I am Gail Kimball and am mother to Patrick, 5 (11/28/98), and Erin, 2 (02/02/02).
Erin has Congenital Scoliosis, VATER (Vertebrae and Renal - she only has one kidney), Syndrome, Klippel Feil Syndrome and Torticollis.
We are under the care of Dr. Alvin Crawford at Children's Hospital in Cincinnati. http://www.cincinnatichildrens.org/s...n-crawford.htm
On Feb 3, Erin was cast for the mold for her CTLSO brace w/ left pad on temporal region and righting pad on right lateral neck. and this isn't even for her scoliosis! It is to try and prevent even more facial displacia.
Does anyone have any information on facial displacia? I am really looking for support from other parents going through congenital scoliosis. It has been extremely hard to find info - all I seem to be able to find is infantile - and it isn't the same! Which is why I was suprised to see the congenital under the infantile on this board.
Hope to "meet" some of you soon.