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  1. #1
    Join Date
    Apr 2005
    Location
    the uk, between london and the south coast
    Posts
    142

    Lightbulb plea for help concerning information on screening

    i'm from the UK and had single stage anterior surgery (fusion T11-L3) 10 weeks ago. over here, awareness of scoliosis is VERY low and screening is even less common.

    i'm basically looking for comments from anybody in the US/canada on what their experience has been of screening (what has happened, how often and when, by whom etc) and even if your experience has been of a lack of screening (as mine is here)

    any response would be gratefully appreciated, you can post here, or feel free to email me: yourmatemarmyte@hotmail.co.uk

    thanks in advance, i look forward to hearing your stories

    becky

  2. #2
    Join Date
    Sep 2005
    Location
    Indianapolis, IN
    Posts
    8

    Scoliosis screening

    My experience with screening is a bit on the negative side:
    I didn't find out that I had scoliosis until I was 14, during a physical exam for sports. I was immediately sent to Riley Childrens hospital in Indianapolis, IN to begin my journey. My parents were curoius why the screening perfomed in school never detected my curvature, (which was very prominent at that point.) We went through the school records and discovered that my scoliosis was PRESENT all the way back to 1st grade! Their reply was that they are NOT required to inform anyone of the results! You can probably understand my frustration- especially since I will undergo surgery in December. I really wish the screening was enforced to inform parents of the results. Otherwise, what is the point?

  3. #3
    Join Date
    Apr 2005
    Location
    the uk, between london and the south coast
    Posts
    142
    thanks very much for sharing - that is really weird!

    the other question i should've asked is: how do they do it? i've heard in some parts of the US they shine a special light down your spine? but i guess that is done by the nurses and not the PE staff

  4. #4
    Join Date
    May 2005
    Location
    Buffalo, NY
    Posts
    33
    Like you, Alexandra, my view of in school screening is very negative. I am the one who found my daughter's scoli when she was 15. At that time it was very pronounced. When I inquired to her school about screening, they told me...and I quote: "Yes, she did have scoliosis for a few years, but it's gone now." I wish it did just go away like they said! I got NO notification from the school. Great system! I think it should be mandatory that the results of any in school screening (hearing, vision, SCOLI) be sent home to parents.

  5. #5
    Mary Lou Guest
    Our school district checks our kids in seventh grade. My daughter was diagnosed at her 12 y.o. check up with the family physician which was about two months before the school would have checked her. Thinking back, I wish I would have waited until after the school screening to notify the school of Jamie's Scoliosis to see if they picked it up because, like others have said, it was very noticable by this point.

    Mary Lou

  6. #6
    Join Date
    Oct 2004
    Posts
    166
    Hey Becky- I live in the US, and I think I wasn't screened for scoliosis past the elementary school years- 10 years old tops. I had to have annual physicals done by the family doctor to participate in school sports in middle school and high school, but scoliosis screening was never part of the exam.
    Blair

    Dec 15th, 2003 @ age of 20
    Posterior Fusion and CD Horizon instrumentation T2-L1.
    Surgery by Dr. Herkowitz- Beaumont Hospital of Royal Oak, Michigan
    Excellent correction of 52 degree single left thoracolumbar curve. Slight curve remains in unfused lumbar region but seems stable.
    February 5, 2005- Failed Scar Revision Surgery
    September 17, 2005- 2nd Failed Scar Revision.

  7. #7
    Join Date
    Apr 2005
    Location
    the uk, between london and the south coast
    Posts
    142
    this is pretty frightening! like i said, we never had scoli screening (well, i was checked for it in my initial school medical when i was 4, but that's not compulsory) but we had hearing and sight tests and if the results were a cause for concern, they were ALWAYS sent home to our parents. i can't believe the information isn't shared. if the school won't do it, maybe the way to go is to clue your kids up and get them to share information with you, have them ask whoever is testing them for whatever that they let them know what happened. i had an eye test at 10 and the nurse told me i needed glasses so i told my parents. after i'd seen an optician and had glasses, we received the letter from the nurse telling my parents to take me to get a proper test - i think they don't rely on all kids being so forthright!
    diagnosed aged 14 (2001)
    braced from july 2001 to february 2003 to hold curves
    fused T11-L3 on july 16th 2005 (aged 18)
    Discharged by surgeon july 11th 2007 (aged 20 and almost 2 years post-op)
    scoliosis support forum

  8. #8
    Join Date
    Jan 2005
    Location
    Northeastern Oregon
    Posts
    515
    Crystal was scanned in grade school and had to have physical exams for basketball every year, let alone had to see the doc annually for her asthma. Oh, yes there were lots of x-rays everytime she would land in the hospital with pnuemonia and/or a severe asthma attack and none of them ever said a word. They would just ask if she had ever injured her back. She would say NO and they would say okay and go on their way. She has had MRI's and CAT scans because of other health issues, that we have now figured partly caused from her curves, and it was never detected. Even her GP didn't see it on her x-rays last December when she was in the hospital for x-rays, after we had already seen the surgeon at Shriners and been put on the surgery list. SHe could see it when I finally showed it to her. Great deal, I was educating the doctor. Makes a person feel real confident doesn't it. Finally took her to a pediatrician that was recommended last fall. An immediate referral to Shriners and things were well under way. Now with her back fixed, her other health issues have solved themselves. Her asthma not classified as severe any more. She is classified as moderate asthma. So, who do you blame for no detection. At least some of you have schools that didn't tell you or completely missed it. We had the medical society for years not picking up on it.

  9. #9
    Join Date
    Jul 2005
    Location
    Philadelphia, PA
    Posts
    29
    i live in the u.s.
    my scoliosis was 'discovered' during a physical when i was about nine, and my school checked in 7th grade, when i was 11. i was excused from the testing (no need for it) but i think they have you bend over and can tell somehow. they do notify your parents because my friend was tested and they thought she had it, so they called her parents. if my scoliosis wasn't discovered during my physical i probably would have died from scoliosis complications by the time the school exam occured, so it's not really effective at all.
    Marlana
    16, Senior
    Spina Bifida
    Boston Brace for 2 years
    Spinal Fusion July 25, 2002
    Post-Op Brace for 6 months

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