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Thread: help for sister

  1. #1
    Join Date
    Nov 2005
    Posts
    1

    help for sister

    I am new here and am wondering if anyone knows anything about getting help for people with scoliosis? My sister is not a canidate for surgery, although hers is pretty bad. She also has mitralvalve prolapse and dyautonomia. She is 25 and works as a phyiscal trainer for people who have had strokes, gastro bi-pass,... She has a horrible time just getting up in the morning and never feels good. Is there any money help for people like this? Can anyone point me in the right direction?
    Thanks for any help you can give.

    Jcat

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Jcat...

    What kind of help is your sister looking for and why isn't she a candidate for surgery? If she's unable to continue working, she may qualify for disability.

    --Linda

  3. #3
    Join Date
    Sep 2003
    Location
    NJ
    Posts
    1,291

    Familial disautonomia/scoliosis

    Here is an excerpt from the National Library of Medicine describing the problem:

    http://www.ncbi.nlm.nih.gov/entrez/q...825&query_hl=8

    Bracing does not help in these cases but surgery can help:

    http://www.ncbi.nlm.nih.gov/entrez/q...287&query_hl=8

    The Hospital for Special Surgery in New York City has experience with this special type of scoliosis.

    Karen
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

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