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Wow, thanks you guys! You've made feel a lot better,... Even when the Dr was saying what she did, I was still thinking in the back of my head, "Blah, blah, blah,.. I'm still trying Shriner's, too". I didn't say anything more to her because I just don't have the experience or knowledge about Shriner's to do it so I didn't tell her that I didn't care what she had to say, but I thought it. Don't worry, ladies,.. I'm still going to try to get in with Shriner's. 
Should I call a specific number though?
Because the other day when I called, I had to leave a message, and when they called back I spoke with a wonderful gal for quite a period of time, but she's actually sending me the applications, and requested that I also send in pictures from all the angels to show all the various curves and issues with the girls,.. she said that might speed things along. She didn't offer to do it over the phone, and kept stressing on sending me the applications for ALL the girls, and so I didn't end up asking about it. Although now I do recall she said she had only worked there a few months. She said as soon as I get the apps in to plan on a 2-3 week wait, but I should call and check the status after 1 week. She, too, encouraged me that we'd get in, and they don't care one hoot about income or insurance.
I agree with everything you both said,.. I certainly was feeling that way, but it's difficult for me to speak up on something I don't know enough about,.. unlike when she started trying to talk to me about NF, and at first acted like I probably needed all this information about it, and I was able to inform her otherwise, including that I even possess one of the best physician's reference manuals on Neurofibromatosis. There probably isn't any information, of info they give out anyway, that she could give me that I don't already know. She finally changed her look, and ended up telling me she was impressed and that I was one of the most well-educated NF parents she'd ever met. Well, I don't know about that, but I know enough to ask informed questions, and press anything I feel uncomfortable about.... I'm working on that now with the Scoliosis/Kyphosis/Lordosis, LOL.
This gal started out nice, and the appt. did go well, but she also did rub me raw on a few subjects,.. one being Shriner's, another being homeschooling,.. anyone could tell she's "anti-homeschooling",... she kept asking all these questions, but not in a friendly-inquisitive sort of way,.. it was a judicial, condemning, and disapproving manner, and it really got my goat.
One thing I am finding with Kaiser, is that no, they absolutely do not like their patients going outside "the circle", and another thing,.. they don't like to do much for 'preventative' as far as doing anything before their are symptoms that are causing problems. Like with my oldest,.. that Dr said let's wait a year (even though she NEEDS to be seen NOW),.. wait for what, for her to be ten times worse?? The oncologist for my youngest daughter seems to have a similar approach,... her tumors are growing, there is cause for concern about keeping her vision intact so she doesn't go blind, and also concern about her pituitary gland being breached and putting her into instant puberty at the age of 6/7,.. of course we don't want to start chemotherapy too soon, but his comment about how they don't usually like to treat until there are visibal symptoms,.. such as an actual loss of vision (hello,..that you can't get back!), and about the pituitary,.. "she'll initially be excessively thirsty and start peeing all the time",.. WHAT?? What the??
I don't want to do anything too early, but darn it, I don't want to wait until something is beginning into the "too late" phase of anything either, you know? Yet, so many of these doctors supposedly come highly rated,... at least within 'the circle', and from other families I know. I suppose I should just stay on my toes and see how it goes,.... perhaps I'll end up looking into other carriers/plans. 
Well, now thanks for letting me vent, LOL! I'm so glad I have you both on my side,.......... It's not easy to keep up a strong front by one's self, which is exactly my position 99% of the time. Alone on everything... and I'm technically not supposed to be (married 14 years in May),.. I can't wait until we can relocate so I can be around people I know again.
(((BIG HUGS)))
Should I call a specific number though?
Because the other day when I called, I had to leave a message, and when they called back I spoke with a wonderful gal for quite a period of time, but she's actually sending me the applications, and requested that I also send in pictures from all the angels to show all the various curves and issues with the girls,.. she said that might speed things along. She didn't offer to do it over the phone, and kept stressing on sending me the applications for ALL the girls, and so I didn't end up asking about it. Although now I do recall she said she had only worked there a few months. She said as soon as I get the apps in to plan on a 2-3 week wait, but I should call and check the status after 1 week. She, too, encouraged me that we'd get in, and they don't care one hoot about income or insurance.I agree with everything you both said,.. I certainly was feeling that way, but it's difficult for me to speak up on something I don't know enough about,.. unlike when she started trying to talk to me about NF, and at first acted like I probably needed all this information about it, and I was able to inform her otherwise, including that I even possess one of the best physician's reference manuals on Neurofibromatosis. There probably isn't any information, of info they give out anyway, that she could give me that I don't already know. She finally changed her look, and ended up telling me she was impressed and that I was one of the most well-educated NF parents she'd ever met. Well, I don't know about that, but I know enough to ask informed questions, and press anything I feel uncomfortable about.... I'm working on that now with the Scoliosis/Kyphosis/Lordosis, LOL.
This gal started out nice, and the appt. did go well, but she also did rub me raw on a few subjects,.. one being Shriner's, another being homeschooling,.. anyone could tell she's "anti-homeschooling",... she kept asking all these questions, but not in a friendly-inquisitive sort of way,.. it was a judicial, condemning, and disapproving manner, and it really got my goat.
One thing I am finding with Kaiser, is that no, they absolutely do not like their patients going outside "the circle", and another thing,.. they don't like to do much for 'preventative' as far as doing anything before their are symptoms that are causing problems. Like with my oldest,.. that Dr said let's wait a year (even though she NEEDS to be seen NOW),.. wait for what, for her to be ten times worse?? The oncologist for my youngest daughter seems to have a similar approach,... her tumors are growing, there is cause for concern about keeping her vision intact so she doesn't go blind, and also concern about her pituitary gland being breached and putting her into instant puberty at the age of 6/7,.. of course we don't want to start chemotherapy too soon, but his comment about how they don't usually like to treat until there are visibal symptoms,.. such as an actual loss of vision (hello,..that you can't get back!), and about the pituitary,.. "she'll initially be excessively thirsty and start peeing all the time",.. WHAT?? What the??
I don't want to do anything too early, but darn it, I don't want to wait until something is beginning into the "too late" phase of anything either, you know? Yet, so many of these doctors supposedly come highly rated,... at least within 'the circle', and from other families I know. I suppose I should just stay on my toes and see how it goes,.... perhaps I'll end up looking into other carriers/plans. Well, now thanks for letting me vent, LOL! I'm so glad I have you both on my side,.......... It's not easy to keep up a strong front by one's self, which is exactly my position 99% of the time. Alone on everything... and I'm technically not supposed to be (married 14 years in May),.. I can't wait until we can relocate so I can be around people I know again.
(((BIG HUGS)))
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