Hi all, my son Tobey (18mths) has congenital scoliosis which was first discovered when he was in hospital with kidney failiure at 3 wks old.
The kidneys have always seemed to be the issue, the drs all believed the spine would be ok but now the curve is worsening and they're recommending surgery.
I can't find any UK based forums, I think things might be done slightly differently here but it would be so good to hear from anyone preparing for surgery-we're waiting for an MRI (should be in the next few weeks) and then we should get a date for the op if we agree-so until then any advice or info would be fantastic.
At the mo it's just so good to find this site!
Jenny
The kidneys have always seemed to be the issue, the drs all believed the spine would be ok but now the curve is worsening and they're recommending surgery.
I can't find any UK based forums, I think things might be done slightly differently here but it would be so good to hear from anyone preparing for surgery-we're waiting for an MRI (should be in the next few weeks) and then we should get a date for the op if we agree-so until then any advice or info would be fantastic.
At the mo it's just so good to find this site!
Jenny
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