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Thread: 14 mo.old gr.son/surgery/casting

  1. #1
    Join Date
    Aug 2005
    Middle Tennessee, near N'ville

    14 mo.old gr.son/surgery/casting

    I'm new to the forum, so excuse me if I don't know how it all works! My 14 month old grandson had surgery a week ago. They removed 5 discs, took out a rib & used it to graph. He's in a full body cast for 2-3 mo. Anyone with ideas/advice on how to manage a little one who was just beginning to walk who could comment would be appreciated. We're told he won't need other surgeries, but since reading messages in the forum, I wonder about torso growth, etc.

  2. #2
    Join Date
    Oct 2003
    Hi Lisa,

    I remember you from another scoliosis list. My son, Braydon, is now 10yrs old. He had fusion only surgery at age 11 months. His trunk/torso is disproportionately shorter than it should be. As of right now, they estimate he has a 4-inch compromise in his trunk (based on wingspan measurements -vs- actual height). I know hindsight is always 20/20, but I wonder what options the docs gave your daughter? Did they suggest any other options besides fusion surgery? It is such a drastic procedure on such a young one.

    I can't guarantee he won't need future surgeries. Braydon has had two vertical expandable rods placed in his back (not along the spine, under the shoulderblade) to support his spine and keep his chest expanded so his right lung has optimal room to breathe. Your grandson will need to be evaluated occasionally to make sure his lung function is not compromised from this early fusion surgery. I'd love to visit with you about your grandson. Again, my email is
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc.

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