spinecor

[emarismom]

Thank you Laura for your response. I think I just over worry and try to do to much. Quite ironic when there is really NOTHING I can do, as all of this is completely out of my control

I guess I need to change my signature. Somehow doing that seems to make it more real. I'll get to it one of these days.

[RugbyLaura]

I don't think there's such a thing as over worrying when you're a parent! I have done plenty in the last year!! I guess we were just lucky enough to have good news this visit so can take some time out from worrying...... This rollercoaster rattles along, remember that Immy was 38 degrees age 9 and is now 27. Who knows what's next for any of our wonderful children??

[emarismom]

Thanks Laura. I took the day off today to just go shopping, have lunch with my hubby, and hopefully forget about scoliosis for awhile.

What's most upset me this week is that rollercoaster ride. With Emily looking sooo much better, I had gotten a false sense of hope that the ride would be ending and I wouldn't have to worry for 5 more years. (Emily was diagnosed at 5, so I've already been in this for 4 years). This is my wake up call that nothing but time will solve this. At least I have the knowledge, that in time Emily can be "cured", whether it be with surgery or not. Alot of parents don't have that.

[gerbo]

I guess I need to change my signature. Somehow doing that seems to make it more real. I'll get to it one of these days.

just change it to "curve approximately 20 degrees", which could well be kind of correct and reflects all the variables involved and variation that occurs in measuring a curve

[RugbyLaura]

I guess we've been quite lucky as Immy was first diagnosed only a year ago. We've sort of known about it for a year or so longer but didn't look into it or take it terribly seriously. When she apparently progressed so quickly immediately after diagnosis I felt HUGE amounts of guilt. I was sure that not having taken it seriously meant that we had missed the critical period for treatment - although here in the UK they tend not to brace until 30 degrees plus -. At the time I was very cross that they don't screen here. Since then I have seen arguments that state that screening causes unnecessary worry when mild Scoliosis is picked up which would probably never have progressed. I'm sure there are good arguments for both, but what I'm trying to say in a particularly inarticulate manner (!) is that I'm glad we were spared those extra four years of worry.

Have a great lunch and buy yourself something expensive
XX

[jillw]

Emily's Mom, I probably wouldn't want to wait 6 months if I were you either. What if you do a 3-5 month range...if she grows a lot in the next few months go back in 3 months, if her height (and weight since I suppose if they were growing curved we wouldn't necessarily see an increase in height) were only slowly increasing or were stable maybe go in 4 or 4 1/2 months?

I would say definitely go in 3 months but the whole frequency of xray radiation exposure that our children are subject to scares me so I would probably try to wait an extra month or two unless there were other circumstances (such as growth) that made me want to get in sooner. Of course I'm not a professional and I have way less experience with scoli than just about everyone else on these boards - Good luck with whatever you decide!

Was Emily braced before Spinecor? You mentioned she had scoli for years; i'm guessing she probably wasn't given the size of her curves. (had they been around 16 degrees all those years or had they creeped up a bit if you don't mind my asking?)

[MATJESNIC]

We were told that the ideal was every 4 months, three times a year. This way they are not exposed 4 times a year. That was just one orthopedics opinion. I always thought 5 months was too long.

[gerbo]

spinecor protocol says once/ 6 months, more frequent is not going to make any difference in practice as it will not change the management!

[Celia]

I just wanted to say Good-bye and Good Luck!! I love you guys!!! A few of you know my private e-mail so you could send me updates. If you don't know it, ask Gerbo.

[rtremb]

I have a question about the Spinecor brace. My daughter's back is developing a dent where the lumbar curve is. This has developed over the last week or so. I am wondering what this is and whether it could be being caused by the Spinecor brace? Have any of you noticed this on your children's backs? She is wearing the brace 17-19 hours per day. Is it possible this is spine rotation?

Ruth

[RugbyLaura]

No Celia! Please don't do this. You are valued and dare I say needed on this forum. I can understand you feeling very angry about your treatment. For some reason you seem to be the main target of abuse from certain quarters. I have also seen an extremely rude post directed at Ruth. The moderators (are there any on this forum ) need to act to curb the behaviour of this particular person.

It would be a terrible shame if genuine, caring people like you were driven away, please reconsider.

[RugbyLaura]

Sorry Ruth, can't help - no lumber curve & no dent.

[WNCmom]

I have a question about the Spinecor brace. My daughter's back is developing a dent where the lumbar curve is. This has developed over the last week or so. I am wondering what this is and whether it could be being caused by the Spinecor brace? Have any of you noticed this on your children's backs? She is wearing the brace 17-19 hours per day. Is it possible this is spine rotation?

Ruth

Ruth:

I'm not sure what you mean by dent, but here is what I see on Sidneys: His spine "disappears" for several vertebrae at his T curve, which is the main one. He is very slender and I can't see the knobs of his spine there, but I see them everywhere else--it's because of the rotation. My husband has something similar, with a much smaller curve (never been x-rayed).

But it were rotation, why would you just be noticing it on Esme? Surely she's not just beginning to have spinal rotation? Odd that it would happen in just a week.

Mary Ellen

[Sherie]

I have a question about the Spinecor brace. My daughter's back is developing a dent where the lumbar curve is. This has developed over the last week or so. I am wondering what this is and whether it could be being caused by the Spinecor brace? Have any of you noticed this on your children's backs? She is wearing the brace 17-19 hours per day. Is it possible this is spine rotation?

Ruth

Ruth

Sheena had a dent on the concave side of her lumbar curve prior to surgery. If you would like to see her before and afters, send me your email in a pm, it was more noticeable in person, but you can still see it on her photos. She had a lot of rotation.

[MATJESNIC]

Gerbo,

Even though it wouldn't change the management, for someone like Nicole, we lost a little bit of time before surgery. If a curve gets out of control a month after your appt and you don't get seen for 4 or 5 months, you have wasted so much time. Time that could have been better spent in a new brace, in a new program or getting surgery.