thread as well, but my mother originally saw something was wrong although she wasn't sure what. This happened shortly after I was born. My mother had worked with handicapped children and just knew something wasn't right. After a few visits they took a few xrays and saw that my spine was deformed, all of my vertebrea were different shapes, my ribs were not normal either. From this the doctors said I would never be able to walk, I'd be severely mentally handicapped and the odds of me being able to speak, hear or see were not good. Well, they were wrong.

    Granted this was way back in 1970, so don't get nervous it'll happen today.

    Brad
    Surgeries July 26th & August 3rd 1983 (12 years old)
    Still have 57 degree curve
    2 Harrington rods
    Luque method used
    Dr David Bradford
    Twin Cities Scoliosis Center
    Preop xray (with brace on)
    Postop xray

  14. #59
    Join Date
    Sep 2006
    Location
    i live in brooklyn, ny
    Posts
    13

    stuff from stasi re: your posting

    wow brad! God bless you! i know things were 'weird' way back then... i was 7 months old (in april of 1959) when my mom notices my 'teeny weeny right shoulder blade' sticking out and i was unable (at that age) to sit up properly. i am so thankful to God that she DID know what to look for ('cause of all HER years of wearing the brace, starting from age 2 in 1931 to age 18 in 1947). we (you and i) and others were so blessed to have it 'caught' at such an early age. how are you doing now? howz your spine? what's what with it? sorry, being 'nosey' here, seriously tho, just very concerned. my spine (but you probably remembered from reading all my 'babbling' <--LOL) was like a backwards letter "S" and the degrees were approx 48 +47 or there abouts.. i KNOW they were both quite close to 50 degrees each but just a tad under. (either 47 on both or 48 on both.. it's been so long, thank GOD!) i was in the brace from age 12 3/4 actually to age 17 when i had my surgery. they put the 'harrington' rod down the whole length of my spine but prior to, the 'weekend' before, i was in a cast the whole length of my torso, and in that dime, the 'tissue' around my spine softened and that's how they were able to 'mold' my spine straight THEN put the rod... so, i'm pretty much straight as possible, no curve, nothing, BUT, am quite UNABLE to EVER bend my torso since december 1st, 1975 (the day of surgery, NOT counting the few days prior). for me, it's not even a toss up. it was either live or die for me (at that time, to quote my doc) and i chose life. so i can't bend my torso, so what, i have the BEST POSTURE EVER! LOL!!! i'm STILL complimented on how great my posture is! (weird but true! LOL!) i will be 50 come this september so it's been a lonnnnnnnnnnng time, thank GOD! LOL!
    anyway, keep in touch! keep healthy! stay blessed!
    God bless,
    stasi (<--means 'stasiface' my nickname (from my sis) since BEFORE i was one year old! LOL!)
    you can write to me at: tersieface2@aol.com if you want!
    have a GREAT summer everyone!!!!! (i mean, everyone who is reading this.. duh on my part... LOL!
    stasi

  15. #60
    Join Date
    Jul 2008
    Posts
    408
    Statsi

    Thank you for you post! Things sure were different weren't they? I have two Luque rods in my spine. (you can see my xrays in my sig) I am sure glad my mother caught it right away, even though I am the only one in our family with scoliosis, on both sides. Apparently at the time my mother was pregnant they were spraying for mosquitos and a number of babies born at the time came out with some things 'wrong'.

    When I was born I had jaundice and had to have a blood transfusion. I was in the hospital for several weeks before I was allowed to come home, and the night I did come home was a huge thunderstorm. I tell my mom she should have seen that as a sign of how my childhood would be. (I have to admit I was a tiny bit mischevious)

    (As a side note, my mother said my heels looked like raw hamburger when I came home as that was where they would draw bood to see how I was doing. To this day I hate needles with a passion. I can't even see one on a move, I have to turn away. I fully beleive that is from those days just after I was born.)

    I think it was around the 6 month period where my mother noticed something, although I'd have to ask her again to make sure. I started wearing a brace at the age of 2, until the age of 12, when I had my surgery. My curve had gotten so bad that they decided I had to have the surgery before puberty. I was already at 110 degrees at the neck, they did not want to see what a growth spurt would do to that. heh Basically Dr Bradfor, who did my suregery' said that if I did not have the operation I would most likely die around 21 or even sooner. We elected to go ahead with the surgery.

    I've still got a curve at about 57 degrees which is really no big deal considering how bad it was before. I am having problems now with nerve pinching. I haven't been able to work since January of this year. My right leg goes numb if I stand too long, walk too long or sit too long. I mean its always a bit numb and tingly, it just gets worse the longer I do something. Its also been starting on my left leg now too. Last weekend my entire right side started going numb and tingly. And since then my right side has been a constant tingle. So its getting worse, even without working.

    I've finally had xrays done, after 6 months of asking for them, and it looks like I have approval to see a scoliosis doctor. The DR who did my surgery is close by, and he is also involved in disc replacement. I've sent a letter to him to see if I would qualify to get in on the trials of that, as I'm pretty sure that my problem is disc degeneration below my rods. He should have my letter today, so I am hoping to hear back from him soon.

    So that is my story so far. Its updating though. lol

    I'm glad to hear things have gone well for you. Us oldsters, and by that I mean age of surgery not age of us (I'm 37), have a completely different experience than others here in some ways. I mean it amazes me how quickly people are up and around, how the surgery is performed, etc... Almost every day I come here I hear something new that shocks me. lol I'm just glad things have changed for the better.

    Posture. LOL Yeah I've been complimented on my posture before too. I just say 'I can't help it'. I'd love to be able to get a good slouch on at times, I just can't!

    You may have noticed I like to blabber too. lol These forums are great and the people I have talked to have been very nice and helpful. It really is something to be able to talk to people who understand what you are going through. I'm finding it very cleansing in a way, like every time I write a little weight gets taken away.

    Brad
    Surgeries July 26th & August 3rd 1983 (12 years old)
    Still have 57 degree curve
    2 Harrington rods
    Luque method used
    Dr David Bradford
    Twin Cities Scoliosis Center
    Preop xray (with brace on)
    Postop xray

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