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Thread: spinecor

  1. #76
    Join Date
    Sep 2005
    Posts
    877

    Spincecor

    Celia,
    I just asked my husband if he remembered and he thinks it was 24 degrees on the day of fitting and it definitely went up 2 degrees the following month. She has a 37 degree curve without the brace. What I don't understand is why I was told that most kids only get about a 5 degree correction when they first put on the Spinecor brace. At least I think that's what Dr Deutchman said. He was really excited about the 24 degrees. And he has never been the type to make promises or tell us this is definitely going to work for Nicole. He has been very honest about not knowing what's going to be. The only time he showed any enthusiasm was when she got the 24. Do any of you know anything more about this? Is it true that most kids don't get a huge decrease on the day of the fitting? Melissa




    Celia[/QUOTE]

  2. #77
    Join Date
    Nov 2005
    Location
    Cyprus
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    71
    Hi everyone,
    yes I am constantly checking and wondering how well the bands are working. Especially since the specialist who saw my daughter and originally prescribed the Boston said that when he sees her in January and if there is no improvement with the spinecor she will have to get into the rigid one.
    Now the orthotist thinks that the only reason he said that is because the spinecor is not fully licensed in Greece......Ahh, I want to scream...

    Also, her inbrace correction is only 5 degrees which I was told was acceptable. Melissa,your daughters correction is amazing. I guess my daughter proves your doctors opinion about the initial degree of correction. I also got no promises for anything from any doctor, they say that with my daughters Risser 0 and her close to 40 degree curve anything can happen. I check her (opposite to your daughters shoulder blade) right blade that is still sticking out with the brace on and I wonder. The spinecor works slower but more permanent is what I was told. It needs more work, exercise, movement.She does the spinecor physiotherapy exercises for her type(right thoracic III) and I am beginning to understand more about the philosophy of it. I just hope she shows improvement by January....

  3. #78
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    Nov 2005
    Location
    Cyprus
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    71
    Quote Originally Posted by Celia Vogel
    Oh geez....I never even thought of stretching of the bands !! The bands can be adjusted up on the shoulders, right ??? I wonder how much stretching is reasonable ? Another worry to ponder......

    Celia, the orthotist marked 3 lines on the velcros and said to use my judgment to adjust their strength as time passes. Ofcourse that scares me a bit....whether I would be doing it right.

  4. #79
    Join Date
    Sep 2005
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    877

    Spinecor

    Hi there,
    I saw your daughter on SpineKids and she and Nicole have a lot in common. She is very excited to have a new friend who lives so far away and has so much in common with her. It seems as though their curves are similar, as well. I guess the true test will be what is happening over the next 3-6 months. I am sure I mentioned we are going back Dec 28. Anyway, Nicole always complains about doing the exercises, but they only take minutes to do. I do not believe that all Spinecor centers incorporate the exercises with the brace. I am not sure. Thanks so much for replying and confirming what I thought. Talk to you soon, Melissa

  5. #80
    Join Date
    Mar 2004
    Posts
    1,140
    Quote Originally Posted by cyprusmom
    Celia, the orthotist marked 3 lines on the velcros and said to use my judgment to adjust their strength as time passes. Ofcourse that scares me a bit....whether I would be doing it right.

    Very interesting ! Were the three lines marked only on the shoulder velcros or all four ? I'm also afraid to tighten things on my own for fear that I may be doing something to her balance, but if the straps get loose over time it would make sense to tighten them a little. I don't know if this is the last page allowed on this thread and we may have to continue our discussion on a new thread soon

    Melissa,

    We weren't given any exercises to do and I meant to ask, but it was such a whirlwind day that I forgot ! Is there a booklet that shows which exercises should be done ?

  6. #81
    Join Date
    Sep 2005
    Posts
    877

    Adjusting bands

    I think it's good that you were given 3 lines and told you can adjust the bands. We weren't told to adjust them. I think our girls have such a great feel for the brace that they can tell us when something is starting to feel loose. I wish I lived closer to the Dr. so that I could just pop right in with Nicole and see if she needs anything adjusted. It would be a shame to be going through all of this and not having the bands work to its capacity.
    Celia,
    Each child has her own exercise program set up based on her curve. At our office, we have a doctor (not Dr. Deutchman), but a chiro whose specialty is neurology, etc. Most of the exercises are focusing on putting her in her "corrective position" on a ball or standing up. She also has a wobble board to work on balance in her "corrective position."

    I know this is off topic, but I hope you don't mind my sharing some good news. My son Matthew got his first acceptance into college yesterday. He has been accepted to Penn State, college park, his first choice. It is about 3 and a half hours away. We all have so much good in our lives, but obviously this is a forum where we are focusing on scoliosis. Anyway, last night, after midnight I was waiting up for him and on the Discovery Channel was a show called Extreme Surgery. Guess what the surgery was? That's right! I watched an 11-year old having the fusion done. I'm glad I watched because I needed to see what could be a real possibility for Nicole in the near future.
    Anyway, I have written quite enough!!! Take Care, Melissa


    Quote Originally Posted by Celia Vogel
    Very interesting ! Were the three lines marked only on the shoulder velcros or all four ? I'm also afraid to tighten things on my own for fear that I may be doing something to her balance, but if the straps get loose over time it would make sense to tighten them a little. I don't know if this is the last page allowed on this thread and we may have to continue our discussion on a new thread soon

    Melissa,

    We weren't given any exercises to do and I meant to ask, but it was such a whirlwind day that I forgot ! Is there a booklet that shows which exercises should be done ?

  7. #82
    Join Date
    Nov 2005
    Location
    Cyprus
    Posts
    71

    Question

    Quote Originally Posted by MATJESNIC
    Hi there,
    I saw your daughter on SpineKids and she and Nicole have a lot in common. She is very excited to have a new friend who lives so far away and has so much in common with her. It seems as though their curves are similar, as well. I guess the true test will be what is happening over the next 3-6 months. I am sure I mentioned we are going back Dec 28. Anyway, Nicole always complains about doing the exercises, but they only take minutes to do. I do not believe that all Spinecor centers incorporate the exercises with the brace. I am not sure. Thanks so much for replying and confirming what I thought. Talk to you soon, Melissa

    I am so grateful you mentioned spinekids. My daughter is so excited and amazed that there are so many other girls with "the same problem as hers" she told me she felt much better now! Those kids are amazing on spinekids.

    How far is the doctors' office you are seeing in December? Is this your first or second follow up? We are flying to Greece on December 13 for the first orthotists follow up and then in January for the orthopedic visit.

    I have to remind my daughter to do the exercises, I can't say she is too fond to do them. I've taken her 4 times to a physiotherapist who makes sure she does them right and corrects her. A few more visits and then she can do them at home. We got a ball and a streching band. They are very precise correction exercises with small moves that use the same forces that the spinecor does. I thought spinecor and these exercises go hand in hand, Celia I think you should ask about them. Did they recommend some other form of exercise? I am very interested to know. I have looked into yoga exercises and I am expecting a yoga book from amazon that has a special section on scoliosis. I also massage my daughters back almost daily and she loves it. I believe soft manipulation would help their muscles, nerves, bones....Also what do you think about swimming? Our orthotist recommended rollerblading!! To keep working on her balance....Any other ideas?

  8. #83
    Join Date
    May 2005
    Posts
    776
    Quote Originally Posted by MATJESNIC
    it was up 2 degrees. Dr. Deutchman said it meant nothing and was not at all concerned.
    clearly a couple of degrees either way doesn't mean a thing as this falls within the "margin of error", of the measurements

  9. #84
    Join Date
    May 2005
    Posts
    776
    Also what do you think about swimming? Any other ideas?[/QUOTE]

    our daughter does

    1) lots of swimming (hopefully to keep the spine flexible and strenghten the backmuscles)
    2)lots of ballet (for the same reason, and because she loves it)
    3)torso rotation exercises against resistance (acc to Vert Mooney)
    4) lateral/sideways stretching towards the convex side of the curve, the idea being that in the curve the ligaments on the concave (hollow) side of the curve have shrtened and need stretching to allow the spine to move towartds a more neutral position (well, that is what one hopes)

    gerbo
    Last edited by gerbo; 10-27-2013 at 04:29 PM.

  10. #85
    Join Date
    Sep 2005
    Posts
    877

    Spincecor

    Those exercises with the bands seem like a good idea. We bought a wobble board to work on balance. We were told to buy one. Nicole goes to the chiro 2 times a week for electric stim and sometimes massage. I was told that ballet is wonderful for scoli and she does that 2 x a week ( in addition to all her other dance classes) with her brace on. Nicole's appt in Dec is about 1 and a half hours away in New York City. Christmas in N.Y. is amazing, so we plan on doing some fun things while we are there. This is our 2nd follow-up. We got the brace in Sept, went back in Oct, and will go at Christmas. After that it is approx every 3 months. Everyone says swimming is wonderful. Personally, roller blading is not Nicole's strength. Our luck, she would fall and break something!!! I would rather stick with the wobble board for balance. It's really fun, sometimes I go on it, LOL!! Nicole just showed me her map from social studies and she found Cyprus on it. She is going to share in school tomorrow that she has a new friend who lives there!!
    Melissa

  11. #86
    Join Date
    Nov 2005
    Location
    Cyprus
    Posts
    71
    What exactly is a wobble board??? It sounds like fun! I wonder if it's been around a long time or is a new invention. My daughters rollerblading skills are non-existing too but she is willing to give it a try.
    I'm glad Nicole found Cyprus on the map. My daughter sent her an e-mail I believe.

  12. #87
    Join Date
    Mar 2004
    Posts
    1,140
    Quote Originally Posted by cyprusmom

    Celia ... Did they recommend some other form of exercise? I am very interested to know. I have looked into yoga exercises and I am expecting a yoga book from amazon that has a special section on scoliosis.

    Hi,

    Sorry I didn't reply sooner to this ! We weren't prescribed any form of exercises to do, but I'm sure if I had asked we would have been given something. It was a very busy day and a long LONG trip to Montreal and my mind wasn't sharp Next time we go, I'll be sure to ask.

  13. #88
    Join Date
    Dec 2004
    Posts
    236
    Hi, We didn't get "prescribed" any exercises either; have to find out more. We have ordered and use the Elise Miller's Yoga for Scoliosis.

    My post fusion daughter swam competitively (alot!) and it put her in great shape for surgery, very flexible, great correction. But helping the curve . . . . I don't know. Pat

  14. #89
    Join Date
    Sep 2005
    Posts
    877

    Excercise with Spinecor

    When you think about the philosophy behind Spinecor it makes sense that they want the kids to be extremely active while in the brace. I guess the brace is putting them in their corrected position, so to speak. The exercises are supposed to be helping the body to accept the correction. I don't think I am explaining it correctly. Anyhow, I know ballet and yoga are both excellent. How is your daughter enjoying the yoga. I forget, do either of your daughters come onto SpineKids?
    Melissa

  15. #90
    Join Date
    Oct 2005
    Location
    United States
    Posts
    35
    yoga sounds fun. i bet it really does help. hmm, i wonder why yall werent prescribed any exercises. because my doctor said that they were very important to make the spinecor do its thing.
    Diagnosed @ age 14 (now 15)

    i HAVE A LOVELY SPINECOR BRACE

    CUrVES* 14&&17 as of 4.22.06 (out of brace)

    ATLANTA, GEORGiA

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