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Thread: daughter of 8yrs has scoliosis

  1. #16
    Join Date
    Mar 2004
    Location
    chichester
    Posts
    3
    Hi Gill

    Yes got your message and have sent reply.

    Mike

  2. #17
    Join Date
    Mar 2004
    Location
    chichester
    Posts
    3
    Hi Gill

    My sons name is Philip.He has a syndrome called banayan zonnana syndrome. He is eight and has had 17 operations so far. 2 open heart and the latest 5 weeks ago having the rods in. Philip is coping ok like all children do. He does walk but is using his wheel chair again as he is a bit stiff. He wears a Boston Brace and has done all his life. He has a double curve which was 87 degrees but since the operation has grown by 2.5 inches. Last noght was his first bath and we got through ok with towels etc. He was a bit worried but was ok.

    My wife and I are not together anymore but both live near Chichester on the south coast. Philip is the second youngest of 6 and all the others are fine.
    He had his operation in Southampton by a Mr Boree.

    Where is your daughter having hers done?

    Philip was inhospital for nearly 4 weeks. He would normally have come out earlier but his heart condition meant he had to be in a little longer.

    If there are any more questions, please ask them

    Speak soon

    Mike.

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