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Thread: no rods

  1. #1
    Join Date
    Sep 2005
    Location
    North Carolina
    Posts
    3

    no rods

    Hi! I'm new to this forum and am trying to see if any one out there has had fusion without rods? I had my surgery when I was 12 ( I'm 41 now) and could not be corrected so I have no rods and my spine is still quite crooked. I am having nerve pain and every docter I've seen just seems to pat me and say, "... see you next appt." I really would like to know if some one else has the same circumstances!I need to talk to some one about current therapies for muscle and nerve pain, new surgeries, anything that may help me as I age to be able to walk, breathe, and swallow without choking! I'm afraid that due to the fact that my curvature extends from my neck to my sacrum, I'm in for rather a rough ride. Please comment if you have ANY advice!
    Last edited by Ginav; 09-28-2005 at 09:09 PM.

  2. #2
    Join Date
    Jun 2004
    Location
    Ireland
    Posts
    35
    Hi there !
    I'm 38 and had my fusion in 1983. I never had any instrumentation either and my curve is currently 120 degrees and hopefully holding.Any time you'd like to chat, just e mail me or add me to msn
    sinead_247@hotmail.com
    Sins
    Last edited by sins; 10-05-2005 at 01:43 PM.
    Co founder Scoliosis Support Association Ireland.

  3. #3
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Hi Ginav...

    I'd like to encourage you to get another opinion. If possible, try to find a specialist who has a lot of experience treating patients with prior fusions.

    Regards,
    Linda

  4. #4
    Join Date
    Sep 2003
    Location
    NJ
    Posts
    1,291

    Smile Ginav

    That was my situation. I was greatly helped by revision surgery. My fused spine continued to curve in adulthood - and wasn't stopping.

    You will find your answers in this forum.

    Karen
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

  5. #5
    Join Date
    Oct 2005
    Location
    fl, formerly ny
    Posts
    6

    Unhappy me too

    Quote Originally Posted by Ginav
    Hi! I'm new to this forum and am trying to see if any one out there has had fusion without rods? I had my surgery when I was 12 ( I'm 41 now) and could not be corrected so I have no rods and my spine is still quite crooked. I am having nerve pain and every docter I've seen just seems to pat me and say, "... see you next appt." I really would like to know if some one else has the same circumstances!I need to talk to some one about current therapies for muscle and nerve pain, new surgeries, anything that may help me as I age to be able to walk, breathe, and swallow without choking! I'm afraid that due to the fact that my curvature extends from my neck to my sacrum, I'm in for rather a rough ride. Please comment if you have ANY advice!
    hi, i was 12 too, am now 54. same problems plus a few. drs are a joke. was told major reconstructive, 6 mos recovery and no guarantees had a wonderful md in ny, but fl is pathetic. fight hmo's every step of the way, then the drs. no one seems to know what to do with us "oldies" on vicodin, muscle relaxants and finally ssdi!. can't sit, stand walk without pain, feel free to email me @ hbkt@aol.com. nice to know i'm not alone!

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