spinecor

[MATJESNIC]

spinecor

Hi all,
Remember when I was asking about rotation? Pola, I think you were the one who said that Nicole must have some rotation because her left shoulder blade sticks out. Also when she bends down, one side is higher than the other. Well, when I took her to the chiro for her electric stim and stretching, I asked him about it. You were right. He doesn't have any number for me, though. I wonder why Nicole's rotation was never mentioned. Neither orthopedic at either hospital said anything. I am interested because Pola, you were saying that they determined that her brace was working based on the rotation going down. I will definitely ask these questions on Wed when we see our Spinecor Doc. This is random, but I am still waiting for those darn bodysuits. It says in the brochure that it takes 4-5 weeks. But it seems like forever.
Melissa

[gerbo]

It might not be mentioned because it is such an intrinsic part of the scoliotic curve that it nearly"goes without saying" that there is a rotation; the forward bending screening test is ofcourse based on this

[cyprusmom]

Hello everyone,
back home after our appointement, ready for the holidays.
Gerbo I didn't realize your daughter was having her first assesment to get the spinecor. It all sounds like it went very well. You achieved a very good correction in the brace. Was she in a Boston before?

My daughter is following quite stricly the correction exercises prescribed by the orthotist for her Type of scoliosis. Both he and the physiotherapist commented that they are very important, but like it was discussed another time on this forum, some doctors prescribe them and others don't. They are official spinecor exercises though and I see exactly how they work on my daughters curves. The same forces that the bands are using while in the brace, the exercises do them in a greater degree and ofcourse repetitions.

Melissa, your appointment is coming up, you will have lots of questions it sounds like....
Enjoy the holidays everyone

[AILEA]

Melissa, reading your last post, it seems like you are getting anxious because of "all those numbers" that you don´t have.
I´ve got lots of measurements, because We´ve seen several (lots) of different specialist, but not all of them have told us about the rotation,. Well, in fact, our regular ortho., has been specially kind, and has explained us quite a lot about "our" scoliosis, but you know, doctors usually don´t have enought time, and they´re not allways kind...Good luck with your app.
Gerbo you mentioned , that the radilogist put the pelvic protection in front of your daughter, not behind her. Could you believe what I saw, when I looked at our last x-rays? There was no pelvic protection. If you ask me, I´ll answer: Yes, you really have to think of everything yourself.
Take care

Ailea

[Celia]

Melissa,

I'm really surprised the chiro couldn't give you Nicole's rotation ! Does he have a copy of her x-ray ? Because if he does, it's just a matter of looking at the distance of the pedicles to the outer edges of the vertebrae. Normally there would be the greatest amount of rotation at the apex of the curve and that's the vertebra you would look at. According to the Nash Moe method, no rotation would be 0 and the greatest amount of rotation would be 4 - Ailea explained it very well ! In general, rotation follows the severity of the curve - the greater the curve, the greater the rotation. I don't know if it's possible to have high rotation with a low curve I also don't know whether it's possible to significantly reduce rotation in an adolescent child without surgery. It's easier to reduce rotation through bracing during the infantile/juvenile years but once a child reaches the adolescent stage and the vertebrae become rigid, it might be more difficult. There are so many things to consider, i.e., whether it's a long standing deformity or whether it just occurred within the last few months, whether wedging exists etc. If you start to think of all the variables, it'll just boggle your mind. The only thing I can say is KEEP THE FAITH !!!

Let us know what Dr. Deutchman has to say....


Gerbo,

Did Lisanna have an A/P x-ray ?

[MATJESNIC]

Celia,
Thanks for the info. No, the chiro didn't have a copy of the x-ray there. We showed him copies before, but we have the copies at home. We will certainly ask Dr. Deutchman.
Melissa

[gerbo]

Did she have an A/P x-ray ?

PA (that's why it didn't make sense to have protection at her front, the more i think about it the more stupid it seams, we really should have said something, but she was so friendly and we didn';t want to get her into trouble........, aren't we nice people......)

[MATJESNIC]

spinecor

Hi Spinecor Friends,
I hope everybody had a nice Christmas and/or Hanukkah. We had Nicole's appt in N.Y today and it went very well. She grew an inch and a quarter. She had 2 x-rays taken. Out of her brace, she measured at 32 degrees (down from 37). In the brace, she measured at 27 degrees (up from 23 degrees). Dr. Deutchman believes that if he had tightened the brace some more, we would have had a better in-brace measurement. But he didn't want to do that because we have another compensating curve that we are concerned with. He also measured her rotation and it went down from a 14 to an 8. He was very pleased with the results. He is more concerned with out-of-brace x-rays than in-brace.
He added a new excercise for Nicole to help the compensating curve.
We were there for 2 hours and I had all of my questions answered.
Although we are extremely pleased with how things are going, we know that Nicole is not out of the woods yet. At any given time, her curve could increase. but now we have some extra room to "play with" so to speak. Nicole is very happy that her brace and her exercises seem to be working. She is going to have a much better attitude. Her brace's name will be Roxy again instead of CRAP!!!! Thank you all for your prayers and good thoughts. We know there is another family in the area who has a son and goes to Dr. Deutchman and he is doing well, too. I am full of hope as we start the new year. Happy and Healthy New Year to all of you. Any questions, feel free to ask.
Melissa

[cyprusmom]

Hey Melissa, what great news!!!! I was thinking about you yesterday and your appointment. It is wonderful to hear positive results from us spinecor moms and dads.... It gives us all more hope. What do you mean by the other compensating curve she has though?(It is my turn for questions!) Glad you found out Nicoles' rotation going down too, and one last thing, please remind me was that your second appointment since Nicole was fitted with the brace? If so, did she have x-rays before?
Enjoy your Nicole with her better attitude....
Pola

[MATJESNIC]

Spinecor

Hi Pola,
It seems as though Nicole has two other small curves. The Dr. explained it to me. Often, when there is a major curve, other parts of the spine are affected by it. I think it's the way Nicole is compensating for the curve she has that causes the other curves. I am not sure I understand it exactly or that I am explaining it correctly. She is considered to have one major curve. The last out-of-brace x-ray was almost 4 monts ago when she got her brace. She was at 37 then. When we were there almost 3 months ago, she had an in-brace one taken and she was at I think 25. I never realized that he had told me about the rotation at our first meeting. It had been written down. But we received so much info then that I didn't even realize. Anyway, I hope I answered all of your questions.
When will Anastasia turn 12? Nicole's birthday is March 21. She is 5'2. If she takes after me and my older daughter, she only has 2 or 3 inches left to grow. But it is also possible that she will be taller. My husband is 6'.
Melissa

Hey Melissa, what great news!!!! I was thinking about you yesterday and your appointment. It is wonderful to hear positive results from us spinecor moms and dads.... It gives us all more hope. What do you mean by the other compensating curve she has though?(It is my turn for questions!) Glad you found out Nicoles' rotation going down too, and one last thing, please remind me was that your second appointment since Nicole was fitted with the brace? If so, did she have x-rays before?
Enjoy your Nicole with her better attitude....
Pola

[Celia]

Melissa,

Great news !!! That must be such a relief to know that things are improving, I know this was an important appointment for you and Nicole. Can someone enlighten me on the measurements Are they actually measuring rotation with the scoliometer or are they measuring the gibbosity/rib hump ? Oh, I got three pink body suits from that place and they look great !!!! Next time I order, I might contact the other place Pat recommended since they're a little cheaper.

Pola,

I think you mentioned on one of the posts that you purchased some extra pieces, were they very expensive ?



HAPPY NEW YEAR everyone


celia

[pat]

Wonderful news Melissa! So glad to hear. It's amazing how far we've come in this house, we all forget she's even wearing it! When is your next appointment?

Celia, we got our bodysuits from bodysuit.com, and they've worked out beautifully, and we also got them from special clothes, and I'll order more from bodysuit. Special clothes just didn't fit as well.

p

[MATJESNIC]

spinecor

Can you all believe that I am still waiting for my bodysuits from Special-Clothes. They sent them to me and I sent them back for some special alterations. Last I talked to them they said I should be getting them any day now. That was last week. I am so sick of washing the same 7 over and over again.
He measured Nicole's rotation by having her bend over and used some instrument to measure the rib hump. Everything else was measured with x-rays. Not a lot of room for error with x-rays because it is the same Dr. having her stand in the same spot in the same way, etc. Our next appt. will probably be in the beginning of April. For now, he wants to see us every 3 months. We are getting pros at hopping the train and hailing a cab in N.Y. lol!
Thanks for all of your support. We wish everyone a Happy New Year.

Melissa

[AILEA]

Great news, Melissa!! I´m happy for you!.
It seems that all the app. in the last months have been satisfactory! I wish everyone a happy and "full of good news" year!!

Ailea

[cyprusmom]

When will Anastasia turn 12? Nicole's birthday is March 21. She is 5'2. If she takes after me and my older daughter, she only has 2 or 3 inches left to grow. But it is also possible that she will be taller. My husband is 6'.
Melissa

HAPPY NEW YEAR EVERYONE! ΕΥΤΥΧΙΣΜΕΝΟ ΝΕΟ ΕΤΟΣ! (Α little greek 4 u)

Melissa, thanks for answering my questions. Yes I was told a similar thing about Anastasias curves. They are sort of balancing the spine.....by going one way and the other the opposite way....and too much information that gets me confused at times. I run my fingers up and down her spine and can visualize exactly what happened and wish I could just push it back all into place. But I do massage her and send her some positive energy....

Anastasia will turn 12 on June 13th and she is now 1,58 (sorry, metric system here!) If I stand correct that is about 5'3. My husband is 6'3 and I am around 5'6. We'll see where she stops. I heard some whispers about kids with scoliosis losing some inches of height.....anyone knows more about it?
Pola