Hi there,
I've been reading through a lot of your posts & I have a few questions, on one post I read someone stating that the specialist can tell for sure from the the x-ray whether it's idiopathic or congenital scoliosis, is this 100% true? Brings me to my next question regarding another post, does it have to be diagnosed congenital in order for the Dr. to request a MRI/CT? I'm curious b/c here's my story... (if you want to know )
I have a 12 month old daughter who was diagnosed with Idiopathic Scoliosis @ 9 mos. (the curve is upper half of spine to the left which I believe is lumbar right?) so she tilts to the right, it was measured at 26 degrees. We've been to one follow up w/her @ 11 mos. & it measured the same 26 degree so they're sticking with Idiopathic (non-pregressive as of yet) & saying she'll most likely fall into the 90 percentile of cases that resolve "spontaneously". Although I hope that's the case of course I'm going out of my mind with worry that something more is wrong with her. Developmentally she's fine & right on track with where my first born daughter was at this age who is now an extrememly bright & verbal 2 year old. The specialists did several diagnostic type tests on her for reflex, vision, hearing, etc. & she seems to be functioning perfectly normal for a one year old. My concern has developed (since the scoliosis diagnosis of course) but also since then I've noticed a protrusion on the back of her head (about 2-3 inches up from her neck) more toward the left as well (just like the curve) not directly in the middle, kind of like a swell/bump one would get from hitting her head on something really hard which of course she hasn't. I also have noticed that the area of her head above of her ears (temporal lobe area from research of done on it) looks a little protruded too, on both sides, however it's more prominent on her left side as well. I don't know if any Dr.'s or therapists or specialists possibly view these posts or if any of you parents out here maybe be able to have some input or advice for me or maybe something similar to share. Of course I'm going to point this out to my Dr. but her next f/u isn't until she's 15 mos. & I'm going nuts trying to figure out if these protrusions on her head might be some underlying cause of her scoliosis, and also she's not walking yet which is concerning me even though she just turned a year on 9/4. I feel bad for scrutinizing her developements since we found this out but I'm just concerned, my other daughter was walking a week before her first birthday. She's moving around okay while holding on to furniture & she pulls herself up & can balance not holding on to anything, but her legs aren't incredibly strong at this point will still give out pretty quick & she can't sit on stand without help from someone or something & she's very stumbly while having her hands held & walking or when walking w/her push toy walker. Am I being too overly critical and/or paranoid?? I know I just need to "wait it out" until time goes by & we are able to know more & see if/when she starts walking, it would just help if I got some other kind of input or advice.. do you think my Dr. will request an MRI/CT upon hearing about the protrusions, even though he's diagnosed it idiopathic & not congenital? I will if not, I would like it looked into sooner (like tomorrow would be nice) then later. Every congenital issues (such as sydromes or birth defects) that I've read about possibly causing protrusions/abnormalities/malformations on the head in addition to scoliosis don't seem to apply to her in any other way, in addition to that I had an extremely healthy pregnancy & delivery & everything aside from the above mentioned is progressing normal. My husband isn't too interestd in talking about this anymore or having anything to do with researching all these scenarios when my Dr. is telling us there's a 90% chance she'll be just fine & her back will straighten out, I just can't help but to think these abnormalities on her head means more & it's consuming me with sickening concern & worry . If anyone has anything to share, input or answers to my questions it's greatly appreciated, sorry about the novel but if nothing more it's one more story for everyone else to relate to, I know I'm not the only one feeling this way! Thanks so much.. -MO2
I've been reading through a lot of your posts & I have a few questions, on one post I read someone stating that the specialist can tell for sure from the the x-ray whether it's idiopathic or congenital scoliosis, is this 100% true? Brings me to my next question regarding another post, does it have to be diagnosed congenital in order for the Dr. to request a MRI/CT? I'm curious b/c here's my story... (if you want to know )
I have a 12 month old daughter who was diagnosed with Idiopathic Scoliosis @ 9 mos. (the curve is upper half of spine to the left which I believe is lumbar right?) so she tilts to the right, it was measured at 26 degrees. We've been to one follow up w/her @ 11 mos. & it measured the same 26 degree so they're sticking with Idiopathic (non-pregressive as of yet) & saying she'll most likely fall into the 90 percentile of cases that resolve "spontaneously". Although I hope that's the case of course I'm going out of my mind with worry that something more is wrong with her. Developmentally she's fine & right on track with where my first born daughter was at this age who is now an extrememly bright & verbal 2 year old. The specialists did several diagnostic type tests on her for reflex, vision, hearing, etc. & she seems to be functioning perfectly normal for a one year old. My concern has developed (since the scoliosis diagnosis of course) but also since then I've noticed a protrusion on the back of her head (about 2-3 inches up from her neck) more toward the left as well (just like the curve) not directly in the middle, kind of like a swell/bump one would get from hitting her head on something really hard which of course she hasn't. I also have noticed that the area of her head above of her ears (temporal lobe area from research of done on it) looks a little protruded too, on both sides, however it's more prominent on her left side as well. I don't know if any Dr.'s or therapists or specialists possibly view these posts or if any of you parents out here maybe be able to have some input or advice for me or maybe something similar to share. Of course I'm going to point this out to my Dr. but her next f/u isn't until she's 15 mos. & I'm going nuts trying to figure out if these protrusions on her head might be some underlying cause of her scoliosis, and also she's not walking yet which is concerning me even though she just turned a year on 9/4. I feel bad for scrutinizing her developements since we found this out but I'm just concerned, my other daughter was walking a week before her first birthday. She's moving around okay while holding on to furniture & she pulls herself up & can balance not holding on to anything, but her legs aren't incredibly strong at this point will still give out pretty quick & she can't sit on stand without help from someone or something & she's very stumbly while having her hands held & walking or when walking w/her push toy walker. Am I being too overly critical and/or paranoid?? I know I just need to "wait it out" until time goes by & we are able to know more & see if/when she starts walking, it would just help if I got some other kind of input or advice.. do you think my Dr. will request an MRI/CT upon hearing about the protrusions, even though he's diagnosed it idiopathic & not congenital? I will if not, I would like it looked into sooner (like tomorrow would be nice) then later. Every congenital issues (such as sydromes or birth defects) that I've read about possibly causing protrusions/abnormalities/malformations on the head in addition to scoliosis don't seem to apply to her in any other way, in addition to that I had an extremely healthy pregnancy & delivery & everything aside from the above mentioned is progressing normal. My husband isn't too interestd in talking about this anymore or having anything to do with researching all these scenarios when my Dr. is telling us there's a 90% chance she'll be just fine & her back will straighten out, I just can't help but to think these abnormalities on her head means more & it's consuming me with sickening concern & worry . If anyone has anything to share, input or answers to my questions it's greatly appreciated, sorry about the novel but if nothing more it's one more story for everyone else to relate to, I know I'm not the only one feeling this way! Thanks so much.. -MO2
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